Discussions By Condition: I cannot get a diagnosis.

Can someone figure out what's going on with me? PLEASE?!!

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: lmorri02
  • January 14, 2008
  • 04:10 PM

To anyone who might have any suggestions: I am a 29 year old woman. I am 5'1" and weigh 90 lbs. Every day I wake up in pain and stay in pain until I go to sleep. I have constant, painful cracking in my knees, wrists, elbows,etc. and pain in my lower back that feels like stabbing pain sometimes, nerve pain other times, wrenching and pulling at other times. I have had 2 ANA tests done, both which were positive supposedly for Rheumatoid Arthritis. I saw a Rheumatologist and he said I didn't have RA. (He seemed very dismissive as soon as he saw me, I believe because of my age.) My primary care doc. doesn't seem to know what else to do, so he's treating me for Osteoarthritis and put me on Celebrex 200mg. It doesn't seem to be doing much. I feel like this is all I talk about or think about. I have become so frustrated and the pain interferes with my daily life constantly. Please, if you have any idea or know anyone with similar symptoms, I need all the help I can get. Thank you in advance.

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17 Replies:

  • I am sorry you are having such bad pain.You may want to fire your rheumatologist and find another who:1) will not blow you off2) will actually find out what is wrongYour ANA is not high "just cuz", and this is probably related to your other symptoms. Go to someone smart, not someone arrogant.Best wishes!Hope you find your answer soon.By the way, autoimmune/rheumatological diseases typically hit 30 year old women- you are in this ball park!
    Anonymous 42789 Replies
    • January 15, 2008
    • 02:02 AM
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  • I can relate about the pain! It might be different for us but it is very dibilitating and frustrating. I even get to the point of thinking of it all the time and it isn't because i want to, it is because the pain is telling me it's there. It really does sound like some kind of reumatoid arthritis to me. Of coarse I'm not a doc but just from what u said it sure sounds like that. Docs r very confusing I'm also finding. I hope u speak up with your doc and tell them u want something done now or u will look for another doc. By the way, have u ever noticed on all these forums every time it seems someone says lyme disease. What is with that? Take care and good luck!
    cbalcomgo 38 Replies
    • January 15, 2008
    • 05:07 AM
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  • I know you are tiny, but maybe a bit of a weight gain might help. Have you had a dex scan?
    Monsterlove 2921 Replies
    • January 15, 2008
    • 06:23 AM
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  • If you get a dex scan, don't get the one that is just for heels. Get the whole body. But bone mineral loss prior to ostepenia shouldn't hurt. There is something else going on.
    rad-skw 1605 Replies
    • January 16, 2008
    • 01:06 PM
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  • R.A. is a disease that only shows on the test for it when you are having a "Flair". Many women are diagnosed in their late twenties. With as much as you are having you will probably do well in taking a narcotic pain reliever along with an anti-inflammatory drug. My mom has R.A., your symptoms are close to hers-but her best friend has scleroderma, another auto-immune disease. I also have a close friend who has Lupus. The problem is that these diseases are so hard to diagnose and can take years, the testing is extremely expensive---you must be persistent and take charge of you medical care, research and ask for tests by name, also don't be afraid to ask for pain meds after all, that is what they are for. God bless.
    elizabethe 1 Replies
    • January 17, 2008
    • 00:35 AM
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  • I think for this one, it's because there's alot of pain with lyme disease.I can relate about the pain! It might be different for us but it is very dibilitating and frustrating. I even get to the point of thinking of it all the time and it isn't because i want to, it is because the pain is telling me it's there. It really does sound like some kind of reumatoid arthritis to me. Of coarse I'm not a doc but just from what u said it sure sounds like that. Docs r very confusing I'm also finding. I hope u speak up with your doc and tell them u want something done now or u will look for another doc. By the way, have u ever noticed on all these forums every time it seems someone says lyme disease. What is with that? Take care and good luck!
    Anonymous 42789 Replies
    • January 17, 2008
    • 02:04 AM
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  • Possible Dx:Osteoporosis due to malnutrition
    Anonymous 42789 Replies
    • January 17, 2008
    • 05:28 AM
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  • While your situation is a concern, so too, is the idea of taking Celebrex. Celebrex has an extensive adverse event profile that may create new problems or exacerbate the ones you already have. Check out www.adverse-drug-reaction.net. They have a data base that you can search by drug for a list of all adverse events reported by quarter. I don't know if you are still taking Celebrex but they also cover other health related topics.Good Luck.
    Anonymous 42789 Replies
    • January 17, 2008
    • 10:01 PM
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  • I think for this one, it's because there's alot of pain with lyme disease.What is with people and lyme disease? I don't know if u r the one who says that to everyone but u have a sore throat have u looked into lyme? That is what I see on here all the time.
    cbalcomgo 38 Replies
    • January 18, 2008
    • 07:53 AM
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  • I am so sorry you are having so much pain. It sounds like you have fibromyalgia, NOT LYME disease (what is with the member blaze that tells everyone they have lyme disease...that is a very rare condition). Look up "symptoms of fibromyalgia" on google and see if your symptoms match.Good Luck,Janet Lewis RN, MSN
    Jankim9597 20 Replies
    • January 19, 2008
    • 10:39 PM
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  • What is with people and lyme disease? I don't know if u r the one who says that to everyone but u have a sore throat have u looked into lyme? That is what I see on here all the time.There's an old saying, "To a hammer, everything looks like a nail." Seems applicable here. At least he didn't recommend the witch doctory (NAET).
    Anonymous 42789 Replies
    • January 20, 2008
    • 00:12 AM
    • 0
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  • Fibro, CFS, RA and more are UNDX'D Lyme and co infections. Do searches on mycroplasma and see what you get.Do some research! Look up CAUSES of, not just symptoms.Why do you think they are treating RA with antibiotics these days?? The truth is coming out, slowly. Check out Roadback.orgMany people have been told they have fibro and in reality they have undx'd Lyme or a co infection. Many, have had antidepressants fed to them and the bacteria keeps spreading, thus more symptoms. Lyme is NOT RARE! Its an epidemic in some areas, esp on the east coast.Most drs have that Lyme is not in our area mentality, so they don't test for it. And people keep getting sicker and handed useless, expensive meds. They need antibiotics to help them. What happened to treat the Cause?? There is no money to be made when people are well, is there?Check out lymenet.org and see all the victims...who were told "it was just fibro or Cfs..Or better yet, it was all in thier heads." See for yourselves all the symptoms, of Lyme and friends. Neuroborriella is not a laughing matter wjen it gets into the brain! Check out Alzheimers and dementia, they come from yrs of undx'd Lyme and co infections.This is serious stuff folks, Not a joking matter. Take care~~Dee
    Anonymous 42789 Replies
    • January 20, 2008
    • 11:51 AM
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  • Can someone please tell me why this cult of lyme believers won't go away? Think about it, how many people do you know personally that have had lyme disease???
    Jankim9597 20 Replies
    • January 21, 2008
    • 05:08 AM
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  • I would research ehlers danlos syndrome i have it and i went through it for years until the doctors figured it out the pain your described i went through for years but after i was diagnosed they finally found the right medications to help me. It is kind of rare and it is said to be genetic although they can't find anyone in my family who has it. hope this helps
    Anonymous 42789 Replies
    • January 25, 2008
    • 01:49 AM
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  • Now that "House" has had an episode where the disease was Lyme, it will be with us forever.
    rad-skw 1605 Replies
    • January 25, 2008
    • 11:08 AM
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  • so he's treating me for Osteoarthritis Did he do any scans to actually see if you do have issue with Osteroarthritis. Im shocked if you are being treated for that without any vertification of it. If so.. insist to have tests done for it. I have osteroarthritis in 3 parts of my spine (and i think it's in my hips too) but my diagnoses came after I had xrays done of my spinal bones/joints.
    taniaaust1 2267 Replies
    • January 25, 2008
    • 11:22 AM
    • 0
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  • Have any of these doctors mentioned gout? My father suffers from gout and has complained of a lot of the things you are talking about.
    badhairday13 1 Replies
    • January 25, 2008
    • 08:51 PM
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