Discussions By Condition: I cannot get a diagnosis.

Can it be anything OTHER than cancer?

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • September 17, 2009
  • 00:26 PM

Hi,
I truly think my days are numbered and I have been constantly misdiagnosed by the Drs and I suspect it is too late for treatment.

OK my story. It was picked up many years ago that my liver function tests are elevated, back in 1999 a ultrasound and a CT scan showed fatty liver, my LFTs have been monitored over the years and have got a bit better, this year I had two more scans and again fatty liver or NASH was suspected, I saw a herpetologist who did many other blood tests for all the other causes of elevated LF and drew the same conclusion.

About three to four months ago I started to get nausea and over the last few months this has got far worse to the point that I hardly eat, please see below my current diet.

Now the alarming bit I have lost 20 pounds in body weight in the last three months, can this be anything other than cancer somewhere?

I have had ALL the blood tests a million times and ALL are normal, I was even admitted to my local hospital last week as my Dr thought I maybe dehydrated, I wasn't so I was sent home.

I have no pain just nausea plus lack of appetite.

The Nausea is at its worse four or five hours after eating, my stomach becomes VERY noisy almost like I am hungry and it is all I can do NOT to be sick, this lasts for a couple of hours.

I do get weak and light headed but not every day, sometimes even walking is an effort.

Yesterday I saw a GI doctor who examined me but found nothing but said I should have a gastro camera.


Any one with any thoughts what it could be would be great, I am really concerned that it could be cancer, I am 50 yo male 6ft .

My diet for the last three months,

Small bowl of cornflakes and a small yoghurt, slice of toast (wholemeal) with butter.

Single scrambled egg on slice of toast (wholemeal) with butter.

Small bowl of cornflakes and a small yoghurt.

I drink small glass of cranberry juice a day and about half a pint of water, nothing more.

Does this seem enough?

Thank you.


IanJ

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10 Replies:

  • Hi,I truly think my days are numbered and I have been constantly misdiagnosed by the Drs and I suspect it is too late for treatment. OK my story. It was picked up many years ago that my liver function tests are elevated, back in 1999 a ultrasound and a CT scan showed fatty liver, my LFTs have been monitored over the years and have got a bit better, this year I had two more scans and again fatty liver or NASH was suspected, I saw a herpetologist who did many other blood tests for all the other causes of elevated LF and drew the same conclusion. About three to four months ago I started to get nausea and over the last few months this has got far worse to the point that I hardly eat, please see below my current diet. Now the alarming bit I have lost 20 pounds in body weight in the last three months, can this be anything other than cancer somewhere? I have had ALL the blood tests a million times and ALL are normal, I was even admitted to my local hospital last week as my Dr thought I maybe dehydrated, I wasn't so I was sent home. I have no pain just nausea plus lack of appetite. The Nausea is at its worse four or five hours after eating, my stomach becomes VERY noisy almost like I am hungry and it is all I can do NOT to be sick, this lasts for a couple of hours. I do get weak and light headed but not every day, sometimes even walking is an effort. Yesterday I saw a GI doctor who examined me but found nothing but said I should have a gastro camera. Any one with any thoughts what it could be would be great, I am really concerned that it could be cancer, I am 50 yo male 6ft . My diet for the last three months, Small bowl of cornflakes and a small yoghurt, slice of toast (wholemeal) with butter. Single scrambled egg on slice of toast (wholemeal) with butter. Small bowl of cornflakes and a small yoghurt. I drink small glass of cranberry juice a day and about half a pint of water, nothing more. Does this seem enough? Thank you. IanJ There are many things that this could be, please don't set yourself up to thinking you have cancer when it could just simply be a gallbladder issue.Have you had a HIDA scan on your gallbladder? Have you had your B12 levels checked? Have you had a stool exam done to rule out pathogens in your stools? Do you have vomiting in addition to nausea, or just nausea? How are your stools - how frequent, quality, etc.? How old are you? Do you have a history of drug or alcohol abuse? Are you currently taking any medications? If so, please list ALL meds you are on, including OTCs. Do you have allergies, seasonal or otherwise? Have you always had digestion problems like gas/bloating after eating? Is this only a recent occurance that has never happened before? You state you only have one glass of water plus a glass of cranberry juice a day...is this true? That is a very INSUFFICIENT amount of water...also corn is very allergenic and you may have food insensitivities contributing to this problem. More info is needed. Please answer as much as you can.Best wishesDOM
    acuann 3080 Replies
    • September 17, 2009
    • 06:38 PM
    • 0
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  • There are many things that this could be, please don't set yourself up to thinking you have cancer when it could just simply be a gallbladder issue.Have you had a HIDA scan on your gallbladder? Have you had your B12 levels checked? Have you had a stool exam done to rule out pathogens in your stools? Do you have vomiting in addition to nausea, or just nausea? How are your stools - how frequent, quality, etc.? How old are you? Do you have a history of drug or alcohol abuse? Are you currently taking any medications? If so, please list ALL meds you are on, including OTCs. Do you have allergies, seasonal or otherwise? Have you always had digestion problems like gas/bloating after eating? Is this only a recent occurance that has never happened before? You state you only have one glass of water plus a glass of cranberry juice a day...is this true? That is a very INSUFFICIENT amount of water...also corn is very allergenic and you may have food insensitivities contributing to this problem. More info is needed. Please answer as much as you can.Best wishesDOMHi DOM,Many thanks for taking the time to reply.Now to answer your questions.I am a 50 year old male and live in the UK. As you may know the system we use in the UK can differ to that in the US, we can not get tests or referrals without the say so of our primary docs and my doc will not do further tests regardless if I am willing to pay, so my hands are very much tied.Tests to date. Not all are related to my nausea problems.MRI two part brain.CT Brain.MRI and CT arteries, neck.Liver lower intestine, bladder and kidney scan ultrasound. Only findings fatty liver, gallbladder looked normal, liver normal size and no other abnormalities seen. The scan has now been done twice over three months a different hospitals with the same reported.Chest x-ray.A very large number of blood tests, everything to relate to the liver, Celiacs, hepatitis, Wilsons, plus 50 more. All have been normal.The only blood test abnormality was LFT, this has been slightly elevated for many years, but as I have lost weight it has been returning to within the normal range.I have seen a hepatologist BEFORE I started to loose weight and he confirmed that I had a fatty liver. I have seen two GI docs again the first before I lost weight and one since. The most recent wants me to have an upper gastro camera. When pushed on what he thought could be causing this his reply was " If I was a betting man I would think that you have an inflamed stomach lining".My Vit-B12 is normal, done a month ago.I have not had a HIDA scan but would not think the UK NHS would be in to doing or referring me for one as it would cost them money. The same for pathogens test.I am not currently taking any medications.I do not have a history of drug or alcohol abuse.So far I have not vomited but it has been difficult not to if that makes sense. I do get a lot of acid and some in the back of my throat after eating. Also some burning sensations in my LH chest, stomach, but I do not get heart burn as such. OK yes in away the nausea is a new thing, possibly starting about 2 years ago in a very limited way. I would get the burning in my stomach and some stomach noise about 2-4 hours after eating, this made me think I was hungry so I eat a snack, this made me feel better. This continued for about 18 months and I put on a LOT of weight. Then I started to feel sick rather than just the burning, so I stopped eating so much, and now this is where I am now loosing a lot of weight 20 pounds and have constant nausea. My stools are soft, and I pass once a day, which is normal for me. They are light in color but again the always have been since a child. My pee can bee almost orange but I have had it tested, and put down to the fact that I only drink half a pint of fluid a day, yes that is correct half a pint.I do appreciate your help here, as it is doubly hard in the UK to get help as we are tied to the NHS system and I can not even get another doctor in my area although my GP is very patient I think they are tied by the system,Kind Regards, Ian
    Anonymous 42789 Replies
    • September 18, 2009
    • 10:12 AM
    • 0
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  • There are many things that this could be, please don't set yourself up to thinking you have cancer when it could just simply be a gallbladder issue.Have you had a HIDA scan on your gallbladder? Have you had your B12 levels checked? Have you had a stool exam done to rule out pathogens in your stools? Do you have vomiting in addition to nausea, or just nausea? How are your stools - how frequent, quality, etc.? How old are you? Do you have a history of drug or alcohol abuse? Are you currently taking any medications? If so, please list ALL meds you are on, including OTCs. Do you have allergies, seasonal or otherwise? Have you always had digestion problems like gas/bloating after eating? Is this only a recent occurance that has never happened before? You state you only have one glass of water plus a glass of cranberry juice a day...is this true? That is a very INSUFFICIENT amount of water...also corn is very allergenic and you may have food insensitivities contributing to this problem. More info is needed. Please answer as much as you can.Best wishesDOMHi DOM,Many thanks for taking the time to reply.Now to answer your questions.I am a 50 year old male and live in the UK. As you may know the system we use in the UK can differ to that in the US, we can not get tests or referrals without the say so of our primary docs and my doc will not do further tests regardless if I am willing to pay, so my hands are very much tied.Tests to date. Not all are related to my nausea problems.MRI two part brain.CT Brain.MRI and CT arteries, neck.Liver lower intestine, bladder and kidney scan ultrasound. Only findings fatty liver, gallbladder looked normal, liver normal size and no other abnormalities seen. The scan has now been done twice over three months a different hospitals with the same reported.Chest x-ray.A very large number of blood tests, everything to relate to the liver, Celiacs, hepatitis, Wilsons, plus 50 more. All have been normal.The only blood test abnormality was LFT, this has been slightly elevated for many years, but as I have lost weight it has been returning to within the normal range.I have seen a hepatologist BEFORE I started to loose weight and he confirmed that I had a fatty liver. I have seen two GI docs again the first before I lost weight and one since. The most recent wants me to have an upper gastro camera. When pushed on what he thought could be causing this his reply was " If I was a betting man I would think that you have an inflamed stomach lining".My Vit-B12 is normal, done a month ago.I have not had a HIDA scan but would not think the UK NHS would be in to doing or referring me for one as it would cost them money. The same for pathogens test.I am not currently taking any medications.I do not have a history of drug or alcohol abuse.So far I have not vomited but it has been difficult not to if that makes sense. I do get a lot of acid and some in the back of my throat after eating. Also some burning sensations in my LH chest, stomach, but I do not get heart burn as such. OK yes in away the nausea is a new thing, possibly starting about 2 years ago in a very limited way. I would get the burning in my stomach and some stomach noise about 2-4 hours after eating, this made me think I was hungry so I eat a snack, this made me feel better. This continued for about 18 months and I put on a LOT of weight. Then I started to feel sick rather than just the burning, so I stopped eating so much, and now this is where I am now loosing a lot of weight 20 pounds and have constant nausea. My stools are soft, and I pass once a day, which is normal for me. They are light in color but again the always have been since a child. My pee can bee almost orange but I have had it tested, and put down to the fact that I only drink half a pint of fluid a day, yes that is correct half a pint.I do appreciate your help here, as it is doubly hard in the UK to get help as we are tied to the NHS system and I can not even get another doctor in my area although my GP is very patient I think they are tied by the system,Kind Regards, IanI forgot to mention I can get a some bloating below my stomach button, and this can make me need to go to the loo in a hurry, No.2s, this happened this morning after I forced myself to drink more water, after 2 pints of water in one go half an hour later I had some gripping and needed the loo pronto. I do have piles and have always for years had ocational blood on the loo paper. I know it is coming from the piles if that makes sense as I can feel it.Thanks again, Ian
    Anonymous 42789 Replies
    • September 18, 2009
    • 10:53 AM
    • 0
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  • Being malnourished causes fatty liver and if you eat what you say then well vitamin deficiencies may be a problem and I'd be shocked if you weren't severely dehydrated and dehydration really does wreck havoc these are symptoms of dehydration http://www.symptomsofdehydration.com/This site is good for helping you determine how many calories you need, if I knew your weight/activity level I could do it. Clearly though you are not getting enough calories. I take it your appetite and thirst are very low? http://primusweb.com/fitnesspartner/library/weight/calsburned.htmI am not saying you might not have something else, just that you aren't taking care of yourself properly and that will make it worse"A 2007 study of mice found that diets heavy in so-called high-glycemic carbohydrates (such as white rice, white bread, concentrated sugar, and many prepared breakfast cereals), which get quickly digested, may lead to fatty liver disease. Mice on a high-glycemic diet received a kind of quickly digested cornstarch, while those eating a low-glycemic diet got a slowly digested cornstarch. After six months, the mice in the high-glycemic diet group had twice as much fat in their livers, blood, and bodies as the rest." So you should really look into eating a low-glycemic diet, need to give up those cornflakes and get something healthy. I would go to a Nutritionist and get them to help you more with your diet and get that under control
    kesaiserris 35 Replies
    • September 19, 2009
    • 07:10 PM
    • 0
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  • Being malnourished causes fatty liver and if you eat what you say then well vitamin deficiencies may be a problem and I'd be shocked if you weren't severely dehydrated and dehydration really does wreck havoc these are symptoms of dehydration http://www.symptomsofdehydration.com/This site is good for helping you determine how many calories you need, if I knew your weight/activity level I could do it. Clearly though you are not getting enough calories. I take it your appetite and thirst are very low? http://primusweb.com/fitnesspartner/library/weight/calsburned.htmI am not saying you might not have something else, just that you aren't taking care of yourself properly and that will make it worse"A 2007 study of mice found that diets heavy in so-called high-glycemic carbohydrates (such as white rice, white bread, concentrated sugar, and many prepared breakfast cereals), which get quickly digested, may lead to fatty liver disease. Mice on a high-glycemic diet received a kind of quickly digested cornstarch, while those eating a low-glycemic diet got a slowly digested cornstarch. After six months, the mice in the high-glycemic diet group had twice as much fat in their livers, blood, and bodies as the rest." So you should really look into eating a low-glycemic diet, need to give up those cornflakes and get something healthy. I would go to a Nutritionist and get them to help you more with your diet and get that under controlThank you for your reply. :)No I do not drink enough or eat as much as I should. The think is if I eat I feel so sick and have bad acid reflux I think it is. I do not do much exercise I can't but walk about 25 min a day and work on the PC for most of the day. My body weight is now 88Kg, if you can work it out, thanks again,Ian
    Anonymous 42789 Replies
    • September 21, 2009
    • 10:17 AM
    • 0
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  • Thank you for your reply. :)No I do not drink enough or eat as much as I should. The think is if I eat I feel so sick and have bad acid reflux I think it is. I do not do much exercise I can't but walk about 25 min a day and work on the PC for most of the day. My body weight is now 88Kg, if you can work it out, thanks again,Ianabout 2700-2800 calories a day if your trying to maintain weight add or subtract 500 calories from that for gaining or losing weight. A nutritionist will be able to help you get started a good diet, I'd do some research for yourself on the Glycemic Index it will help you figure out what foods are best for you given your condition. I know you were tested for Celiacs but sometimes you get a false negative so if the tests were done once, some you may want to revisit just to be sure. Have you had your gallbladder checked? Been checked for acid reflux disease? Yoghurt and Kefir have some good bacteria for the stomach and you can try that. Have you been checked for parasites too? Not drinking enough water and being dehydrated can cause indigestion. If I think of more or find more I'll tell you
    kesaiserris 35 Replies
    • September 21, 2009
    • 11:11 AM
    • 0
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  • your diet is insane...try looking at that and regulate your water intake so you don't drink 4 glasses all at once.Other than self torture with your diet; possible tapeworm, liver flukes, things like that...gall bladder problems maybe and eggs are not good for the gall bladder if you have a problem with it..you've created your own problems for the most part.
    Monsterlove 2921 Replies
    • September 22, 2009
    • 01:57 AM
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  • your diet is insane...try looking at that and regulate your water intake so you don't drink 4 glasses all at once.Other than self torture with your diet; possible tapeworm, liver flukes, things like that...gall bladder problems maybe and eggs are not good for the gall bladder if you have a problem with it..you've created your own problems for the most part. I don't think it helps to tell someone they have created their own problems:confused: Monsterlove. I have a few suggestions. Parasites are a possibility, and a stool exam may be helpful to rule this out. Also H. Pylori bacteria can cause your symptoms. This too should be ruled out. You may benefit from a good quality digestive pancreatic enzyme supplement to take before eating. This can help with the gas/bloating/heartburn symptoms. I'd check out your local Boots or healthfood store for something like this. Also a good probiotic will help keep your intestinal flora in check. I think there is some kind of pathogenic factor happening here, causing your nausea and lack of thirst. Have you tried any herbs or supplements? Fresh ginger made into a tea is excellent for nausea and stomach complaints. Just boil a few slices of fresh ginger into a tea and drink daily. I suggest finding a good allergist or holistic doc to help with your symptoms. You may need to pay out of pocket but it may make a huge difference...I'd consider this and ask for referrals from friends or colleaques. Best wishesDOM
    acuann 3080 Replies
    • September 24, 2009
    • 04:16 AM
    • 0
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  • I don't think it helps to tell someone they have created their own problems:confused: Monsterlove. I have a few suggestions. Parasites are a possibility, and a stool exam may be helpful to rule this out. Also H. Pylori bacteria can cause your symptoms. This too should be ruled out. You may benefit from a good quality digestive pancreatic enzyme supplement to take before eating. This can help with the gas/bloating/heartburn symptoms. I'd check out your local Boots or healthfood store for something like this. Also a good pro biotic will help keep your intestinal flora in check. I think there is some kind of pathogenic factor happening here, causing your nausea and lack of thirst. Have you tried any herbs or supplements? Fresh ginger made into a tea is excellent for nausea and stomach complaints. Just boil a few slices of fresh ginger into a tea and drink daily. I suggest finding a good allergist or holistic doc to help with your symptoms. You may need to pay out of pocket but it may make a huge difference...I'd consider this and ask for referrals from friends or colleaques. Best wishesDOMThanks,OK I had an H. Pylori breath test this week, but it can take a couple of weeks to come back. I have started taking a supplement drink Ensure plus to make sure I am getting my vits and minerals etc.They contain protein and supply 14000 Energy. I am also adding a pro biotic.I did not get my gastro camera as I did not feel up to travelling the 3 hours, so am looking for a local GI doc and if he wants one done then hopefully I can get it done locally.Monsterlove, yes I know that my weight loss could have a lot to do with what I eat, but to be honest I am eating what I can and trying to avoid being sick, I was a healthy eater before all this, lots of veg etc. But thanks for your ideas.I do think doctors don't spend the time needed to sting the symptoms together and just look at each symptom on its own, like if I said I had the runs out would come a script to stop those but not look at all the other GI problems like weight loss and nausea. I may well look at finding a good holistic doc, but must continue down the conventional medical first, in the hope of ruling out things like cancer, my weight loss is my biggest worry.Ian
    Anonymous 42789 Replies
    • September 24, 2009
    • 10:39 AM
    • 0
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  • Thanks,OK I had an H. Pylori breath test this week, but it can take a couple of weeks to come back. I have started taking a supplement drink Ensure plus to make sure I am getting my vits and minerals etc.They contain protein and supply 14000 Energy. I am also adding a pro biotic.I did not get my gastro camera as I did not feel up to travelling the 3 hours, so am looking for a local GI doc and if he wants one done then hopefully I can get it done locally.Monsterlove, yes I know that my weight loss could have a lot to do with what I eat, but to be honest I am eating what I can and trying to avoid being sick, I was a healthy eater before all this, lots of veg etc. But thanks for your ideas.I do think doctors don't spend the time needed to sting the symptoms together and just look at each symptom on its own, like if I said I had the runs out would come a script to stop those but not look at all the other GI problems like weight loss and nausea. I may well look at finding a good holistic doc, but must continue down the conventional medical first, in the hope of ruling out things like cancer, my weight loss is my biggest worry.IanWhile it is important to find out what is causing your fatty liver, until you discover the cause, you might ask your doctor about a couple of supplements that have been well documented to aid liver function. Phosphatidylcholine or "PC", the active component of Lecithin is well known to help the liver mobilize fats... "Fatty liver: 650 subjects with varying degrees of liver damage were followed for 5 years Subjects received intravenous PC at 950 mg along with oral PC (450- 700 mg). When blood parameters returned to normal subjects were shifted to oral PC only. Subjects were categorized as to severity of liver damage: fatty degeneration, acute inflammation, chronic aggressive inflammation, and advanced fibrotic damage. All groups in the study had marked benefit. There was reversal of fatty degeneration in many subjects and in those with acute inflammation PC accelerated recovery by an average of ten days. (Wallnoefer and Hanusch 1973)". http://www.funimky.com/downloads/PHOSPHATIDYLCHOLINE.pdf To get adequate amounts of PC from Lecithin, you need to take quite a bit of it... Perhaps 6 capsules or more per day. Taking too much Lecithin might aggravate your GI symptoms before it has a chance to help your liver. If this occurs, there is a concentrated form of PC called Polyenylphosphatidylcholine or "PPC" (brand name "PhosChol" and "HepatoPro") that should not cause a problem for you. Eggs are perhaps the best food source of PC/Phosphatidylcholine... Leave the yokes runny for best results (over easy, sunny side up, or soft boiled).I would seek out the PPC supplement (PhosChol or HepatoPro) and try this if I were you. The liver is nothing to play around with. Another supplement... SAM-e or "S-Adenosyl methionine" has also been shown to be of great benefit to the liver... Take it on an empty stomach for best results. Good luck and GodSpeed!
    synesthesia 87 Replies
    • September 27, 2009
    • 06:04 PM
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