Discussions By Condition: I cannot get a diagnosis.

Can I have phorfiria?Please help!!!!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: kubu62
  • June 30, 2009
  • 09:14 AM

Hi everyone,
I wrote on this site earlier, complaining about severe right hand side abdominal pain.Nearly all my results came back negative,my appendix was removed as well but even now Im crippled with pain. As the pain is so severe I cannot work as I cannot even move properly, I look like a question mark.
Yesterday I went to see an other doc who patiently listened to my problem,looked through my medical history and she was shocked.She said that on the area where I have the pain is the end of the colon and when I had colonoscopy(2X)they didnt look at it until the coecum.She said she doesnt understand my previos doc though it took place in December!!!Since then I cannot work, all my days are just spent in constant pain. She said probably I have a colon which is difficult to examine so Im going to get an appointment for virtual colonoscopy. But she said that if comes back negative, then she is going to test me for phorfiria. I tried to google search it, but I dont find really anything. What I find is it is very rare disease and people get misdiagnosed until they find that it is phorfiria.:eek:

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2 Replies:

  • The reason you didn't find anything is probably because you are spelling it wrong. http://www.wrongdiagnosis.com/p/porphyria/intro.htmhttp://en.wikipedia.org/wiki/porphyria
    Anonymous 8 Replies Flag this Response
  • Thanks for correcting my spelling mistake. English is not my mother tongue and I was happy enough to put this post together. I was searching the sites in my country finding only two or three references to this illness, that is it. Forgive me that I dont have a medical dictionary to be able to spell this word correctly. But I think those who are medically expert can figure out what I meant.
    kubu62 6 Replies Flag this Response
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