Discussions By Condition: I cannot get a diagnosis.

Can't sleep, low back pain/pressure, constipation, freq urination, more...

Posted In: I cannot get a diagnosis. 37 Replies
  • Posted By: roseasharn
  • August 5, 2007
  • 07:53 PM

Maybe not all are related,

Started last month with low back pain/pressure, felt like constipation so I self treated for that with stoll softeners. BM's improved but pain did not.

Went to DR. says I have UTI, treated with antibiotics, UTI cleared up but still have back pain, now also hyper sensetive sense of taste, salt is REALLY salt, spicey is REALLY spicey. BMs now are very small and infrequent. I of course tell Dr. all of this.

Went to chiro, (maybe back pain is just back pain,) no change.

Last week did a catscan found am extreamly constipated :o and am back to square one, laxitives and stool softeners.

With out medication the pain is dibilitating, I use ibuprophine and tylenol during the day, vicodine at night.

I am so sick of this, on the one hand I am pretty sure it is not life threatening, on the other it is life altering. Am still able to work but all else is slipping away.

Any ideas?

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37 Replies:

  • Have you been checked for kidney stones and also gall bladder stones. Kidney stones can be checked by xray if large, of smaller may need a dye test. Gall bladder test, have a bile test run. Meanwhile drink a lot @64 oz day of water, the vicodin is causing the constipation. Oh. yeah and try another doctor. Good Luck.
    autograf1 1 Replies Flag this Response
  • Fiber, water, fruits and veggies. Fiber, water, fruits and veggies. Walk a lot. A LOT! Wean yourself off the laxatives.
    rad-skw 1605 Replies Flag this Response
  • Went to DR. says I have UTI, treated with antibiotics, UTI cleared up but still have back pain, now also hyper sensetive sense of taste, salt is REALLY salt, spicey is REALLY spicey. BMs now are very small and infrequent. I of course tell Dr. all of this.I don't know what UTI is but i have small phielonefritis (kidneys), apendix removed and gastroesophageal reflux (stomach,acid) problems for now...(last two weeks),so i suggest -go to nefrologist and some specialist to look at your abdomen and stomach. I also have this salty/spicey thing,but i don't know what of the above may be causing it. I think you should look first at the symptoms of these problems i had, the ones i mentioned above, and see if you match most of them for one medical problem, and go to that doctor first.Also i suppose these things you wrote as symptoms are the ones that trouble you most. Write a list of all things that trouble you physically no matter what you think - are they connected to anything, with eachother, or just a one timer.Write in detail. Back pain can be different things. Is it on the right, the left, is it like a small needle ****k just for seconds or is it heavy and lasting.Why can't u sleep? Is it the back pain?The constipation or freq urination? How do u feel after eating?If u feel heaviness/uneasiness after that even when eating small amounts-check the gastro things first.Is the back pain-just the back?How is ur neck? I had no abodominal complaints, only other symptoms of gastro problems, so do your homework and check even if you have no complaints from your stomach/abdomen.(I didn't have pain for the apendix either,only symptoms)http://www.medicinenet.com/gastroesophageal_reflux_disease_gerd/page3.htmts.antova@gmail.comwrite to me if you feel there are more things you need to ask me...
    Anonymous 42789 Replies Flag this Response
  • I do have a gall stone, but I was already treating for that and the back pain does not seem related to it. The few gall bladder attacks I have had have been very mild (thank goodness!) My DH had misdiagnosed gallstones for over 20 years, so I know what to watch for there.The UTI was probably a red hearing but I am glad it is cleared up.I was not taking anything when this all started. I know the vicodin can cause constipation, but I constipated before I started taking it. I take as little as possible and only as a break from the Tylenol and ibuprofen (otherwise I would be taking way too much of both) I can not function at all with out the pain medicine and even with it I am very uncomfortable most of the time. I have not slept more the three hours at a stretch since this started over a month ago. I think I am getting up because of the urge to urinate, and can't get back to sleep because of the pain, but it could be all because of the pain.I drink enough water to float a boat and am being very careful about what I eat. I have lost about ten lbs, and only eat because I know I have to, I am never hungry any more and no longer enjoy food. Trying for lots of fruit and veggies, almost no meat any more, I am going to get referral to a gastroenterologist (sp) and hope that next week life will start to improve.
    Anonymous 42789 Replies Flag this Response
  • Why don't they remove your gallstones. Is you gallbladder diseased?
    rad-skw 1605 Replies
    • August 10, 2007
    • 10:54 AM
    • 0
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  • "rad-skw Why don't they remove your gallstones. Is you gallbladder diseased?"They would remove the gall bladder not just the stones. I prefer to desolve the stones if I can.I have now had 2 cat scans, a colonoscopy and mri. The problem is not my colon or my back.I can now add wieght loss to my list of symptoms, 20 lbs so far. I am a bit on the heavy side so there is room for weight loss, but not much more.I read about something called levators syndrome, which may be what I am experiancing. Some of it fits.Have a gastro and gp appointment this week, but am planning on changing gps. (he does not listen to me)Am being seen by a pain management clinic but no success there yet.Have found that I am not a good canidate for sleep aids, I become dillusional and walk around, or antidepressants, racing heart and generally feel yucky.
    roseasharn 15 Replies
    • September 24, 2007
    • 11:45 AM
    • 0
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  • Make sure you see a gynecologist too. I was found to have adenomyosis (a cousin to endometriosis) which gives me really bad back pain and constipation -and, I also lost a lot of weight. Like you, I went on the path of back MRIs, a colonoscopy, etc where nothing was found to be causing the pain - it's always a good idea to have a vaginal ultrasound time and again anyway.
    Anonymous 42789 Replies
    • September 24, 2007
    • 02:54 PM
    • 0
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  • Oh, and more info - I also have had severe trouble sleeping - I believe due to hormones being out of whack (which is what is causing the adenomyosis). Are you in your mid to late 40's? If so, read: 35 Symptoms of Menopause
    Anonymous 42789 Replies
    • September 24, 2007
    • 03:01 PM
    • 0
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  • Make sure you see a gynecologist too. I was found to have adenomyosis (a cousin to endometriosis) which gives me really bad back pain and constipation -and, I also lost a lot of weight. Like you, I went on the path of back MRIs, a colonoscopy, etc where nothing was found to be causing the pain - it's always a good idea to have a vaginal ultrasound time and again anyway.That is my next step.I wasted today finding out that I do not have a fractured tail bone (duh) and finally getting a digital rectal exam. (although I thick the gastro guy may have done this.)I don't know if I have mentioned before, but I feel as though there is something the size of a ping pong ball up there, though obviously there is not.In the mean time, I am be seen at pain management clinic and am changing GPs.
    roseasharn 15 Replies
    • September 24, 2007
    • 11:40 PM
    • 0
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  • It really does sound like what I have. You literally feel your inflamed uterus bumping into your other organs, and it does sorta feel like a ping pong ball!
    Anonymous 42789 Replies
    • September 25, 2007
    • 00:42 AM
    • 0
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  • I actully have something!! I am too thrilled to even worry about it!My GP said that he was sure the OBGYN would not find anything but to go if I wanted. They found a hard mass the size of a pingpong ball (am I accurate or what!) just to the right of the my vigina.I am having an mri this afternoon to determain where to go next but it looks like surgery is in my future.
    roseasharn 15 Replies
    • September 26, 2007
    • 05:25 PM
    • 0
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  • Sounds like a benign fibroid tumor - makes perfect sense with you have been describing...get a new GP - I bet he said it wasn't gyn related because he didn't think of it first!
    Anonymous 42789 Replies
    • September 26, 2007
    • 06:31 PM
    • 0
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  • I actully have something!! I am too thrilled to even worry about it! My GP said that he was sure the OBGYN would not find anything but to go if I wanted. They found a hard mass the size of a pingpong ball (am I accurate or what!) just to the right of the my vigina. I am having an mri this afternoon to determain where to go next but it looks like surgery is in my future. This is why my GP is a WOMAN, and also a nurse practitioner! She immediately thought of a ovarian cyst when I complained of low back pain, bloating and digestive problems... I am glad you followed your gut and am glad they found this out. Are they talking surgery? If you can try to see an acupuncturist who is also a certified Chinese herbalist as they can be very helpful for ovarian cysts, uterine fibroids, and endometriosis. If you can find one who specializes in Women's health that would be great. I had a 7cm cyst removed laparoscopically (outpatient surgery - what a horrible joke that was - I was in sooo much pain and they kicked me out of the hospital one hour after surgery:mad: ). I felt the EXACT same pain after surgery as before. This is not uncommon I have found. Acupuncture and Chinese herbs really helped to get me back in balance, and I no longer have any problems. Best wishesDOM
    acuann 3080 Replies
    • September 26, 2007
    • 07:18 PM
    • 0
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  • I hope they do not try to do this out patiant!I will not know anything more until tomorrow but it is such a relief to see a true ray of hope.I had acctually been contemplating suicide, I am in so much pain, can't sleep and have started having lucid pain induced nightmares. Recently I have been unable to work or drive, I canconcentrate long enough to do anything I enjoy.I thought my life was over.
    roseasharn 15 Replies
    • September 26, 2007
    • 10:16 PM
    • 0
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  • I hope they do not try to do this out patiant! I will not know anything more until tomorrow but it is such a relief to see a true ray of hope. I had acctually been contemplating suicide, I am in so much pain, can't sleep and have started having lucid pain induced nightmares. Recently I have been unable to work or drive, I canconcentrate long enough to do anything I enjoy. I thought my life was over. Please hang in there and I hope you get relief soon:) DOM
    acuann 3080 Replies
    • September 27, 2007
    • 00:17 AM
    • 0
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  • They did an ultra sound today, think it is some endo thing very close to the bowel.I am waiting for the Dr. to call and confirm details but the current plan is to have surgery early next week.
    roseasharn 15 Replies
    • September 27, 2007
    • 07:47 PM
    • 0
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  • You should consider getting your gallbladder out at the same time you have the surgery for that mass down below. I had gallbladder problems years ago that never got better until the gall bladder came out with a laproscope. My mother also had gall bladder problems and tried to dissolve them but it just got worse.My friends who have had gallbladder problems also have been glad to get the gallbladder out; after much suffering from billiary colic.The laproscope surgery to remove the gallbladder was much easier then her old fashioned removal. You don't really need a gallbladder to live a normal life, and nowadays the operation is much easier usually.If your surgeon is going to open you up anyway for the gyneproblem, you should consider getting out that gallbladder as the stones are likely to cause problems down the road. My only regret was not opting to get my appendix out electively at the same time as my gallbladder laproscopic surgery back then as now I have appendix like pain that is making me ill, and fever.Whatever you decide to do; I do hope you get to feeling better soon. Keep us posted.
    Anonymous 42789 Replies
    • September 27, 2007
    • 08:10 PM
    • 0
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  • Thanks for the update..
    Anonymous 42789 Replies
    • September 27, 2007
    • 09:19 PM
    • 0
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  • The Gyn Dr. as given me some pretty good stuff for pain and I am sleeping a lot better.They are planning surgery for early next week. I am looking at complete hysterectomy, uterus and overies, (I am post menopausal so thats fine by me) and removal of the endometria that has been giving me fits.I can ask about the gall bladder but I think I will be keeping it.It is not going to be done laproscopicly so I will spend at least a couple of days in the hospital. I have good support system here and am looking forward to this nightmare finally being over.
    roseasharn 15 Replies
    • September 28, 2007
    • 02:52 AM
    • 0
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  • If you are planning on HRT (hormone replacement therapy) it is a good idea to start the medication before, or given during your surgery so you don't experience your levels being out of whack.
    rad-skw 1605 Replies
    • September 28, 2007
    • 10:24 AM
    • 0
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