Discussions By Condition: I cannot get a diagnosis.

Can't get any help!

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: momtotori
  • July 3, 2008
  • 06:34 PM

My teenage daughter has been sick for a year now and we can not get any help from doctors. This started with a virus she had last year and she has been sick ever since. At first she was having major heart palpitations, shortness of breath, fatigue, vague aches, and nausea. Now she is having fatigue, extreme hunger and thirst, frequent urination, severe leg cramps, nausea, and dizziness. She also has numbness in her hands and feet and feels like she will pass out a lot. It looks like diabetes, but she has been tested for it and we have been checking her blood sugar at home and the highest she has been is 203. She has had numerous tests done ruling out diabetes, thyroid, and several other things. We are in the process of ruling out lyme disease, but i'm not sure it could cause these symptoms. Could lyme cause this? Or is there anything else it could be? We have been to so many doctors and they all think we're crazy, but I know there is clearly something going on.

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6 Replies:

  • My teenage daughter has been sick for a year now and we can not get any help from doctors. This started with a virus she had last year and she has been sick ever since. At first she was having major heart palpitations, shortness of breath, fatigue, vague aches, and nausea. Now she is having fatigue, extreme hunger and thirst, frequent urination, severe leg cramps, nausea, and dizziness. She also has numbness in her hands and feet and feels like she will pass out a lot. It looks like diabetes, but she has been tested for it and we have been checking her blood sugar at home and the highest she has been is 203. She has had numerous tests done ruling out diabetes, thyroid, and several other things. We are in the process of ruling out lyme disease, but i'm not sure it could cause these symptoms. Could lyme cause this? Or is there anything else it could be? We have been to so many doctors and they all think we're crazy, but I know there is clearly something going on. Lyme, Autoimmune diseases, Fibromyalgia, chronic Fatigue syndrome... along many other things... You said 203??? Is that fasting or after eating? That's rather high.
    deedee35 38 Replies Flag this Response
  • 203 was after eating. She has had a couple of higher numbers, but the diabetes symptoms started in april and our doctor said that type 1 diabetes would not go undiagnosed this long.
    momtotori 2 Replies Flag this Response
  • 203 was after eating. She has had a couple of higher numbers, but the diabetes symptoms started in april and our doctor said that type 1 diabetes would not go undiagnosed this long. You would hope not! Yes, Lyme can cause that many symptoms. Many of the people on here have had the same issues with Doctors thinking they are crazy. Doctors have a real hard time sometimes looking outside that box. Has she seen a neurologist?
    deedee35 38 Replies Flag this Response
  • You would hope not! Yes, Lyme can cause that many symptoms. Many of the people on here have had the same issues with Doctors thinking they are crazy. Doctors have a real hard time sometimes looking outside that box. Has she seen a neurologist? Yes, she has. He saw nothing concerning from a neurological standpoint. He did the basic test from lyme (not sure what that was) which came negative, but another doctor is doing the more advanced lyme testing. She has had one test come back low. I'm not sure it has anything to do with lyme though. It was the MSH,but i'm not sure exactly what this would mean. Our doctor is supposed to go over all this with us when we get everything back.
    momtotori 2 Replies Flag this Response
  • ummm....did any of the docs. tell you that is she has a acue check (sugar check) and if its above 120+ she is a diab.!? if her sugar is 200+ she needs to be taken to a hosp because at 300+ is when the effcts. of a diabed. coma come in to play. if your docs. say other wise....get diff docs.
    Anonymous 42789 Replies Flag this Response
  • I had depression and that sounds like some of the things I did. PLease try having her back adjusted,sounds crazy but it made me a believer.
    Anonymous 42789 Replies Flag this Response
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