Discussions By Condition: I cannot get a diagnosis.

can't find what's wrong

Posted In: I cannot get a diagnosis. 40 Replies
  • Posted By: Anonymous
  • July 21, 2008
  • 04:45 PM

hi,i'm 21 m i have alot of symptoms like urinating alot swelling areas arthritis hemorrhoids nerve problems muscle spasms tired dehydration dizzyness and passing out when standing migrains stool problems yellow with black spots numb tingling hands and legs and mental problems and some more.

i've went to doctors and all i have been told is i have inner hemorroids bad nerves in my neck and bad gerd with corrosion (egd).i also had a colonoscopy and i got pics and it looked like a sac with red eggs in it?and a yellow spot or growth(looked like polyp)in colon and intestines were stained yellow.but said i was ok.

have had small amounts of blood in urine,also protein 300 and sugar in urine.and blood sugar goes high sometimes,but i don't had diabetes.i have posted before and has helped alot,but i don't know what to do anymore i can't do anything without passing out and dehydrating.thanks

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40 Replies:

  • Have you had a full stool exam done, over the course of several days? This should be done - make sure they test you for clostridium difficile infection. How often do you eat and what foods and drink to you consume daily? What is your typical diet like? Are you taking any medications at all? Have you taken long courses of antibiotics in the past? Have you had blood work done to rule out anemia? Do you know what your B12 levels are? DOM
    acuann 3,080 Replies Flag this Response
  • i haven't had a stool exam,but i'm going to tell them i want one.i can't eat alot at one time or i get full and cramp and have lost 30lbs in 2 months. i eat pretty healthy now like salads fruits veggies,but i used to eat a lot of meat steak grilled chicken.and for 2 months i have only drank water 8 glasses if possible and juices. i was on cipro and bactrim for 2 months and am taking zantac 300 for gerd and corrosion(past week)and they did do a biopsy in my esophagus. they haven't really checked anything only when i was sent for colonoscopy/egd and was my suggestion.they act like they don't know and don't give me a chance to explain. anemia really sounds like part of my prob. but i don't know where to go or what to tell them.thanks
    Anonymous 42,789 Replies Flag this Response
  • rather than go back to the same doctor and ask for the stool exam, I would go get a second opinion, and ask that doctor for the stool exam. The first doctor may not be as knowledgeable as the second, or maybe just missed something.
    qwertyuiop123 453 Replies Flag this Response
  • i haven't had a stool exam,but i'm going to tell them i want one.i can't eat alot at one time or i get full and cramp and have lost 30lbs in 2 months. i eat pretty healthy now like salads fruits veggies,but i used to eat a lot of meat steak grilled chicken.and for 2 months i have only drank water 8 glasses if possible and juices. i was on cipro and bactrim for 2 months and am taking zantac 300 for gerd and corrosion(past week)and they did do a biopsy in my esophagus. they haven't really checked anything only when i was sent for colonoscopy/egd and was my suggestion.they act like they don't know and don't give me a chance to explain. anemia really sounds like part of my prob. but i don't know where to go or what to tell them.thanks Due to your antibiotic use you NEED a good quality PROBIOTIC to help rebuild your ravaged intestinal flora. This is crucial and should help greatly with your digestion. I recommend Jarrow's EPS or any similar product from Jarrow, or you can find a similar brand with a good six or so strains of beneficial bacteria. You can find this at any healthfood store, or online at iherb.com or vitacost.com. I agree to find another doc and ask for a full blood workup done and stool exam. MAKE SURE THEY SPECIFICALLY TEST YOU FOR CLOSTRIDIUM DIFFICILE INFECTION. It is a separate stool test. This is becoming much more common and is directly caused by antibiotics like cipro. Docs often don't check for this. A serum blood test will help show you your B12 levels and iron levels as well as c reactive protein and diabetes and thyroid. Get copies of all tests done - this is very important as most docs don't look at B12 if it is over 200, but if it is between 200-500 you may be at risk for B12 deficiency. This can cause a host of neurological damage, including digestion issues. I would just rule this out. A urinary MMA test is the most accurate test for B12 deficiency - again, a lot of docs don't know about this test. Do you break out in a sweat before passing out? How about your heart racing? Where do you live? I hope you can find another doctor to take your symptoms seriously. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • Hi k28. I have read through your posts on this site and it seems like you have many concerns that have been on your mind lately. I think that it would be important for you to think about the timing that these multiple medical issues became a problem for you and what else was going on in your life? You mentioned in previous posts that you recently quit taking trileptal (possibly). I'm obviously not your physician, but I am able to ascertain a pattern of repeated behavior where you post concerns about having diabetes, lupus, and gi disease, all within the span of a month. As a 21 year old man, these are all diseases that share few diagnostic features. Moreover- any physician (even the most inept- will walk through the diagnostic process of ruling out common diseases like diabetes, lupus, and common GI bugs (like c diff)) You can not diagnose diabetes from reading made on a home glucose monitor. Those readings are only intended for monitoring the BS of DM patients. You need to open a wider dialogue with your physician, because it is clear from your initial post that some of your perceptions about your treatment and the direction that your care has taken are incompatible with medical reality. This isn't your fault, but it does reflect a poor doctor patient relationship that you need to improve or choose to replace.
    fewd4thought 126 Replies Flag this Response
  • i am going to try to find a good doc,but it seems there all a specialist on one thing.and i will get some probotics.i'm in the us. i do break out in sweat but just my neck,i barely sweat anywhere else and racing heart i have alot especially when i almost or do pass out. when these started,i was in school playing sports and so on and it just hit me,it took me years to get where i could do things and it all just fell apart again.i can't explain it i just hurt all over.and the surgery just made it worse.especially my urinary problems.and i was just trying to figure out what's wrong,and i'm no doctor. thanks again,i'm going to try to find a good doctor.
    Anonymous 42,789 Replies Flag this Response
  • Your symptoms are caused from mycoplasma infection. It is auto-immune in nature. NAET/BioSET will resolve symtoms. www.naet.com www.bioset.net allergy symptoms can present as anything and everything mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Possibly celiac disease. http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1,263 Replies Flag this Response
  • It could very well be OI (orthostatic Intolerance) Here are SOME symptoms: The symptoms for these conditions may include the following:Excessive FatigueExercise IntoleranceRecurrent Syncope or Near Syncope(passing out or feeling as if you will pass out)DizzinessNauseaTachycardiaPalpitationsVisual DisturbancesBlurred Vision Tunnel VisionGraying OutTremulusnessWeakness - most noticeable in the legsChest DiscomfortShortness of BreathMood SwingsMigraines and Other HeadachesGastrointestinal ProblemsHope this helps =) Best wishes.
    aliceanna 41 Replies Flag this Response
  • K28, I have to agree with Fewd4thought somewhat. I don't know your entire background. But if you quit trileptal recently that can give you really weird symptoms along with anything else that is going on. That sure would be alot of marbles in your pea soup. If you were eating a lot of meats with very little fiber, well that stops the process and causes hemmrhoids. Does the same if you don't balance any meal plans plus some medications can cause your colon to lay around and not do it's job and cause problems. Being blocked up can cause a whole host of issues that many of us never realize. If the colon is not working, it affects the liver, which is suppose to be a filter for the blood, the blood can run right because of the plug, your cells are getting garbage, the energy that your muscles and brain were suppose to be getting is slowed down and yuckified to put it in layman terms. It all hits the fan and we hurt all over. It affects our brain functions also. All these advertisements telling us to each lots of meat and protein may not be the best for everyone. You can even get gerd and stuff with the stomach because the colon is not moving fast enough. Each part of the body depends on the other. Like Fewd4Thought find a good internist to talk to. Don't know what part of US you are in. Hopefully you have some to choose from. Maybe all of this is diet based. That would be nice. If it is, it still takes a while to turn around to make your body happy from your lips to well you know where. Find the doctor and have a good set of basic blood panels run. Sit down have a heart to heart talk about diet and life. When you find that good doctor don't let them go!!!!:)
    Abbydoodle 138 Replies Flag this Response
  • thanks,i have been eating very healthy this last month and it helps,but i still take miralax im still looking for a good diet.my gastro. doc did the scope and i got my biopst test today but they didn't tell me alot i have to go monday.i have eosinophilic esophagitis and i had never heard of it. i was reading up on it and it was in the ibd catagory something about red blood cells get in digestive lining and causes inflammation.i haven't read much yet. they didn't tell me what caused it but i'll know monday.has anyone heard of this and what causes this?thanks
    Anonymous 42,789 Replies Flag this Response
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  • What is Eosinophilic Esophagitis (EE)?Eosinophilic esophagitis (EE) is a disease characterized by swelling of the esophagus (the part of the body connecting the throat and the stomach) caused by an allergic white blood cell, the eosinophil. Symptoms of EE can range from severe heartburn, difficulty swallowing, food impaction in the esophagus, nausea, vomiting and weight loss. There appears to be some age-related differences in symptoms, with younger children having more symptoms of weight loss, and older children and adults having food impaction and difficulty swallowing. It is not exactly clear what causes EE, although this disease may be related to other allergic diseases, particularly asthma. People with EE frequently have a personal or family history of other allergic diseases such as hay fever, food allergy and asthma. Recently, there have been studies showing an association between food and environmental allergies and EE. What Allergic Triggers Commonly Cause EE?Various studies have shown that patients with EE have positive allergy tests to various foods, and that avoidance of these foods led to the resolution of EE symptoms. Foods reported to be the cause of EE have included milk, eggs, peanuts, shellfish, peas, beef, chicken, fish, rye, corn, soy, potatoes, oats, tomatoes and wheat. Of these, the most common food triggers are milk, egg, wheat, rye and beef. Environmental allergens, such as pollens, molds, cat, dog and dust mite allergens may also be involved in the development of EE. How is EE Diagnosed?The diagnosis of EE is generally made by performing a biopsy of the esophagus, with evidence of eosinophils infiltrating the esophageal tissue. A biopsy is performed via endoscopy (a camera inserted into the esophagus), usually by a gastroenterologist. There are many other diseases that can cause eosinophils in the tissue of the esophagus, including gastroesopheal reflux disease (GERD), parasitic infections, fungal infections, inflammatory bowel disease, certain cancers, recurrent vomiting, and others. These diseases need to be ruled out before EE can be diagnosed. Once EE is diagnosed, an allergist will typically perform extensive allergy testing, including looking for food allergies and environmental allergies, such as those listed above. How is EE Treated?A trial of avoidance of the foods to which the person has positive allergy tests is the initial form of treatment for EE. If a person has numerous positive allergy tests, however, it may be important to change to a diet consisting only of an elemental formula (proteins broken down into the most basic building blocks, called amino acids). Corticosteroids are frequently used to treat EE when avoidance of allergic triggers unsuccessfully relieves symptoms. Steroids may be used as pills, such as prednisone, or as a topical therapy, such as using inhaled steroids (Flovent, for example) typically used for asthma, except that the medication is swallowed, not inhaled. This results in the delivery of the medication directly to the esophagus. Typically, medications for GERD are also given to patients with EE. Want to keep learning? Find out about Food Protein-Induced Enterocolitis Syndrome, a disease mimicking food allergies in young children.
    qwertyuiop123 453 Replies Flag this Response
  • thanks,would ee cause all of my symptoms(fatigue dizzyness arthritis and others i posted)?i read it was a autoimmune disease with white blood cells and how bad is this disease. i have alot of lyme symptoms but have never been checked.thanks for all the help.
    Anonymous 42,789 Replies Flag this Response
  • i haven't tested for lyme what doctor should i see?i also have alot of streach marks on shoulders and lower back and have a few with small holes in them?
    Anonymous 42,789 Replies Flag this Response
  • as far as I'm concerned your doctors have given you a diagnosis, and though I am not sure if it could cause all the symptoms, I think your doctors are on the right track.It sounds like if you fihnd out what you are allergic to and stop eating it, you should be fine. I think lyme is creating pandemonium because their are so many vague symptoms, its like hypothyroidism, i fit like 90% of the symptoms, but i don't have it. Chances are, if someone feels sick, they have some symptoms of lyme.
    qwertyuiop123 453 Replies Flag this Response
  • mycoplasma... manipulated strains....causing all of the new and emerging illnesses. Lyme was made from syphilis...spirochetes, on Plum Island, injected into ticks and let go 8 miles from Plum Island in CT. The origin of Lyme. Bioweapons. http://portland.indymedia.org/en/2006/01/331695.shtml?discussI wonder how many people with Lyme sx that have tested positive for Borrelia Burgdorferi have also tested for mycoplasma infections? http://www.youtube.com/watch?v=rOxISufUrYMsomething to consider. mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Mommycat, Need to get out of the litterbox and get some fresh air. Even the lyme organizations do not propogate the origine of lyme disease that you do. Everyone, please form your own opinions and search for yourselfs as to origins -- google, read the mainstream and the koolaid versions also. Not all diseases are the result of government conspiracies, putting your head in a microwave, or such. Our society has moved from garden grown food to food that comes from fast food sources, manufacutured with preservatives and chemicals and lord knows what else. Putting garbage and chemicals in our bodys results in the same symptoms throught society. Why? You feed your family at McDonalds, Arbys, Steakhouses, and even eat at salad bars that have perservatives on them. Your poor liver and other organs do the best they can. Then society starts having all the same symptoms. Not conspiracy --just our choice of a slow death. As much as it pains me and will pain you the people grow their own gardens, juice, detox, etc. Have a lot more going for themselves. Sure they may get cancer -- a choice by the devine universe. But they don't have all the common aches, worry about conspiracies on microwave, injection of secret chemicals into ticks. I grew up in South Texas where ticks and fleas rule. Do you know the government hired tick pickers for the cattle all the way back to the 1800s? Like Mulner, the real truth is out there, we on the board may offer our REMOTE ideas, but going to a doctor is a lot better than all of the hundreds of our guesss and treating from that and dying.
    Abbydoodle 138 Replies Flag this Response
  • abbydoodle, pull your head out of the sand. this is reality do some research, you will see. I am here to offer help to those searching for it. Not to be criticized by others who don't agree with or can't bring themselves to believe the info I post. I am not alone in my thoughts or information on all of this. Our government has manipulated mycoplasma and Lyme. Hence the fact that every person alive that you know suffers from one problem or another. stay well and stay informed.mommy cat
    mommy cat 1,654 Replies Flag this Response
  • So, for the first time, a US government body admits that Lyme disease is a biological warfare agent. This is the reason that hundreds of thousands of men, women and children around the world have been left to rot with wrong diagnoses, or have had their Lyme disease acknowledged but been told that it is an "easily-treated" disease, given 3 weeks' antibiotics, then told to shove off when their symptoms carried on after that. In Britain the existence of the epidemic is denied completely, and virtually no effort made to warn or educate the public about the dangers of ticks, which carry the bacteria Borrelia burgdorferi. The Borrelia genus has been a subject of biowar experimentation at least as far back as WW2, when the infamous Japanese Unit 731, which tortured and experimented on live prisoners, studied it. The reality is, Lyme disease is for many a chronic, horrendous, incapacitating disease producing crippling fatigue, constant pain, loss of memory, possible paralysis, psychosis, blindness and even death. It was an ideal biowar agent because it evades detection on routine tests, has an enormous range of different presentations, and can mimic everything from ADHD to multiple sclerosis to carpal tunnel syndrome to rheumatoid arthritis to chronic fatigue syndrome (M.E.) to lupus to schizophrenia. Enemy medical staff would never know what had hit them, nor even that ONE illness had hit their population, rather than an unexplained rise in dozens of known conditions. Honest doctors and scientists who tried to treat or research Lyme disease according to ethical principles have been viciously persecuted by government-backed organisations in the US, Europe and elsewhere. Many specialists in the US were threatened with loss of their license or had anonymous, false allegations sent to the medical board, which tied them up in mountains of paperwork and legal fees...some were forced out of medicine or even driven to suicide. Instead, medical disinfo agents, most of whom have a background in military/biowarfare units, such as Dr Allen Steere, Mark Klempner, Philip Baker, Edward McSweegan, David Dennis, Alan Barbour etc were enabled to assume top positions in Lyme research , CDC, NIH etc from where they issued false information , covering up the true seriousness and chronic nature of the disease, and comdemned untold numbers to a living ***l. http://portland.indymedia.org/en/2006/01/331695.shtml?discuss again, stay informed mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Mommy cat, I am informed and can read the article. The military said it would MAKE a great biowarfare chemical, not that they have USED it as one. I am not getting into a ******g contest. It is that not everyone has lymes disease. I know a group of doctors that moved to Colorado to make a bunch of money of the scare. They are telling entire families they have it. Their previous medical partners don't have anthing to do with them. Sometimes a horse is a horse. And sometimes you will find a zebra in the barn. But unless we are in Africa or in one portion of the zoo, we will not find a Zebra every day. Perhaps if you presented your information better. But sometimes I envision scared people at the other end of these computers and we don't want to send them on a goose chase. Start with the obvious and then go to the weird. This person has received a preliminary diagnosis, let him follow through and find out before we confuse him more.:o
    Abbydoodle 138 Replies Flag this Response
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