Discussions By Condition: I cannot get a diagnosis.

Can't find causes: Lactation, Excessive Perspiration, Body Odor, Irritability, Headac

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: runnershirl
  • October 20, 2006
  • 06:53 PM

Your first thought--pregnant...Nope--I've undergone 4 pregnancy tests--two on my own and both a pee and urine test at the dr. office--all which were negative.

Each of these symptoms started near the same time about 2 months ago. My prolactin, thyroid and FSH levels have been tested--each "normal". An MRI indicated no prolactinoma on the pituitary gland. Thus far, no answers other than "stress" and "hormones"...Obviously, with the weight gain and other pregnancy symptoms, something is out of balance--but how do I get back "in balance"? Additionally, I have a protruding disc or two in my C-2, C-3 in the neck--which is just beginning to cause numbness down my left arm if I stretch...Could this all be related? Headaches all stem near the C-2/C-3 area...

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11 Replies:

  • probably not related to the neck problems.Do you have any visual problems, and have you had your peripheral vision tested?also ?polycystic ovaries. Are the symptoms associated with your menstrual cycle in any way?
    Anonymous 42789 Replies
    • October 20, 2006
    • 10:15 PM
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  • As a matter of fact--I have had a blind spot develop in the center of my left eye about 3 years ago...No treatment because the retinologist couldn't identify the cause. So, it has remained. Originally there were "cotton spots" in both eyes, but the right eye cleared up. Also, relating to the menstrual cycle, it has changed a bit--down to one day and heavier than normal--then it passes. I also had a cyst on my ovary earlier this year, which has now cleared and the possibility of another on my other ovary. I've had 3 or 4 in my life which have always dissolved. What conditions could we look for to be related? I am presently not being treated for anything but being told I'm "stressed" as I am sure is true due to a new job, new marriage, buying a house and a myriad of other smaller misc. stresses.
    Anonymous 42789 Replies
    • October 21, 2006
    • 05:49 PM
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  • That pattern of blind spots is not too worrying in this sense- if you'd had a loss of the vision in the peripheries (bitemporal hemianopia) I would have been concerned re: pituitary growth. However, the pattern you describe is unrelated. Would consider based on what you've told me that polycystic ovaries are a likely diagnosis
    Anonymous 42789 Replies
    • October 21, 2006
    • 09:20 PM
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  • my roomate had similar symptoms before I knew her, especially lactation, and it turned out to be side effects the brand of birth control she was taking.... just a suggestion
    Anonymous 42789 Replies
    • October 24, 2006
    • 07:58 PM
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  • Are you taking any dopamine inhibitors such as Reglan or other gastrointestinal meds? Some of these raise prolactin levels and cause lactation. How much are you lactating? Even excessive nipple stimulation can cause lactation. Have you ever lactated in the past? Do you ingest alot of fenugreek by any chance? Other herbs? Have you suddenly gone off birth control pills?
    Anonymous 42789 Replies
    • October 25, 2006
    • 01:46 PM
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  • If you haven’t done so already, I strongly recommend a visit to a good endocrinologist. You’ll want to rule out any hormone problems with definiteness. Although your doctor may have told you your thyroid was fine, it may very well have been based on TSH only. I was told my thyroid levels were normal. A lot of women who have thyroid disease are not diagnosed or have to go to a handful of doctors before receiving a correct diagnosis. I saw 3-4 doctors before I was given the detailed thyroid tests I needed and saw a doctor who knew better about the old idea of TSH of 5 is perfectly normal. (In fact, they were telling me I was depressed when I knew otherwise and told them so!) I’ve found Mary Shomon, a patient advocate, to be a wonderful resource for thyroid information. Her website is http://www.thyroid-info.com/ . You can also find articles on About.com written by her, as she is the Thyroid Guide writer. Both sites have a wealth of information. Now if you do find out that you do in fact have a thyroid disease, you will want to read her books. Additionally, you may want to take a look at the articles below, which I found on WrongDiagnosis.com: http://www.wrongdiagnosis.com/p/pcos/misdiag.htm http://www.wrongdiagnosis.com/h/hyperthyroidism/symptoms.htm - symptom_list http://www.wrongdiagnosis.com/h/hypothyroidism/symptoms.htm - symptom_list Hyperthyroidism symptoms:Heart palpitations; accelerated heart rateChest painA feeling of being too warm all the timeNervousness and tremblingInsomnia despite feeling exhaustedBreathlessnessDiarrhea and GI upsetIncreased appetiteLight or absent menstrual periods; infertilityWeight lossMuscle deteriorationWarm, moist skinHair lossBulging eyes, “spacy” gazeHeightened anxiety, irritability, moodiness or depressionAlternatively, the symptoms of hypothyroidism are as follows:severe fatigue, loss of energyweight gain, difficulty losing weightdepression and depressed moodjoint and muscle pain, headachesdry skin, brittle nailsbrittle hair, itchy scalp, hair lossirregular periods, PMS symptomsbreast milk formationcalcium metabolism difficultiesdifficulty tolerating cold and lower body temperatureconstipationsleeping more than averagediminished sex drivepuffiness in face and extremitieshoarsenessbruising/clotting problemselevated levels of LDL (the “bad” cholesterol) and heightened risk of heart diseaseallergies that suddenly appear or get worsepersistent cold sores, boils, or breakoutstingling sensation in wrists and hands that mimics carpal tunnel syndromememory loss, fuzzy thinking, difficulty following conversation or train of thoughtslowness or slurring of speechDifferent sources vary the symptoms lists. Keep in mind that, as with many medical disorders, you may only have a few of the symptoms. And just because you don’t have a hallmark symptom of a disorder doesn’t mean you don’t have it. (For example, one of the most common symptoms of hypothyroidism is weight gain, but I am one of the lucky ones that didn’t have this symptom.) Also, I have finally learned that many times basic/general tests won’t reveal certain problems (e.g.: thyroid disease, pre-diabetes). You may have to insist on more detailed, targeted tests – even if you have an excellent doctor. I also found this quiz which I linked below from the PCOSupport.org website which you might want to take and show to your doctors: http://www.pcosupport.org/support/quiz.php I know this is a lot of information, but when you’re searching for a diagnosis, information is what you need so you can rule out or dig deeper. This is really only a tip of the iceberg of information. Hope this helps.
    snugglegirl 4 Replies
    • October 25, 2006
    • 06:43 PM
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  • Thank you all for the wonderful info. Looking over the extensive list of symptoms for hypothyroidism, I have at least 11 of the 20 symptoms...I will see my primary phys. today and hopefully narrow this down further. The only test done on my thyroid was the DSH and I've tried to see an endocrinologist, who informed me that they "don't diagnose" only treat. ???? In response to another inquiry, haven't been on the pill; and not stimulating the breasts. Was running, which we thought caused it, but ceased that and still lactating. MRI showed no pituitary tumor or cancer, which is promising. THANKS FOR HELP!!!
    runnershirl 2 Replies
    • October 27, 2006
    • 01:32 PM
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  • Update: My primary put me on a small dose of Synthroid--stating that although it appears my thyroid levels are "normal" at 2.47...the range varies from .05 to 5.0 as normal, and 2.47 may be high for me...So, we're checking to see if I have hypothyroidism...If this doesn't work, he believes we've exhausted all avenues. :rolleyes:
    runnershirl 2 Replies
    • October 30, 2006
    • 04:01 PM
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  • Hi,I have similar issues. I have recently been diagnosed with Chiari 1 Malformation. This was confirmed with a brain and C-spine MRI. For more information about Chiari, please visit chiariinstitute.com. You can read about the symptoms, etc.Thanks.
    Anonymous 42789 Replies
    • December 2, 2008
    • 01:23 AM
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  • I have the same and also have Chiari Malformation I, dx'd at The Chiari Institute. BUT now I have high HGH which causes all of the above. Think the CM is pressing on the pituitary, releasing too much HGH.
    Anonymous 42789 Replies
    • January 29, 2009
    • 10:03 PM
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  • Update: My primary put me on a small dose of Synthroid--stating that although it appears my thyroid levels are "normal" at 2.47...the range varies from .05 to 5.0 as normal, and 2.47 may be high for me...So, we're checking to see if I have hypothyroidism...If this doesn't work, he believes we've exhausted all avenues. :rolleyes: Just wondering if that synthroid helped u?
    daisykf 21 Replies
    • February 8, 2009
    • 03:05 PM
    • 0
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