Discussions By Condition: I cannot get a diagnosis.

Can't fight this off, any ideas are more than appretiated

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: amanda88
  • June 18, 2013
  • 02:14 AM

I'm a 26 year old female and I have been feeling sick for over a year now. My symptoms are:

  • heart palpitations
  • fatigue
  • muscle heaviness
  • swollen lymph nodes & spleen
  • extreme thirst
  • low grade fever (have had for almost a year now)
  • no appetite, weight loss
  • sweating
  • anxiety
It began with fatigue and my heart palpitations. I had an episode where I felt my heart beating very hard and out of rythem, it was like it was seized up in a vice or something for a few seconds and my vision went black and I felt I would pass out then with a great big deep breath I recovered. I had these episodes several times and they got milder but I saw a cardiologist anyway and had several tests done (echo, stress test, several ekgs) and my heart checked out fine. By this time I was having more symptoms but my cardiologist was not interested in those. I began to have a strange feeling of being very heavy all over, felt like I was being pushed on by someone constantly (like I had extra gravity or something) I developed swollen lymph nodes, I was so desperately thirsty all the time, Low fever, decreased appetite, weight loss (10lbs), sweating, and mood swings. One night after a larger meal than I was used to eating at the time my throat began to feel very tight and this feeling continues all the way down the front of my body and I began uncontrollably shaking and felt very cold, but registered no fever, fed up with ER visits by this time I took Ibprophin and waited to see and in a few minutes I stopped shaking. The next visit to the doctor diagnosed me with mononucleosis and the doctor told me time was the only treatment. I began to improve, gain weight, and feel almost normal with exception of some fatigue, spleen swelling, and the occasional mild heart palpitation episode. 

Tests I've had:
  • EKGs
  • Echo cardiogram
  • stress test
  • mono spot test
  • tuberculosis
  • hepatitis
  • comprehensive metabolic panel
  • CBC 
  • abdominal scan
I have tested positive for a current infection of the epstein bar virus (mono), everything else was in the normal range. Recently the feeling of heaviness in my muscles has returned now accompanied by some dizziness. Sometimes the heaviness is severe and others my muscles, particularly my legs, feel week or like I have recently had bad muscle cramps the night before. Sometimes my head also feels like it is pressurized but not painful like a headache. My lymph nodes and spleen also feel swollen again. I have been seeing an infectious disease specialist and had tests for my immune system and regular blood workups that look good but my blood test shows my mono infection is high still. My doctor finally prescribed me nuerotin to help me with the strange sensations and fatigue and that has helped some but it only treats symptoms. I have been feeling sick off and on for over a year now, please does anyone have any experience with these symptoms or a bad case of mono or have any ideas why my body won't fight this virus when tests show I have a normal immune system??

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