Discussions By Condition: I cannot get a diagnosis.

Can anyone on here read this and help me

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • November 5, 2006
  • 07:55 AM

I have been light headed for the past 6 months now and it is driving me crazy. I don't know what to do all the dr.s say Im fine it's nothing serious I have had fluid in my ears, clogged sinuses, low iron but now my iron is back up my sinuses are starting to drain and I have a lil fluid in my ear still, But I am still light headed. It's better in the morning still there and at night is when it get's really bad and scares me like I am going to pass out.. I have had a brain cat scan and nothing but sinuses have been found. I'm only 28 years old female and don't understand what is going on.. Could this be a heart problem.. I don't feel any worse but I feel like I am slowly dieing and they doctors do not know it yet. Can someone please help me give me some peace with something to suggest to my dr.s to do

Reply Flag this Discussion

10 Replies:

  • Not sure if this is any help but you can try looking into these.Labyrinthitis,Eustachian tube dysfunction,sinusitis,vestibular neuritis.
    Anonymous 42789 Replies
    • November 5, 2006
    • 08:26 AM
    • 0
    Flag this Response
  • [I have been feeling the same way for about 4 months now. I've been to a few doctors and they have all said the same thing that I probable have a virus or anxiety. One doctor said I had an ear infection. I do have panic attacks which I'm not sure why because I have never been a paniced person.Most of the time I feel like I'm going to have a heartattack. I'm going for a CT scan as well at the end of the month. So I hope everything will turn out well with that. The only thing I can say is that the Lord truly knows what is wrong with you and that it will be brought to light sooner or later because he is the only one who can give you peace and comfort through this difficult time.
    Anonymous 42789 Replies
    • November 5, 2006
    • 09:53 AM
    • 0
    Flag this Response
  • maybe seeing an oral/maxio specialist would help - they could flush out your sinuses - ears nose and throat all combined so if one affected like your sinuses it will affect your ears - I know because I've had the problem for years and get infections, antibiotics help and stemicil for the dizziness god I wouldn't be without that but a permanant cure mmm? not that I know off maintenence at best - but your sinuses sound really bad and I would check out getting them flushed out it could help - worth a punt anyway.
    Anonymous 42789 Replies
    • November 14, 2006
    • 11:08 PM
    • 0
    Flag this Response
  • This sounds like Meniere's Disease - a disease of the labyrinth canals of the ear - causes dizzyness, light-headedness, faintness, hearing problems. Has this been checked? Hope it helps.
    Anonymous 42789 Replies
    • November 15, 2006
    • 05:01 AM
    • 0
    Flag this Response
  • I'm not sure what your exact symptoms are, other than light headedness, but it sounds like you may have a condition that I was diagnosed with in high school. I had the condition at least since fifth grade (that's the earliest I can remember experiencing symptoms) but never knew what it was or if it really was an unusual problem. In high school, I went to the doctor initially for chest pain (probably due to just a common cold), but ended up get this condition diagnosed instead. The doctor ordered a Tilt Table Test and said it was the last test she was going to order before she sent me to a Psychiatrist. I told me mom that I KNEW something wasn't right, and I refused to see a Psychiatrist. Luckily, I failed the Tilt Table Test in less than five minutes and proved the doctor wrong. My condition is called "Vasovagal Syncope, Neurogenic Syncope, Orthostatic Hypotension." How it was explained to me is basically that when I'm in an upright position, mostly when standing, my brain sends the wrong messages to my heart and makes my blood pressure skyrocket. It then instantaneously plummets, causing me to get light headed, have heart palpitations, get clamy skin, and eventually pass out. When these episodes occur, I get dizzy, then my vision gets very glittery and white, then turns purple and my hearing goes, and at this point, I know I'm about to pass out. Since the diagnosis, I've seen a cardiologist, more times at first, but now only once a year for a check up. He's had me on beta blockers, first Atenenol, but I had severe mood swings, so he switched me to Toprol XL, which I've been on since junior year of high school (for 7 years). He did have to increase my dosage once but wants to hold off doing it anymore unless the symptoms get really bad. The theory behind the beta blockers is that they keep your blood pressure low, inhibiting it from sky rocketing and thus it can't plummet, leading to fainting. Although, I've never experienced a full blown blackout, since I can recognize the symptoms and take action before it occurs. The beta blockers help reduce the symptoms but do not cure the condition, as there is no cure. My cardiologist told me that some people grow out of it in their mid 20's, some people cease having it after they've had their first baby, and others will have it forever. If this is what you have, I assure you that you will not die from it, although it is frustrating and scary at times. My cardiologist adviced me that the symptoms themselves are not the danger, but rather what I'm doing if I do pass out, as he once had a high school aged patient who fell and hit her head and needed brain surgery. So, if you do start to experience similar symptoms, he recommends lying down with your feet above your head, as this position will increase your blood pressure back to normal. He also suggests that I drink a lot of Gatorade and eat foods with Sodium, when I'm feeling dizzy. If your symptoms are similar, I hope this information helps! Good Luck!-Jacque
    Anonymous 42789 Replies
    • November 15, 2006
    • 09:26 AM
    • 0
    Flag this Response
  • Also, I forgot to add that the episodes occur more frequently if my body temperature is raised (either just from the room being hot or from having a fever, although more likely the first), when I'm in smaller places with a lot of people (like standing on a bus or train, in a line, elevator, etc), or when I have my period. Because I know when the symptoms are going to occur, or what situations will trigger them, I do get panic type symptoms like you guys have explained, such as clamy skin, increased heart rate, etc. It's moreso from the fear of passing out or of getting to that point and not being able to get out of the space to prevent fainting. -Jacque
    Anonymous 42789 Replies
    • November 15, 2006
    • 09:33 AM
    • 0
    Flag this Response
  • I believe I can relate - I went through the same kind of thing about 10 years ago (I'm 40 now). Being tested for syncope is a good idea, but it could also just be your sinuses. I had similar symptoms - lightheaded, foggy, pressure in the ears, just feeling generally blah. My GP did some basic testing and reassured me that I was NOT going to drop dead anytime soon, and suggested it might be sinusitis related to allergies, since I had a lot of sticky mucous and ear pressure. The prescription stuff (Flonase, Claritin) didn't do squat, but plain old Sudafed helped clear out some of the fog, and anything that loosened up the mucous helped too (spicy food, inhaling steam, lots of hot tea, etc.).My symptoms cleared up on their own when I moved out of my new apartment to an older one. My best guess is that some combination of mold/construction fumes in that apartment got to me. If you can think of any major changes in your environment in the last year or so (new house, new paint, new pet, new job) an allergy or sensitivity could be the culprit. I was also frustrated about not having a "real" diagnosis, but I finally decided to accept that sometimes I just feel like crap, and sometimes the best modern medicine can do is offer a best guess and reassure you that you're not in any danger. Even now, the lightheaded/foggy/heavy-headed feeling comes and goes, generally related to weather changes, but knowing that it's just annoying and not dangerous really helps me cope (seeing as how I'm still not dead and still basically healthy). Think about asking your doc for allergy tests. Plus, I'd recommend you try googling "allergies lightheadedness" - all kinds of interesting things pop up, as well as some nice support forums.
    Anonymous 42789 Replies
    • November 15, 2006
    • 05:44 PM
    • 0
    Flag this Response
  • I have been light headed for the past 6 months now and it is driving me crazy. I don't know what to do all the dr.s say Im fine it's nothing serious I have had fluid in my ears, clogged sinuses, low iron but now my iron is back up my sinuses are starting to drain and I have a lil fluid in my ear still, But I am still light headed. It's better in the morning still there and at night is when it get's really bad and scares me like I am going to pass out.. I have had a brain cat scan and nothing but sinuses have been found. I'm only 28 years old female and don't understand what is going on.. Could this be a heart problem.. I don't feel any worse but I feel like I am slowly dieing and they doctors do not know it yet. Can someone please help me give me some peace with something to suggest to my dr.s to dotry meniers disease
    Anonymous 42789 Replies
    • November 15, 2006
    • 10:29 PM
    • 0
    Flag this Response
  • Meniere's Disease, you sound like a friend of mine. Cut your salt and NO alcohol,if that helps, tell your Doc.
    Anonymous 42789 Replies
    • November 15, 2006
    • 10:32 PM
    • 0
    Flag this Response
  • I get the same thing all the time more so when i am nervous. I take pills for nerves and i visit a chiropractor and that really has helped me.
    Anonymous 42789 Replies
    • November 17, 2006
    • 02:51 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.