:confused:Sorry for the long post, but I have tried to include everything.
Hi I have been ill for over 10 years but still have no idea what is wrong with me. I am a 42 year old woman. I started getting very vague symptoms that would come and go. These included feeling physically very tired, sore throat, feeling generally unwell and stiff some mornings.
I then got more specific symptoms that came and went. I was totally incontinent in my bladder for about 4 hours, I got pain in my foot that felt like 5 needles were sticking into it, and I got patches of numbness.
I then starting getting sharp pain - I think neuralgia - initially radiating out of my right eye. It then began to spread down various parts of the right hand side of my body. I also started getting a brain fog where I found it hard to think or at times even talk. And I became partially incontinent and with mild rectal incontinence and occasional muscle weakness and blurry vision.
I also noticed that the right hand side of my face would go red and be slightly puffy. I have since started getting symptoms on the right hand of my body and the redness and puffiness that come and go, has spread to the left hand side of my face. When I am most ill I get cold as well. I also in last 2 years have 1 droopy eyelid and I can't close 1 eye and expose my eyelid.
I have since figured out that I have periods where I am well - up to 18 months! - during this time the only symptoms I get are the pain. Then I get periods where I am unwell and I get all or some of my other symptoms and the pain spreads to new parts of my body and gets worse. I also seem very liable to get fungal infections and cold sores at this time.
I also have mild bronchiecstasis and an underactive thyroid. I have had an MRI, spinal tap and lots of blood tests. MS, lupus, B12 deficiency have been ruled out and my throid levels are now normal. They basically don't know what is wrong with me.
What worries me is that over the years the pain keeps getting worse. So any ideas would be very gratefully received.
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