Discussions By Condition: I cannot get a diagnosis.

can anyone connect the dots

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: matta89
  • November 23, 2010
  • 07:58 AM

Hey Everyone,

I figured I'd take a chance to see if anyone can connect the dots. I'm a male, 21 and have a few issues starting from childhood. At the moment, I'm suffering from fatigue, sleeping way too much, headaches and lately some dizzy spells. I'm self employed and I'm finding it almost impossible to get the work I need to get done. Its not depression, I'm frustrated; but not depressed; if that makes sense.

Here is a little background

At 4 years old I had viral meningitis, I spent some time in the hospital, but it was caught early. Some doctors have suggested that my history of migraines is connected to this. Around that time I started having severe headaches and dizzy spells. The only thing the doctors would suggest was taking over the counter pain meds and to 'deal with it'. I seemed to catch every bug as a kid, I got sick almost non stop.

When I was about 12-13 I had a lot of stomach issues and was given the diagnosis of IBS. I no longer have those issues, I don't know where it came from, or how it was related. I don't remember having many headaches at this point, but I had a lot of dizzy spells, I used to feel like my class room was spinning.

Around 14-15 I the migraines came back big time, I was getting hit a couple times a week at the least. When I was 15 things shifted big time, I started getting what looked like seizures, on my right side. I remember the first one I got. I was taking the city bus home, and started feeling the aura, numbness I'd get before a migraine would hit. It felt different. I got home, got a ice pack and the next thing I remember was my right side shaking severely. I was taken to the doctor that night and they did some tests and sent me home.

For about a year what the doctors called shaking spells hit none stop. The doctors did EEG's, MRI's, blood tests and never found anything. One night I had 16 of these incidents and was admitted to the hospital. The neurologist I had at the time suggested it was 'all in my head' and that it was stress related, or me trying to get attention. I switched neurologists, and the best suggestion she could give was that this was a strange version of a migraine, because my headaches had all but gone away during this period.

When I was 17, they stopped. Very suddenly. In jan '07, just before my 18th birthday I started a new job at a insurance company (irony huh). Around that time the migraines started back up. At first they were minor, a few times a month. As the months went by they got more and more severe and more often. Up to a few times a week. My neurologist had me of various preventives, including blood pressure med, vitamin B supplements and magnesium. Everything we tried would help for a short period and then it would it pop back up.

Around Nov '07 things really got bad. I was having 3 or more attacks a week and also had 3 periods over about 4 months where I had pain for 5-6 days at a time. The pain would break for a few hours and then start up again. I think I was in the E.R 5 times over that period. The doctor gave me some type of oral steroid to break the cycles and it worked.

In May '08 my doctor put my on state disability for a month, It gave me enough time to rest and see if we could find the triggers to the issues I was having. Within a few weeks the migraines got better and started have more and more time pain free. Now the migraines are down to a 2-3 a month, which is enough for me to handle.

I quit that job, I felt that the lighting may be been related to the flare up the migraines. I started my own business and its been successful The issue I've had lately is just feeling so tired, I can sleep for 13 or 14 hours and I wake up exhausted, and achey Its been like this for the past 3 months. irregular ever showed up. In the past I would have a period of 1-2 weeks that I felt like this, I would would through it, take some time off. I just assumed it was a bug or something when it hit. Now It feels never ending. I've tried supplements, time off and anything I can think of. I feel like life is passing me by and my business is seriously suffering, my income is less than half of what it was 3 months ago.

Its been about 2 years since I've been to a doctor, because of the healthcare bill I'll get insurance under my parents in Jan and plan on trying to figure out what this is. I don't really know where to start, I feel like all the issues i've had over the last 8 years have to be somehow related, but I have no idea how. I do suspect Hypothyroidism, it runs in the family big time. But I don't know if that is the sole cause, or if thats the problem.

Any ideas or suggestions to bring to the doctor?


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