Discussions By Condition: I cannot get a diagnosis.

Can anybody help????

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • August 6, 2007
  • 10:12 AM

So, I'm really frustrated at this point. I just want to know what's wrong with me. Over the last year or so I've had abnormal blood counts. I have very low white blood counts/leukopenia (lymphocytes, white blood cells, etc) and anemia (low red count, hematocrit, etc). Most recently my reticulocytes have been low. And I've had low platelets a few times. My doc referred me to a hematologist since all my blood counts seem to be trending downwards. Now I've started having bone bain in my legs and arms (generalized), sweating and night sweats, and just getting sick a lot. I'm tired of being sick and feeling like an old lady. I'm only 20 years old. I feel like the doctors don't really care. Like when I told my primary care doctor that my bones hurt she just said to take calcium and vitamin D. Whenever I put all my symptoms in on the symptom checker on this website it always comes up with leukemia no matter how many ways I try to change it up (take a symptom out or something). I don't know if I should be worried about that though. I mean how can I have leukemia? I would think that I would know because I'd be really sick. You would think the doctors would know since they drew my blood and stuff. I am afraid to talk to them anymore because I don't want them to think I'm a hypochondriac or something. It's just frustrating because I'm young and feel like I shouldn't have all these problems. The sweating and bone pain are getting really annoying, too. Can anyone offer any advice or help? Thanks

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4 Replies:

  • Because of the nature of your symptoms, it wouldn't be a bad idea to seek a 2nd opinion. At the same time, you may be unnecesarily worrying b/c lab results are not always accurate. In fact reference ranges vary b/w labs, so what might be low to one may might be ok at another lab. Furthermore, all sorts of variables can influence the lab results (position and condition of the patient). One type of anemia you might want to consider is Thalassaemia. While it is usually detected during childhood, your symptoms may be due to advancement of the condition. In order to increase RBC production the bone marrow and spleen may have increased activity. An enlarged spleen can cause a decrease in WBC and platelet count. Stimulated marrow may cause bone pain. Thalassaemia is just a thought, but I have no practical experience with it (just book knowlege). At any rate, hope this helps!
    lsoroosh 51 Replies Flag this Response
  • Dear frustrated unregistered... low WBCabnormal atypical lymphocyte countanemiapainsweatingnight sweatssick all the timefeel like an old lady wow....it's like reading my symptoms.....but I had about 70 more... Have you had an HIV test?Has chronic fatigue syndrome been considered? No matter what your "diagnosis" is, find NAET/Bioset therapy close to you and go!! You will get your life back and be normal once again....I am 39...went to 5 treatments and am 80% better already!! There are a few of us in this forum who are recommending it....because it works....I went because someone from here in this forum advised me....BEST MOVE I EVER MADE!! Hope you are well in no time!!....sincerely...mommy cat:)
    mommy cat 1654 Replies Flag this Response
  • Thanks for the suggestions! I'll try them out. As for labs having different lows and highs, they were low at both docs. In the hospital labs, primary care lab, and hematologist lab. So I know they are low for sure, I just don't know why. I will talk to my doc about that one type of anemia though, thanks. And mommy cat, I have had an HIV test.
    Anonymous 42789 Replies Flag this Response
  • Talk to your docs about your fear of leukemia. If you put them on the spot, they should be able to sense that you need an answer!
    rad-skw 1605 Replies
    • August 10, 2007
    • 10:39 AM
    • 0
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