For the past 2 years, I've had a spontaneous, progressive skin burning sensation whenever I'm touched, where ever I'm touched. It started just when people touched me, but now anything- clothes, people, myself- causes a severe burning sensation.
I can't sleep, study (I'm a college student), sit down, hug my family... I can't DO anything, because my skin is always burning.
I get no marks, discoloration, scars from the burns.
I've been to a dermatologist for cutaneous dysthesia; a pain specialist who diagnosed reflex sympathetic dystrophy and did radiofrequency, not successful, then went to a neurologist who performed an MRI and a nerve conduction test, both came out normal- no nerve damage!
I'm on/been on: neruontin 2700mg, lyrica 150mg, elavil 100mg, celexa 40mg, nortryptalin 100mg, cymbalta 60mg. Nothing has worked.
has anyone heard of this? I've been told that this is often seen, but it is always after an accident and always localized. No one has seen this spontaneous or all over the body. I tried a referral to Mayo Clinic, but they won't take me. I have no options left. I need to know if anyone has this, so I can get my life back to normal.