Discussions By Condition: I cannot get a diagnosis.

burning skin sensation- no diagnosis

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: emlincoln
  • October 29, 2008
  • 04:48 AM

For the past 2 years, I've had a spontaneous, progressive skin burning sensation whenever I'm touched, where ever I'm touched. It started just when people touched me, but now anything- clothes, people, myself- causes a severe burning sensation.

I can't sleep, study (I'm a college student), sit down, hug my family... I can't DO anything, because my skin is always burning.

I get no marks, discoloration, scars from the burns.
I've been to a dermatologist for cutaneous dysthesia; a pain specialist who diagnosed reflex sympathetic dystrophy and did radiofrequency, not successful, then went to a neurologist who performed an MRI and a nerve conduction test, both came out normal- no nerve damage!

I'm on/been on: neruontin 2700mg, lyrica 150mg, elavil 100mg, celexa 40mg, nortryptalin 100mg, cymbalta 60mg. Nothing has worked.



has anyone heard of this? I've been told that this is often seen, but it is always after an accident and always localized. No one has seen this spontaneous or all over the body. I tried a referral to Mayo Clinic, but they won't take me. I have no options left. I need to know if anyone has this, so I can get my life back to normal.

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4 Replies:

  • Try here: http://www.wrongdiagnosis.com/symptoms/numbness/book-causes-4a.htm This could be celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ Also here: http://www.springerlink.com/content/bjv33cdmy544lp5j/
    aquila 1263 Replies
    • November 4, 2008
    • 08:36 PM
    • 0
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  • I have been on celexa for over a month and just stopped taking it because i have been noticing about 3 weeks into it (when its fully in your system) that i have burning skin in weird spots, not constant but it changes usually worse at night. I have stopped taking it after reading side effects of celexa. try and stay away from SSRI's if you can, they have ruined my life! Just Exercise! Good luck to you, i feel your pain...
    Anonymous 42789 Replies
    • November 23, 2009
    • 08:24 PM
    • 0
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  • perhaps this isnt going help but I had what I thought a skin burning sensation , before I found a web site about prickly heat , medical term " Miliaria " I get the " prickly heat " every day now days some day few times a day . its caused by blocked sweat glands , which means as soon as by body gets to temperatu when I should start sweatting , instead I get this unbareable sensation all over my body,if any of you would like to get more info , I'll attach a link to the web-site http://www.innatehealth.com/miliaria.htmbest wishes !
    Anonymous 42789 Replies
    • August 17, 2010
    • 11:07 AM
    • 0
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  • For the past 2 years, I've had a spontaneous, progressive skin burning sensation whenever I'm touched, where ever I'm touched. It started just when people touched me, but now anything- clothes, people, myself- causes a severe burning sensation. I can't sleep, study (I'm a college student), sit down, hug my family... I can't DO anything, because my skin is always burning. I get no marks, discoloration, scars from the burns.I've been to a dermatologist for cutaneous dysthesia; a pain specialist who diagnosed reflex sympathetic dystrophy and did radiofrequency, not successful, then went to a neurologist who performed an MRI and a nerve conduction test, both came out normal- no nerve damage! I'm on/been on: neruontin 2700mg, lyrica 150mg, elavil 100mg, celexa 40mg, nortryptalin 100mg, cymbalta 60mg. Nothing has worked. has anyone heard of this? I've been told that this is often seen, but it is always after an accident and always localized. No one has seen this spontaneous or all over the body. I tried a referral to Mayo Clinic, but they won't take me. I have no options left. I need to know if anyone has this, so I can get my life back to normal.If you have a firm diagnosis of RSD...get treatment asap....I have this progressive neuro disorder in both lower limbs (since 1998) and it has progressed further over the years to both arms (treated quite successfully with Phentolamine Infusion), and has also affected my breathing....this is a disease affecting the autonomic system of your body...I suggest a good Rheumatologist for treatment plan......for my "burning" the "Neurontins" (Gabapentin" have really addressed the sensations very adequately....but it took quite a few years....but you must be patient.Look for RSD sites....educate yourself ! Good Luck !
    Anonymous 42789 Replies
    • August 18, 2010
    • 03:05 AM
    • 0
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