Discussions By Condition: I cannot get a diagnosis.

Brain Fog / Fatigue / Muscle Weakness / Strange Vision

Posted In: I cannot get a diagnosis. 136 Replies
  • Posted By: starshuf
  • July 13, 2009
  • 05:38 PM

Background:

I am a 23 year old male. I have never had any real health problems my entire life.
I was a top student in high school and I am currently doing engineering at
university. I am a bit of a ***d and spend some time infront of the pc every day
but I also do excercise and I am not overweight.

Situation:

In mid march this year (2009) I started getting wierd symptoms. It wasn't easy to
realize at first but after a few days I knew something was wrong.

In order of severity:

-Brain fog. I am having SO MUCH trouble thinking. it feels asif I lost 20-30 IQ points
I feel "thick". I can't concentrate on anything. I have trouble reading and comprehending
words, sentences, paragraphs or pages as I use to. I use to be really clever,
now I feel like an idiot.

-Fatigue. I constantly feel tired.

-Weird Flickering Vision. My vision has a "flicker" to it. more on the outside of my
sight than the exact place i am looking at. its like watching a clear TV channel with
wight noise flickering in and out about 3-4 times a second.

-muscle weakness and shaking. ALL the muscles in my body feel significantly weaker. I
also have a light shakiness or tremor throughout my body, especially in my hands.

-I constantly want to breathe through my mouth asif im not getting enough oxygen. I
never use to do this and always thought people that did this were stupid.


Doctors (March -- July):

Went to GP. he did alot of blood tests for all the major things. everything was fine.
even thyroid. Put me on anti-depressants for 1.5 months which did nothing...

He referred me to a neurologist. She also asked alot of questions and could not find a
solution. Started me on ADD drugs. I've been escalating through these for months and
I am currently on Concerta which is like Ritalin but just a slower release. Not doing
anything.

(btw they did an MRI and an EEG with no results.)

I have also put my degree on hold. my social life is falling apart because people think
this is all in my head.

Please help me.

Reply Flag this Discussion
  • My 13 year old son has exactly the same symptoms, but also with a constant headache. He has been off school for 8 weeks totally unable to think or concentrate, whereas he was in the top stream for everything. Our family doctor is brilliant but the hospital consultant told me there's nothing wrong and I should stop him lying around doing nothing, although he is normally VERY active! Again blood tests, CT scan are showing nothing. Have been searching on here for weeks for answers - symptoms seem to suggest parathyroid problems, but convincing doctors there's something wrong is a major headache for me!!
    Anonymous 42789 Replies Flag this Response
  • I am very sorry you feel this badly. Your symptoms, however, are vague and you may very well go on a wild goose chase for a while but you should not give up. Think very hard at what you're doing that is different...You may be the only one to solve this. Also you should get tested for allergy, and make sure you have good ventilation and that you don't have a gas leak of some kind.
    birdie 40 Replies Flag this Response
  • I am very sorry you feel this badly. Your symptoms, however, are vague and you may very well go on a wild goose chase for a while but you should not give up. Think very hard at what you're doing that is different...You may be the only one to solve this. Also you should get tested for allergy, and make sure you have good ventilation and that you don't have a gas leak of some kind.I know. Thats why the doctors are having problems diagnosing it i suppose.Ventilation is fine, this has been about 4 months and I went on holiday for 3 weeks which didn't make a dif.Asked the doctor about allergies and she said it cant be that. suppose I can just start a rotating diet or something maybe that will help.I'm not in pain or anything but this is still ruining my life. I can just see my self in some old age home playing checkers with myself...
    starshuf 18 Replies Flag this Response
  • I think you should both look into migraine with aura, or even just the aura.
    Anonymous 42789 Replies Flag this Response
  • I've had a very similar problem for about a year now. All tests are coming back normal for me. Also went to neurologist, tests are normal, she thinks it is metabolic. All I know is mine started after getting food poisoning and a parasite infection. If you were sick with the flu or food poisoning or some other bug in the weeks/months previous to the foggy head, it can sometimes set off other things in your body. I'm getting closer to being diagnosed with celiac disease (gluten allergy) by a gastroenterologist. I don't think it will come back positive. Something that never bothered me before food poisoning. I don't think you need to be on medication for ADD. If you were a good student before this brain fog happened, ADD isn't going to come on this suddenly. My guess is you're taking the drugs to hope it would help, maybe feeling desperate? Keep in mind that you know what it feels like to be normal and healthy, even if other people think you are a hypochondriac. Many doctors told me I was being "too sensitive". Then I was finally diagnosed with an autoimmune disorder, reiter's syndrome, after the parasite infection. Tired for months, always felt sick, achey, and no one believed me because on the outside I looked completely normal. The gastroenterologist finally sent me to a rheumatologist which fixed the aches, but still no luck on this brain fog.My advice is to keep at it, but don't let it consume you. I wouldn't think it's anything life threatening if all tests are coming back normal. My social life was affected too for awhile, and my group of friends has diminished. But I still have a core group who is understanding about what is going on. Explain it to the ones you are close to, they should understand. Funny thing with me is that my friends said they didn't notice a change in my interaction with them even when all this brain fog was happening to me. Talk to them once in awhile about it, but it's important to enjoy everything else in life. Remember to laugh, it helps a lot.Keep us updated if things change for you. Would like to know other possibilities for myself.
    Anonymous 42789 Replies Flag this Response
  • I've had a very similar problem for about a year now. All tests are coming back normal for me. Also went to neurologist, tests are normal, she thinks it is metabolic. All I know is mine started after getting food poisoning and a parasite infection. If you were sick with the flu or food poisoning or some other bug in the weeks/months previous to the foggy head, it can sometimes set off other things in your body. I'm getting closer to being diagnosed with celiac disease (gluten allergy) by a gastroenterologist. I don't think it will come back positive. Something that never bothered me before food poisoning. I don't think you need to be on medication for ADD. If you were a good student before this brain fog happened, ADD isn't going to come on this suddenly. My guess is you're taking the drugs to hope it would help, maybe feeling desperate? Keep in mind that you know what it feels like to be normal and healthy, even if other people think you are a hypochondriac. Many doctors told me I was being "too sensitive". Then I was finally diagnosed with an autoimmune disorder, reiter's syndrome, after the parasite infection. Tired for months, always felt sick, achey, like I had the flu, and no one believed me because on the outside I looked completely normal. The gastroenterologist finally sent me to a rheumatologist which fixed the aches, but still no luck on this brain fog. My advice is to keep at it, but don't let it consume you. I wouldn't think it's anything life threatening if all tests are coming back normal. My social life was affected too for awhile, and my group of friends has diminished. But I still have a core group who is understanding about what is going on. Explain it to the ones you are close to, they should understand. Funny thing with me is that my friends said they didn't notice a change in my interaction with them even when all this brain fog was happening to me. Talk to them once in awhile about it, but it's important to enjoy everything else in life. Remember to laugh, it helps a lot. Keep us updated if things change for you. Would like to know other possibilities for myself. Also, the aura from a migraine was suggested to me too. Tried the medicine for it, but it didn't work for me.
    notyetnever 7 Replies Flag this Response
  • Starshuf, I'd be wary about listening to the post by Blaze. There isn't much evidence, which s/he will probably say because no one is looking into it or because it's recent research. Antenna towers, don't worry about, nuclear power plant is a different story. But seriously, look at Blaze's other posts. He has over 3,000 posts and no matter what health issue people are having, Blaze's reply is always suggesting this wifi/electrical/antenna theory. There are lots and lots of things that can cause brain fog. Don't let your fear or desperation for an answer lead you to believe nonsensical ideas like this. You can search "brain fog" and find many reasons for it and drive yourself crazy worrying if whatever new ailment you find is the actual cause. Don't do it. You'll stress yourself out. And reading about major health problems that you probably don't have isn't going to help. Going to get tests and their results will solve the problem. Ask them what they're testing for, what they think could be the problem, ask what tests they're doing. It is your right to know. Like I said in my first post, if one doctor doesn't believe you or you think they can no longer help you, go see a different doctor. Remember, you are not obligated to stick with a doctor just because you went there once. Also remember to enjoy the times when you don't have the brain fog.
    notyetnever 7 Replies Flag this Response
  • Also, a rheumatologist could be a good doctor to see. I only say that because they are very thorough with their work and patients (if you have a good one). Mine wanted to know everything that's every happened to me health wise and she did extensive testing. Rheumatologists look for connections between symptoms, which none of the GP doctors or others did. Could it be a waste of time/money? Yes. Might help too. Again, my rheumatologist wasn't able to explain the foggy head, but she helped with everything else going on.
    notyetnever 7 Replies Flag this Response
  • I've had a very similar problem for about a year now. All tests are coming back normal for me. Also went to neurologist, tests are normal, she thinks it is metabolic. All I know is mine started after getting food poisoning and a parasite infection. If you were sick with the flu or food poisoning or some other bug in the weeks/months previous to the foggy head, it can sometimes set off other things in your body. I'm getting closer to being diagnosed with celiac disease (gluten allergy) by a gastroenterologist. I don't think it will come back positive. Something that never bothered me before food poisoning. I don't think you need to be on medication for ADD. If you were a good student before this brain fog happened, ADD isn't going to come on this suddenly. My guess is you're taking the drugs to hope it would help, maybe feeling desperate? Keep in mind that you know what it feels like to be normal and healthy, even if other people think you are a hypochondriac. Many doctors told me I was being "too sensitive". Then I was finally diagnosed with an autoimmune disorder, reiter's syndrome, after the parasite infection. Tired for months, always felt sick, achey, like I had the flu, and no one believed me because on the outside I looked completely normal. The gastroenterologist finally sent me to a rheumatologist which fixed the aches, but still no luck on this brain fog. My advice is to keep at it, but don't let it consume you. I wouldn't think it's anything life threatening if all tests are coming back normal. My social life was affected too for awhile, and my group of friends has diminished. But I still have a core group who is understanding about what is going on. Explain it to the ones you are close to, they should understand. Funny thing with me is that my friends said they didn't notice a change in my interaction with them even when all this brain fog was happening to me. Talk to them once in awhile about it, but it's important to enjoy everything else in life. Remember to laugh, it helps a lot. Keep us updated if things change for you. Would like to know other possibilities for myself. Also, the aura from a migraine was suggested to me too. Tried the medicine for it, but it didn't work for me.Yes I am basically on ADD meds because I'm desperate. Not because it's doing anything. My dad has just forced me to start studying again. It's really hard seeing as it's engineering and it takes me 30 seconds to add two 3-digit numbers together. Normally this would take no brainpower.My neurologist has just told me to do a long term course of concerta/ritalin. So I am going to be on it for 3-4 months now to see if it makes a difference. Which it probably wont but whatever. At least it gives me a little energy boost to get through class 8-5.It's very frustrating that I look the same to everyone even though I don't feel like I have a brain. Everyone keeps telling me "It's not so hard, just finish your degree"...Anyway, I agree with and thank you for the post. I will try to keep a positive attitude, and inform you if I find out anything new.
    starshuf 18 Replies Flag this Response
  • Starshuf, I'd be wary about listening to the post by Blaze. There isn't much evidence, which s/he will probably say because no one is looking into it or because it's recent research. Antenna towers, don't worry about, nuclear power plant is a different story. But seriously, look at Blaze's other posts. He has over 3,000 posts and no matter what health issue people are having, Blaze's reply is always suggesting this wifi/electrical/antenna theory. There are lots and lots of things that can cause brain fog. Don't let your fear or desperation for an answer lead you to believe nonsensical ideas like this. You can search "brain fog" and find many reasons for it and drive yourself crazy worrying if whatever new ailment you find is the actual cause. Don't do it. You'll stress yourself out. And reading about major health problems that you probably don't have isn't going to help. Going to get tests and their results will solve the problem. Ask them what they're testing for, what they think could be the problem, ask what tests they're doing. It is your right to know. Like I said in my first post, if one doctor doesn't believe you or you think they can no longer help you, go see a different doctor. Remember, you are not obligated to stick with a doctor just because you went there once. Also remember to enjoy the times when you don't have the brain fog.LOL. Even a super-brainfogged idiot like me can see right through blaze's spam. He really does troll every single thread with his "antenna" crap. I just ignore it.I will take your advice on the Rheumatologist.
    starshuf 18 Replies Flag this Response
  • Starshuf, if the ritalin is helping that's good. But again, if you don't think you have ADD or you shouldn't be on this drug, get a second opinion. I know we're all supposed to unquestionably trust our doctors, but just because they're a specialist doesn't mean they know everything. And a second opinion wouldn't harm anything. I'll let you know if I come up with anything too. And Blaze, all I was doing was making sure this kid doesn't jump to some random conclusion because of fear. Told him/her to get more tests done, see a different doctor if necessary, not to give up, and keep enjoying time with friends when he can. And while you may be able to provide 6 or 7 theories (even one by a nobel prize nominee) that hardly compares to the number of other experts out there who don't see any connection. Your Dr. Becker was nominated for a nobel prize? That doesn't mean anything. Did you know Adolf Hitler was nominated for a Nobel PEACE prize? No sarcasm there. I'm serious. As was Mussolini and Stalin. Unless he won, nominations mean nothing as only one qualified person is needed to nominate someone for a prize. Furthermore, you can't find much online about this Dr. Becker as I just searched for him. In this day and age, someone as prominant as this guy, or so you say, should make it fairly easy to find something on it. Oh, but I did find this http://depletedcranium.com/?p=532 Your guy sounds a bit nutty. And I caution you to do more research on the people you choose to follow. Furthermore, you spouting off over 3,000 times on this site about antennas to anyone who has a health issue no matter what it may be, is just irreponsible. It creates an atmosphere of hysteria in people who are already desperate for an answer. You'll only cause them more anxiety by pushing your own agenda. And yes, those 3,000 posts make it seem like you have your own agenda. That's all I have to say to you and this antenna issue.
    notyetnever 7 Replies Flag this Response
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  • -Is there ANY evidence that these antennas caused your ex's tumor?-Do you know notyetnever? why do you say he isnt a doctor? he has said nothing on this topic.-Why are you spamming all these links in my thread and scaring potential posters away? do you have a reason to believe I might need your spam?Fact: I have had an MRI a month ago which came up clean. No tumorFact: I live in a developing country. And not in a city. We only have cellphone coverage, which run's on 900mhz and has YET TO BE PROVEN TO CAUSE BRAIN TUMORS. And please don't bring up that sensationalist crap from germany.Fact: GTFO or get ON TOPIC (Which should be the heading of the thread)
    starshuf 18 Replies Flag this Response
  • According to Nobel Prize nominating rules, any "professor of social sciences, history, philosophy, law and theology" and any judge or national legislator in any country, among others, can nominate anyone for a Nobel Prize. Past nominees include Adolf Hitler, Josef Stalin, Benito Mussolini and Fidel Castro. Naturally, many nominees have real merit. But being nominated by one or a few of the hundreds of thousands of eligible nominators is little evidence of such merit. This is especially so when the nominee is a source of controversy.From nobelprize.org.I guess ignorance is bliss to some people. they just see what they want to...
    starshuf 18 Replies Flag this Response
  • I would look at Thyroid function?
    dawnangela 1 Replies Flag this Response
  • Please create a new thread for your theories. I'm sure people don't want to look in all the posts on wrongdiagnosis to find your information.I have been tested for thyroid and it came up clean.
    starshuf 18 Replies Flag this Response
  • Hello Star,Well, the weird symptoms could very well be anxiety. However, some other things you may want to consider are:sick building syndromeThe building you are staying in could have some toxins in it causing your autonomic nervouse system to be responding in adverse ways. Check for mold, chemicals, or anything new you have put into your home or diet.Good Luck
    Anonymous 42789 Replies Flag this Response
  • I will look into it. Moved into this house in January. It was built two years ago, thought it seems pretty hygenic and well ventilated.
    starshuf 18 Replies Flag this Response
  • hi if you do not take medication before bed time?as silly as this may sound do give it a try.5 min before bed time go outside and take a few large breaths fresh air and see how you feel the next day it may take more than one nights try (but do try it ) FOR SOME IT DOES HELP.
    charmaine petzer 176 Replies Flag this Response
  • I had similar symptoms to you, and it turned out to be Candida. I've been taking anti-candida supplements for a couple of weeks now and notice a distinct improvement. Have a look at candidafree.net for a list of symptoms and see it matches.
    Anonymous 42789 Replies Flag this Response
  • I'm going through a lot of the same stuff and have recently found out my potassium was low. I got that up and found out my magnesium was low. Mg is not something they normally test for. I'm taking supplements but have gotten worse over the weekend. I suggest you look into this because left untreated can cause more problems. I think I've had this for a while but got a parasite infection 1 mo. ago and things have gotten a lot worse since.
    Anonymous 42789 Replies Flag this Response
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