Discussions By Condition: I cannot get a diagnosis.

Boy: unexplained memory problems & seemingly neurological issues

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • August 20, 2007
  • 05:23 PM

This boy was always a quick wit and very athletic. He earned A's and B's and participated in many after school programs. Last October started hearing from his teachers that he was having academic difficulties. In December he had a full neuro-psych workup done and it was concluded that we should consult a neurologist.

Since then he has seen neurologists in Providence, Boston, New York and are also consulting with the Mayo Clinic in Minnesota. He has undergone 4 MRIs, 2 EEGs, a PET scan, 2 spinal taps, 2 skin biopsies, 1 muscle biopsy, a full body CAT scan and numerous blood and urine tests. There is still no diagnosis. They tried treating empirically. None of the treatments have yielded any positive changes in his situation.
The decline in the last 2 months has been dramatic. He now needs assistance walking and uses a wheelchair. He is unable to speak but can mouth words or whisper. He drools and is somewhat incontinent. He often has tremors.

On the positive side, he is content, smiles all the time and laughs often. Cognitively, he seems to understand everything if it is slowed down for him. He can write by hand and type on the computer. He continues to have trouble with short term and working memory but seems to remember everything he learned before last September.

Could this be due to: METAL TOXICITY or MOLD?
Any opinions/experiences out there?

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5 Replies:

  • Can you think back last fall and was there anything out of the ordinary that occurred? Did he have any vaccines before starting school? Was he sick with a flu, or did he take any medications that you can remember?How old is he? Has he been tested for Lymes? By Bowen or Igenex labs? Do you live in a Lyme infested area? I assume they tested him for B12 deficiency - make sure they did the best test they could and visit Sally Pacholok's thread on B12 misdiagnosis - this can cause severe neurological problems. I am so sorry for all you must be going through. I am sorry I cannot offer a diagnosis, I do want to suggest trying a treatment called NAET and see if it helps him. NAET is a noninvasive treatment that can help get the body back into balance. It is NOT a replacement for Western treatment or diagnosis. It can be an excellent supportive treatment, especially when allopathic medicine offers no good options. Best wishesDOM
    acuann 3080 Replies
    • August 20, 2007
    • 06:11 PM
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  • I second acuann's notion. I went for Bioset therapy which is very similar to NAET and my symptoms are almost gone!! No kidding. www.naet.com for a practicioner in your area also www.bioset-institue.com get this boy some help, he needs it and so did I someone here recommended it and I went. I now have my life back after years of deteriorating like this boy. Only difference is, I didn't use a w/c. Best of luck,mommy cat
    mommy cat 1654 Replies
    • August 23, 2007
    • 01:52 PM
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  • kglee- please follow the advice above. The Lyme rate in the southern New England area is high, as Lyme CT is about 70 or 80 miles south of the Worcester MA area. And Bowen and Igenex are, IMO, the most reliable labs by a long shot.And you may want to do it ASAP. If positive, find a Lyme literate doc in the area. Advanced cases will not be helped much by drugs. You may also want to visit www.lymenet.org for more info. I am finding a good number of cases using some specific computerized testing. Good luckRalph, aka Dr. Gus
    Anonymous 42789 Replies
    • August 23, 2007
    • 07:26 PM
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  • Two questions. How old is the boy and does he drink any diet pop or eat any sugar free food?
    sojourner 8 Replies
    • August 23, 2007
    • 08:27 PM
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  • any new update on this boy on his findings and conditions?
    Anonymous 42789 Replies
    • September 29, 2007
    • 06:38 AM
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