Discussions By Condition: I cannot get a diagnosis.

Bone pain, fatigue, weight loss... could this be strep?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • January 31, 2009
  • 08:11 PM

I am a 31 white female in good health other than overweight (lifetime struggle).
I have been dealing with these symptoms since early October. My doc ran a lot of blood work 2 months ago and nothing was abnormal. SHe also ordered an ultrasound of spleen (which they did all abdominal organs -- only finding was gall stones) and of lymph nodes (had right axillary lymphnode removed for biopsy - negative). Out of ideas, she ran a strep titer which came up positive (normal 0-200, mine 390). I am taking the antibiotics, but am not improving... and my gut is telling me this isn't strep. My symptoms and tests are below... any suggestions are appreciated!

The main symptoms are moderate to sever fatigue and severe bone pain (most significant in spine, ribs, & hips) that is now causing break through pain despite 800mg of ibuprofin every 4 hours (doctor has warned cannot keep taking it much longer due to kidney risk) and darvocet at night. In addition I have lost almost 15% of my body weight unintentionally (given I am overweight, it's the only symptom I don't mind). I frequently get cold sweats during the day and occassional night sweats as well. I am bruising more easily and minor scratches and such take forever to heal and usually scar (was never like that). Lately I have started getting dizzy spells too.
My PCP has run a multitude of blood tests in oct 08:
CBC - normal with with RBC and platelets reading the lowest number to be in normal range
Sed Rate - normal
Periferal blood smear - normal
ANA - negative
RA - negative
Von Willenberg - negative
Epstein Barr - negative
Mono - negative
CMV - negative
CLL panel - normal
metabolic panel - normal
kidney and liver function - normal
There was also a urinalysis done - normal (no protein) also in October.

I had had an x-ray and follow-up mri scan in August because of a pain flair up from a shoulder injury. Shoulder was fine on x-ray, less arthritis and bursitis, but t-spine showed a compression fracture (which mri showed as only compression, NO fracture). Ironically, that part of my spine is not where my pain is. These symptoms started about a month or so later toward the end of october.

My doctor has not done any other x-rays, mris, bone scans, or anything else to actually look at the bones since that one back in August (or early sept) and none of the original blood work has been rerun since late october/early november.

The bone pain has increased since all this has started. I am just not sure how long to give the anitbiotics (12 day course, a week into it now) before I question if the strep had anything to do with this. SUGGESTIONS? Do I push for a scan of some sort? I am at a loss and feeling worse. THanks for reading.

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6 Replies:

  • You should also have your doc check you for: Cpn chalmydia pneumonia (respiratory bug), mycoplasms, HHV 6 reactivation (roseola); You may have a hidden strep infection, and or even a tick born illness; research, research and never give up!grace,
    graciewake 1 Replies
    • February 13, 2009
    • 09:44 PM
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  • Yes,push for x-rays of your spine,ribs,and hips.
    richard wayne2b 1232 Replies
    • February 14, 2009
    • 06:23 PM
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  • You shouldn't be on over 800 mg of ibuprofen 3 times a day!
    richard wayne2b 1232 Replies
    • February 14, 2009
    • 06:25 PM
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  • he main symptoms are moderate to sever fatigue and severe bone pain (most significant in spine, ribs, & hips) that is now causing break through pain despite 800mg of ibuprofin every 4 hours (doctor has warned cannot keep taking it much longer due to kidney risk) and darvocet at night. In addition I have lost almost 15% of my body weight unintentionally (given I am overweight, it's the only symptom I don't mind). I frequently get cold sweats during the day and occassional night sweatshttp://kona.kontera.com/javascript/lib/imgs/grey_loader.gif as well. I am bruising more easily and minor scratches and such take forever to heal and usually scar (was never like that). Lately I have started getting dizzy spells too.The dizzyness and chills (night and day sweats) can be a result of the gallstones. More easily bruising can be because your red and platelet count are at the low end of normal, or the ibuprofen. Taking longer to heal could also be a result of the blood counts.....or the removal of your lymph node. Did they remove the whole axillary node or just take a sample? You say you were diagnosed with arthritis in your shoulder? Could be systemic, notably affecting your weight-bearing joints like your hips and spine (osteoarthritis). The higher weight contributes to the stress on these joints. How old are you? I don't know about the fatigue or weight loss...but when I'm not feeling well, I get extra tired and don't eat as much. I agree that obtaining an x-ray or MRI of the affected areas would be beneficial....but it seems to me as if your symptoms, for the most part, are explained. You might ask for a blood test called ANA to rule out some rheumatoid illnesses. Also, an arthography can be more beneficial than a normal x-ray-- it's another imaging technology that uses a contrast dye to better identify problems within joints.Best of luck to you! :)
    Harmonium 322 Replies
    • February 14, 2009
    • 06:53 PM
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  • I am a 31 white female in good health other than overweight (lifetime struggle).I have been dealing with these symptoms since early October. My doc ran a lot of blood work 2 months ago and nothing was abnormal. SHe also ordered an ultrasound of spleen (which they did all abdominal organs -- only finding was gall stones) and of lymph nodes (had right axillary lymphnode removed for biopsy - negative). Out of ideas, she ran a strep titer which came up positive (normal 0-200, mine 390). I am taking the antibiotics, but am not improving... and my gut is telling me this isn't strep. My symptoms and tests are below... any suggestions are appreciated!The main symptoms are moderate to sever fatigue and severe bone pain (most significant in spine, ribs, & hips) that is now causing break through pain despite 800mg of ibuprofin every 4 hours (doctor has warned cannot keep taking it much longer due to kidney risk) and darvocet at night. In addition I have lost almost 15% of my body weight unintentionally (given I am overweight, it's the only symptom I don't mind). I frequently get cold sweats during the day and occassional night sweats as well. I am bruising more easily and minor scratches and such take forever to heal and usually scar (was never like that). Lately I have started getting dizzy spells too. My PCP has run a multitude of blood tests in oct 08:CBC - normal with with RBC and platelets reading the lowest number to be in normal rangeSed Rate - normalPeriferal blood smear - normalANA - negativeRA - negativeVon Willenberg - negativeEpstein Barr - negativeMono - negativeCMV - negativeCLL panel - normalmetabolic panel - normalkidney and liver function - normalThere was also a urinalysis done - normal (no protein) also in October.I had had an x-ray and follow-up mri scan in August because of a pain flair up from a shoulder injury. Shoulder was fine on x-ray, less arthritis and bursitis, but t-spine showed a compression fracture (which mri showed as only compression, NO fracture). Ironically, that part of my spine is not where my pain is. These symptoms started about a month or so later toward the end of october.My doctor has not done any other x-rays, mris, bone scans, or anything else to actually look at the bones since that one back in August (or early sept) and none of the original blood work has been rerun since late october/early november. The bone pain has increased since all this has started. I am just not sure how long to give the anitbiotics (12 day course, a week into it now) before I question if the strep had anything to do with this. SUGGESTIONS? Do I push for a scan of some sort? I am at a loss and feeling worse. THanks for reading.Have you been checked for celiacs disease?
    Anonymous 42789 Replies
    • September 25, 2009
    • 02:39 AM
    • 0
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  • I had all of your symptoms - lost 20 pounds - fatigue - bone pain - eliminated gluten (was already vegan) and all symptoms disappeared - didn't gain weight back but I think that's because I have such a clean diet and workout. If I have gluten all symptoms return plus abdominal pain. I've never been checked for celiac and don't necessarily think I have celiac but I think I have gluten intolerance. Perhaps eliminate gluten ( I suggest lactose and corn too since body will treat these like gluten).
    Anonymous 1 Replies
    • August 10, 2014
    • 07:06 PM
    • 0
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