Discussions By Condition: I cannot get a diagnosis.

Bone Pain

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Hammad
  • July 11, 2008
  • 07:11 PM

Ladies and Gents;),

I sincerely hope you would be able to help me out with any advice.:confused:

My mother suffers generally from severe pain in her bones. Mainly in hands, arms, forearms, knees. She also complains from a burning sensation in the mentioned parts. She does have a back problem as well. We've consulted many doctors but they dont really have a fixed solution. Most recommend Celebrex the medicine. Even this has shown some results however not always. :(

So I just wanted to check if anyone here could suggest any exercises to deal with these pains? Or any medicines in your experience which have proved to be helpful!? Or any other words of advice!? Would be very kind of you. (Please dont tell me to consult the physio/Dr. again as we have already to a great extent!)

Thank you all :D

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7 Replies:

  • I am not sure, but it may be worth looking up fibromyalgia. This is also often related to low thryoid hormone (though not always) and it may be work check out that as well. Joan
    Joan5555 316 Replies Flag this Response
  • My mother suffers generally from severe pain in her bones. Mainly in hands, arms, forearms, knees. She also complains from a burning sensation in the mentioned parts. She does have a back problem as well. We've consulted many doctors but they dont really have a fixed solution. What's been her diagnosis? RA?? or something else?
    taniaaust1 2267 Replies Flag this Response
  • i am sorry, what's an RA? her diagnosis has been that she has a cervical issue - backbone problem...her neck is too straight...needs a bend...has had three ceasarians, which messed her back a lot. :mad:
    Hammad 2 Replies Flag this Response
  • thanks for the more info. For her wrists etc has she had arthritis ruled out? RA=Rheumatoid Arthritis.. osteroarthritis is also another possiblity (scan can rule that out). Has arthritis been ruled out? (it's hard for anyone to give suitable suggestions on helping her if we dont know her diagnoses or what has been ruled out).
    taniaaust1 2267 Replies Flag this Response
  • Hello there! Before your mother takes any drugs for osteoporosis, please have her request bone scans of her long bones (thighs, arms, chins) or even a simple x-ray of these areas may help to lead doctors to a proper diagnosis. My husband had same complaints of pains where your Mother has pain and it took three or more years but finally was diagnosed with Erdheim-Chester Disease (ECD). This is a very rare disease and few doctors have ever heard of it. It is a 'histiocytic' disease (tell your doc that) so they can begin to look for something less obvious than the typical osteoporosis. When women complain of these pains, it is always suggested and then fibromyalgia but it can be more serious. I do not tell you this to freighten you, but most doctors only look for the easy to find illnesses, they do not look beyond what is common. You may want to research Histiocytosis - there are three types, one found in children, another, Langerhans Cell Histiocytosis (LCH) and then non-Langerhans Cell Histiocytosis (ECD). Good Luck in getting a proper diagnosis. Please stay figilent. If you want more info, you may email me at ceosit@bulloch.net - please put ECD in the Subject line. Mikeandecd
    mikeandecd 7 Replies Flag this Response
  • Appreciating your replies.:) No none of that has beeen diagnosed. Joints and bones are just fine according to the tests. And no other specific diagnoses have been derived. Thats what irritates me that how come in todays modern and supremely advanced world we are unable to come with a solution. There must be a solution.:confused:
    Hammad 2 Replies Flag this Response
  • Hammad - They are looking for joint pain - you said you mother has bone pain. They must do a bone scan that looks inside her bones to see if she has ECD. Be persistant to get this scan and ask for a CT-PET scan. Good Luck Mikeandecd
    mikeandecd 7 Replies Flag this Response
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