My 16 yo son has violent tremor episodes which affect numerous muscle groups, especially his back and abdomen, arms and legs, and neck. In the throes of these episodes, he can appear like he's on a mechanical bull because he's being pushed about by the tremors. The tremor began in June and was limited to only his left forearm, the whole body involvement is more recent; both were sudden onset.
He's had an array of diagnositc testing, including: head CT, head and neck MRI, blood tests for metals, Lyme's, thyroid and more. All studies were normal.
We've seen our pediatrician, a neurologist, and an early onset movement disorders specialist. Have tried
He's an active 16 yo, does well in school, is a musician, rows, has a "normal" amount of stress, has good friendships, etc.
I'm not sure what else to say, but I'm desperate to help him. Right now his only choices are to suffer or be sedated most of the time.
Open to ideas. So tired of no answers.
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