Discussions By Condition: I cannot get a diagnosis.

Blue lips and fatigue

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: kissandra
  • October 17, 2009
  • 06:44 AM

My son is 5 and when he cry's his lips turn blue. His doctor did an oxygen test and said he's fine. He's height and weight are in the less than 10 percent tile. He's very small but his doctor said he's fine. And he's often out of breath. Complains that his legs hurt when walking short distances and will sit at any given chance. His doctor says that he's fine. But is he really?? It doesn't seem normal. My 2 year old girl can out run him and is catching up in height and weight. What are the possible causes? or is this "normal"?

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  • My son is 5 and when he cry's his lips turn blue. His doctor did an oxygen test and said he's fine. He's height and weight are in the less than 10 percent tile. He's very small but his doctor said he's fine. And he's often out of breath. Complains that his legs hurt when walking short distances and will sit at any given chance. His doctor says that he's fine. But is he really?? It doesn't seem normal. My 2 year old girl can out run him and is catching up in height and weight. What are the possible causes? or is this "normal"? I saw your post, because is right on top of mine. I do NOT think your doctor is right. This sounds serious, to me! I first thought of oxygen, but then you said the doctor tested your son's oxygen. Was your son sitting at the time? Maybe the tests should be done if he is walking or after playing. To see how his body uses oxygen then. Did your doctor ask how long this has been happening? Or did it just start? How often does your son cry? Is he crying and coughing? Is he in pain? Has this been getting worse? Do his lips turn blue only with crying or exertion? A child can not always describe pain. Did your doctor test for pulmonary hypertension? Or pulmonary fibrosis? Something is causng this. The muscle pain might be related to this too. Leg muscle pain could be muscular dystrophy. Are his legs weak? What is your family history for lung or muscle diseases? Ask everyone in your son's father family, too. (I have undiagnosed muscle pain in my legs for 9 years-and I think I have an autoimmune disease!) I think you should take your son to another doctor, or an emergency room. Be sure to describe his symptoms as to when they happen, how long they have been happening, and if they are getting worse! And do NOT tell them about your doctor saying everything is fine. Because doctors do NOT like to contradict other doctors! You can not rely on the doctor. They make mistakes all the time. Let me know if this helps...send me a note. Also google your sons symptoms.
    jeanill 24 Replies
    • October 17, 2009
    • 06:17 PM
    • 0
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