Discussions By Condition: I cannot get a diagnosis.

Blood Pressure behaving weird

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: AlexHaden
  • February 22, 2008
  • 10:23 PM

Ok,

I was diagnosed with high BP around 9 years ago, as when i went to the doctors it was showing at 140/99

I was placed on 10mg Ramipril and 1.5mg Benzoflouradzide

Last week i was in hospital to have my gallbladder out, and as part of that they told me not to take my BP medicine as it can affect the anathesia.

Anyway cue surgery, and recovery. day after surgery, BP still low and not really going above "normal" so they asked me not to take my BP medicine and go see my GP.

Anyway so i go see my GP and they suggest not taking my tablets for a few days and home monitor with a home BP monitor.

Now onto the weirdness.....

While im sitting or resting, or lying down - my bp is 130/70 (average)

which i would say is normal.....

BUT while im standing and moving around the diastolic rockets to around 98-105 which is very bad.......

130/100 is kind of not good.....as soon as i sit down, back to 130/70

That would explain why while i was on my tablets, while i was lying or sitting i was suffering from indications of low blood pressure, as the tablets would have dropped it considerably.....

Anyway doc's want to put me back on tablets to cover while im standing high part - but they dont seem that interested in investigating the reason for this, i can understand a slight rise but over 35 on the diastolic???

Any opinions out there?

Thanks

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8 Replies:

  • ohhhhhhhh you too, i have the same thing happening but much worst.. on activity of any kind.. mine is going up as high as 176/138 on standing about or just walking to another room. Ive been told I dont have high BP thou as it goes low at times. A specialist the other day, was very surprised and seeing my results and told me I have the widest BP fluctuation he's ever seen but he didnt suggest for me to take anything and just refered me back to doctor (doctor who dont have a clue about it). Specialist did say that this BP problem is caused by me having a sympathetic nervous system dysfunction. I actually think no one knows what to do for this?? i posted about this asking for advice on this site a several days back.. i'll find my post and cut and paste the link and also cut and paste the link to another medical site..where i've also posted a query about it, hoping a doctor there can advise me on this.
    taniaaust1 2267 Replies
    • February 23, 2008
    • 00:04 AM
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  • http://forums.wrongdiagnosis.com/showthread.php?t=26027http://www.medhelp.org/posts/show/440890?post_id=post_2534480 the above links are where i posted days back, requesting for help, to try to find out the answer to the BP problem. This problem is quite rare.. doctor wouldnt even believe me that it was going on.. I had to take part in a study which done the necessary monitoring I needed.. just to prove to them that I did have this issue going on!! Being so unusual.. one doctor now (thou specialist has now vertified it due to my results) still dont believe it. IT ISNT A HIGH BP PROBLEM! To have what is "medically termed" as having high BP.. one BP cant go falling low, the lower readings are taken in account. (sorry if im appearing very frustrated by my post.. I Am... doctors never seem to know what to do about me and the weird symptoms I have).
    taniaaust1 2267 Replies
    • February 23, 2008
    • 00:16 AM
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  • Thanks for all of the information. I bet that my GP will just want to put me on tablets again - thats all they seem to want to do. control the symptoms, but not find the cause. I'll let you know how i get on.
    AlexHaden 6 Replies
    • February 23, 2008
    • 07:55 PM
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  • I think your blood pressure is all wacked out because your body is stressed, courtesy of the wireless boom. You are probably living within the main beam of a cell phone mast or being exposed to wireless internet, or some other source of EMF/RF. well i live out in the country and dont get the same kind of exposure as most people would. I dont have a wireless phone and up until a few mths ago, I didnt even have a mobile phone!! (as my yogi teacher way back, showed me, got me to feel, what damage they do to energy fields, ive had training to be able to feel energy fields as part of the auric healing I used to do). There is no wireless internet here. My BP problem has been going on at least a year (as i knew about it before doctors 24 hr test.. due to my nannas BP monitor).. so that is WELL BEFORE i got the mobile phone. I felt my blood pressure go up while digging a couple of shrubs for my neighbor before I knew anything about ES. Her yard's readings were sky high. You felt?? your BP go up? That is just an assumption that ES caused it to go up unless you were monitoring it at the time and besides.. if you are out digging/working hard.. one would expect BP to go up anyway!!! That's just logical.
    taniaaust1 2267 Replies
    • February 24, 2008
    • 03:38 AM
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  • FINALLY after 2 yrs of searching looking for answers!! Ive finally found the answer to my weird BP problem (which my CFS is causing) when a CFS online friend who also has weird BP issues.. sent me a link. **i feel like throwing a party lol" and yes that other specialist was right.. it does appear to be a sympathetic nervous system dysfunction in my case caused. The condition thou ive FINALLY found out I do have going on with BP is called "ORTHOSTATIC DIASTOLIC HYPERTENSION", it's one of the four different ways "orthostatic intollerance" issues can manifest. It's one of four different BP problems which ones with CFS get! thou a much rarer way orhtostatic intollerance presents in CFS (thou i do get POTS like many CFS patients as well). It is connected with certain other conditions can cause too eg more seen in diabetics... but unfortunately thou.. hardly no doctors know about this condition and it's only been ever written about in medical journals since sometime during the 1980's. And the problem can be in fact dangerous (something which I was already feeling and concerned over) and studies have shown that ones who have it have a higher risk of silent heart attacks (and higher death rate) and higher stroke risk! I probably should be receiving treatment for this as it's very possible my BP is going up MUCH higher than the 176/138 it's been noted as doing in 24 hr test in which i only was measured on standing (when i know i always get the issue) twice. Orthostatic diastolic hypertension. The lower number of the BP often reflects the systemic resistance, and while standing many persons with OI and CFS will raise their lower BP number (diastolic) in an attempt to push blood up to the brain. Sometimes this is dramatic. One patient being followed with CFS had a low blood volume, about 60% of normal. While lying down, his BP was 140/80. After standing, his BP rose to 210/140 before we made him lie down. His pulse went up to 140 bpm. He felt rotten but refused to sit down by himself. As an aside, everyone thought he was a fruitcake - a healthy looking man who said he felt poorly and couldn't work. He was denied disability as usual. Yet when we did the test, he was so determined to stand up I was afraid he was going to stroke out and croak. But he was standing with a BP of 210/140 and a pulse of 140 bpm. He is definitely not a wimp. After the test, we gave him a liter of saline in the office because he didn't look too good and his blood pressure fell to 90/60 after an hour or so. It is important to note that we had measured his volume the day before so we knew he was hypovolemic. Normally you would never give saline to someone with high blood pressure, it just makes it go higher. In the future, orthostatic testing will require being done in an intensive care unit because these numbers are so scary. Now it is ignored, and patients with CFS called fruitcakes! On further research.. I found out that there is two different catagories of the Orthostatic diastolic hypertension. The catagory some are calling the "dippers" eg dramatically low BP at times too it's going up and down.. is the ones which have the highest death rates. (im a dipper). Im about to contact the two main city hospitals where i live, who are doing the CFS studies on automonic nervous system issues and the BP stuff, who I was partaking in the studies..and who were very confused about my very weird results.. as they should know this info I've just found out. It's highly relevent and which the doctors and specialists do need to know........................... AlexHaden, i really hope you see this post and so hence get your answer too.. you have the same issue as me going on with the Orthostatic diastolic hypertension so yes doctors may be giving you completely the wrong treatment for your issue being that it's not "hypertension".. (I will probably need to be treated with IV fluids). "BUT while im standing and moving around the diastolic rockets to around 98-105 which is very bad......." umm seems like a mistake, did you mean 105/98 if so.. you need to read the following (another way orthostatic intollerance can manifest).. Orthostatic narrowing of the pulse pressure. The pulse pressure is the difference between the lower number of the BP from the higher number. For example, a normal person with a BP of 100/60 would have a pulse pressure of 40. It is actually the difference between the upper and lower number of the BP that circulates blood. If the pulse pressure drops below 18, it is abnormal and blood would not circulate in the brain well. We routinely see in our patients with CFS blood pressures of 90/80, thus a pulse pressure of 10. The current record holder is a young woman with CFS whose pulse pressure fell to 6 mmHg before she passed out. .................. For anyone else here with problems on standing and the 4 types of orthostatic intollerance there is (BP or heart rate) iwith CFS (and some other illnesses).. check out http://www.pediatricnetwork.org/medical/CFS/bell-commentary/oi-intro.htm
    taniaaust1 2267 Replies
    • August 28, 2008
    • 03:03 AM
    • 0
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  • I think your blood pressure is all wacked out because your body is stressed, courtesy of the wireless boom. You are probably living within the main beam of a cell phone mast or being exposed to wireless internet, or some other source of EMF/RF. I would seriously investigate microwave sickness. Do you have Microwave/EMR Sickness? Ha ha Blaze, I know you! You're the crazy lady on youtube who posted the video of her sprinkler that had a little rainbow and was shocked and appalled that the microwaves the government put out everyday caused radiation to come up through the ground "and cause random rainbows" You claimed water never caused mini-rainbows 40 years ago!!!! I also liked the other one where you filmed "microwaves" bouncing off your house. Best comedy on the internet!! You never cease to amuse me and all other intelligent folks, because your total idiocy and complete looneyness comes up with the wildest ideas!!! I'm a big fan. I bet you believe in the dangers of Dihydrogen Monoxide too!! Ban DHMO! its everywhere!!!!! As to the actual problem with the blood pressure, since you had no problems before you went off your meds, logic states you should go back on them. If they regulated your BP before, they should still. I would try going back on them (with Dr approval) and see if that solves the
    heckonwheels 2 Replies
    • August 28, 2008
    • 06:34 AM
    • 0
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  • I agree with you heckonwheels. It sounds like you weren't having any problems with your blood pressure before when you were on your medication. My dad has to take high blood pressure medication and it is something that you don't want to mess with. I would go and talk with a physician. There are plenty of places you can go to talk with someone about it. Somewhere like IU Health or another facility like that would be a good thing to look into. I'm not sure where you are from but there has to be a facility close to you to help you get that under control.
    JakeJohnson25 6 Replies Flag this Response
  • I agree with you heckonwheels. It sounds like you weren't having any problems with your blood pressure before when you were on your medication. My dad has to take high blood pressure medication and it is something that you don't want to mess with. I would go and talk with a physician. There are plenty of places you can go to talk with someone about it. Somewhere like IU Health or another facility like that would be a good thing to look into. I'm not sure where you are from but there has to be a facility close to you to help you get that under control.
    JakeJohnson25 6 Replies Flag this Response
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