Discussions By Condition: I cannot get a diagnosis.

Black Outs, Constant Headaches, Dizziness, and Fatigue

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: sarahc_12
  • July 10, 2010
  • 10:16 PM

I am a 16 year old girl and I have headaches every day, and I feel dizzy and nausas. At least once a day I black out, but I don't lose conciousness and it only lasts a couple of seconds. Pretty much I can't see for a couple of seconds. It usally happens when I am walking. There is another type of blacking out I do, but it only happens when I am menstrating. I'll start to feel nausas and dizzy then all of a sudden it feels like a bomb went off in my head, and I can't see for a about a minute and I can't hear anything but a really loud ringing noise. I can't stand up during it, and I am completly conscience through it. It is extremely painful.:( It takes about 2 minutes to pass.
I went to the doctor and they said that it was my heart and they performed a bunch of test, made me wait 3 weeks, and they all came back normal. The doctor said that they don't know what it is, So they refferred me to a cardiologists to get a second look. But I can see him because he is booked for a month. So that means more weeks of waiting and being in pain.Today I went to the doctor again because the headaches are getting worse. They hooked me up to a heart monitor for 24 hours, and are having me take a CT scan in a week. :mad:
My family thinks either epilepsy, heart problem, or brain tumor.
If any body has an idea of what this may be tell me because these headaches and black outs are getting so much worse, and these doctors are taking their sweet time and have no idea what they are doing.

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  • I am a 16 year old girl and I have headaches every day, and I feel dizzy and nausas. At least once a day I black out, but I don't lose conciousness and it only lasts a couple of seconds. Pretty much I can't see for a couple of seconds. It usally happens when I am walking. There is another type of blacking out I do, but it only happens when I am menstrating. I'll start to feel nausas and dizzy then all of a sudden it feels like a bomb went off in my head, and I can't see for a about a minute and I can't hear anything but a really loud ringing noise. I can't stand up during it, and I am completly conscience through it. It is extremely painful.:( It takes about 2 minutes to pass. I went to the doctor and they said that it was my heart and they performed a bunch of test, made me wait 3 weeks, and they all came back normal. The doctor said that they don't know what it is, So they refferred me to a cardiologists to get a second look. But I can see him because he is booked for a month. So that means more weeks of waiting and being in pain.Today I went to the doctor again because the headaches are getting worse. They hooked me up to a heart monitor for 24 hours, and are having me take a CT scan in a week. :mad:My family thinks either epilepsy, heart problem, or brain tumor.If any body has an idea of what this may be tell me because these headaches and black outs are getting so much worse, and these doctors are taking their sweet time and have no idea what they are doing.Have you had a complete blood count and checked for iron deficiency (i'm sure you would have) I think the CT scan is essential, and yes they all do things in their own time, but the CT scan will rule out anything extremely life threatening. Go to your doctor and ask for some pain relief, if you don't ask, you don't get. Blacking out during menstruation still points to anemia (due to loss of blood). The headaches sound like migraines, sometimes it can be a number of things put together that add up to being looked at as one thing and actually need treating as seperate things. Also request an anti nausea medication like Maxalon to help with that. Vertigo is another thing to ask about which involves balance, ringing in ears which causes nausea. Ask for symptom relief now and await for the CT scan (rather patiently) in the meantime I would lesson the amount of walking whenever possible and with the headaches try lying down in a dark room away from light. I wish you the best.
    Anonymous 42789 Replies Flag this Response
  • It may not be your heart as such but an issue with dysautonomia (autonomic dysfunction) such as something like "postural orthostatic tachycardia syndrome" (POTS). POTS will cause dizziness, headaches and nausea and other symptoms such as cant see for short periods etc. This is caused by the blood not getting to the brain properly (note.. this isnt dangerous unless you are unfortunate to pass out while doing something like driving). I have POTS and I get the same symptoms as you do due to it (but also a lot more as well..but my POTS is quite bad). Other things in your post which points to it could be likely to be POTS is you say it happens when walking (POTS most commonly happens when up on feet.. note the term "orthostatic" in the condition means standing when up on feet) and also menstration can make POTS worst. Also POTS commonly appears when in ones teens and is 5 times more common in females. A heart doctor will not usually pick up POTS as it isnt a heart issue as such .. you need something called a "tilt table test" or to be monitored by one who understands POTS during postural changes. http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome http://www.dinet.org/pots_an_overview.htm also has a lot of good info Also there is a good "mystery diagnoses" 3 part eposide on POTS at youtube (but that one had severe POTS). Note.. it can be very hard to find a doctor to send you for tilt table test and not many doctors seem to know about this condition.
    taniaaust1 2267 Replies Flag this Response
  • I just found the mystery diagnoses episodes for you as im fairly sure you may have POTS from the things you've said and i dont want you freaking out if it gets worst eg thinking you have a brain tumour or something due to not knowing what is going on, its very doubtful to actually hurt you and once you know you have POTS you can do things to help it. Note.. the following eposides are on one with severe POTS (i go unconscious too like in this video but most dont have it this bad.. one may just get dizziness and headaches from it if very mild) http://www.youtube.com/watch?v=NN3PB6N6oGYhttp://www.youtube.com/watch?v=I40-r3RpFjshttp://www.youtube.com/watch?v=PHydjGdg4XQ You can post back to me if you want advice on dealing with it.
    taniaaust1 2267 Replies Flag this Response
  • i came across another young girl with POTS when i was looking for those other youtube videos i posted before and just thought maybe you'd also find her video on it interesting, thou i dont agree with all she says (eg exercise only helps some with POTS with some it can make worst and BP issues arent always found)http://www.youtube.com/watch?v=Sqk3v6Bzc2g
    taniaaust1 2267 Replies Flag this Response
  • Have you had a complete blood count and checked for iron deficiency (i'm sure you would have) I think the CT scan is essential, and yes they all do things in their own time, but the CT scan will rule out anything extremely life threatening. Go to your doctor and ask for some pain relief, if you don't ask, you don't get. Blacking out during menstruation still points to anemia (due to loss of blood). The headaches sound like migraines, sometimes it can be a number of things put together that add up to being looked at as one thing and actually need treating as seperate things. Also request an anti nausea medication like Maxalon to help with that. Vertigo is another thing to ask about which involves balance, ringing in ears which causes nausea. Ask for symptom relief now and await for the CT scan (rather patiently) in the meantime I would lesson the amount of walking whenever possible and with the headaches try lying down in a dark room away from light. I wish you the best.My Daughter is 8 years old, she has been having the same things happen she will be sitting or walking around and she see's spots and they stomach will start feeling funny then she passes out for a few seconds with vomiting right after. She has been having this for over months. She has seem three different doctors and now on to a fourth. They has done alot of blood work everything came back normal. She has a EKG and also EEG and now having an ECO done. No answer's they at one point said it was MPV but that was proved to be wrong I have been waiting for months for an answer. She is always tired, has headaches and sometimes bloody noses as well. Some one please help.
    Anonymous 42789 Replies
    • October 29, 2010
    • 02:50 PM
    • 0
    Flag this Response
  • I am a 16 year old girl and I have headaches every day, and I feel dizzy and nausas. At least once a day I black out, but I don't lose conciousness and it only lasts a couple of seconds. Pretty much I can't see for a couple of seconds. It usally happens when I am walking. There is another type of blacking out I do, but it only happens when I am menstrating. I'll start to feel nausas and dizzy then all of a sudden it feels like a bomb went off in my head, and I can't see for a about a minute and I can't hear anything but a really loud ringing noise. I can't stand up during it, and I am completly conscience through it. It is extremely painful.:( It takes about 2 minutes to pass. I went to the doctor and they said that it was my heart and they performed a bunch of test, made me wait 3 weeks, and they all came back normal. The doctor said that they don't know what it is, So they refferred me to a cardiologists to get a second look. But I can see him because he is booked for a month. So that means more weeks of waiting and being in pain.Today I went to the doctor again because the headaches are getting worse. They hooked me up to a heart monitor for 24 hours, and are having me take a CT scan in a week. :mad:My family thinks either epilepsy, heart problem, or brain tumor.If any body has an idea of what this may be tell me because these headaches and black outs are getting so much worse, and these doctors are taking their sweet time and have no idea what they are doing.POTS seem interesting and might be possible also.you fit the age group also.but check whether you have tachycardia or not..nd have a CT these things are tricky
    sainin12 27 Replies
    • October 29, 2010
    • 06:31 PM
    • 0
    Flag this Response
  • I just found the mystery diagnoses episodes for you as im fairly sure you may have POTS from the things you've said and i dont want you freaking out if it gets worst eg thinking you have a brain tumour or something due to not knowing what is going on, its very doubtful to actually hurt you and once you know you have POTS you can do things to help it. Note.. the following eposides are on one with severe POTS (i go unconscious too like in this video but most dont have it this bad.. one may just get dizziness and headaches from it if very mild) http://www.youtube.com/watch?v=NN3PB6N6oGYhttp://www.youtube.com/watch?v=I40-r3RpFjshttp://www.youtube.com/watch?v=PHydjGdg4XQ You can post back to me if you want advice on dealing with it.Hi, this has been happening to me and i dont know how to deal with it... i dont have enough money to go to the doctor and get all the fancy testing... what can i do?:eek:
    eivory16 1 Replies
    • October 8, 2013
    • 04:20 PM
    • 0
    Flag this Response
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