Discussions By Condition: I cannot get a diagnosis.

bilateral facial numbness, vibration

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: gina58
  • January 12, 2011
  • 02:50 PM

For almost two years I've had intermittent, creeping bi-lateral facial numbness/vibration. It started out on the tip of my nose and tongue, but now involves the area from under the chin to under the eyes. It appears to be associated with left-side neck pain which I have from cervical stenosis. I've had brain and neck MRIs, seen rheumatologists, a neurologist, and was sent twice to the Spine Center, all at a major hospital. No one will acknowledge what I perceive to be a connection (an 80% correlation) between my neck pain and my facial symptoms, because apparently the nerves in that area of the neck don't control the face.

It is somewhat random, although I can induce it. It appears sometimes when I bend my head forward, or sit in front of the pc for extended periods (probably straining my neck). I can also induce it by lying on my side on the couch with my head propped up on a pillow (thereby putting my neck at an angle) -- from either side!

I was told yesterday by the NP at the Spine Center that she's never seen this symptom before. The neurologist gave up (he tried increasing the neurontin I'm taking for fibromyalgia but my fingers started twitching), and I just don't feel like they are pushing on my behalf. I'm sure they've ruled out the common stuff, but I don't know what the next step is.

Is there any one else out there who has experienced similar symptoms? Many thanks in advance for your help.

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3 Replies:

  • HmmI'm not sure if its related, but I've been dealing with a whiplash type injury/extended stretched ligaments in my neck (Hypermobility)This has caused alot of numbness and strange sensations in my head and face.Whenever i'm on a subway train moving fast and bumpy, I can feeling vibrations in my head from my neck.The only person who seemed to identify my condition in the first place was an excellent physiotherapist.I also went to a neurologist and had an MRI which apparently showed to damage in these areas.What I've learned is that irritation in the neck can cause inflammation in the muscles in the neck/upper back, which then presses on nerves.This has all caused me various numbness, tingling, burning, and dizziness in my arms, neck, head and face.I can't imagine how anything related to the neck, could not be connected to the face in some way.Perhaps seek out a physiotherapist who specializes in neck injuries, and see what they say.My physiotherapist also does acupuncture which has help immensely.Hope this helps!
    Anonymous 42789 Replies
    • January 13, 2011
    • 09:32 PM
    • 0
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  • For almost two years I've had intermittent, creeping bi-lateral facial numbness/vibration. It started out on the tip of my nose and tongue, but now involves the area from under the chin to under the eyes. It appears to be associated with left-side neck pain which I have from cervical stenosis. I've had brain and neck MRIs, seen rheumatologists, a neurologist, and was sent twice to the Spine Center, all at a major hospital. No one will acknowledge what I perceive to be a connection (an 80% correlation) between my neck pain and my facial symptoms, because apparently the nerves in that area of the neck don't control the face. It is somewhat random, although I can induce it. It appears sometimes when I bend my head forward, or sit in front of the pc for extended periods (probably straining my neck). I can also induce it by lying on my side on the couch with my head propped up on a pillow (thereby putting my neck at an angle) -- from either side! I was told yesterday by the NP at the Spine Center that she's never seen this symptom before. The neurologist gave up (he tried increasing the neurontin I'm taking for fibromyalgia but my fingers started twitching), and I just don't feel like they are pushing on my behalf. I'm sure they've ruled out the common stuff, but I don't know what the next step is. Is there any one else out there who has experienced similar symptoms? Many thanks in advance for your help.My daughter had facial numbness, and she ended up having MS. Get a sencond opinion right away, and get your MRI's in case they use them to compare to new ones. Good luck
    Anonymous 42789 Replies
    • January 15, 2011
    • 11:06 PM
    • 0
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  • I am having same EXACT symptoms! Did you ever get a diagnosis. My doctors have given up helping me. This has been going on for a year now. Please let me know what
    you have found out. You are my only hope now. Thanks a lot for any info you have.













    Anonymous 1 Replies
    • November 8, 2014
    • 03:36 PM
    • 0
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