For almost two years I've had intermittent, creeping bi-lateral facial numbness/vibration. It started out on the tip of my nose and tongue, but now involves the area from under the chin to under the eyes. It appears to be associated with left-side neck pain which I have from cervical stenosis. I've had brain and neck MRIs, seen rheumatologists, a neurologist, and was sent twice to the Spine Center, all at a major hospital. No one will acknowledge what I perceive to be a connection (an 80% correlation) between my neck pain and my facial symptoms, because apparently the nerves in that area of the neck don't control the face.
It is somewhat random, although I can induce it. It appears sometimes when I bend my head forward, or sit in front of the pc for extended periods (probably straining my neck). I can also induce it by lying on my side on the couch with my head propped up on a pillow (thereby putting my neck at an angle) -- from either side!
I was told yesterday by the NP at the Spine Center that she's never seen this symptom before. The neurologist gave up (he tried increasing the neurontin I'm taking for fibromyalgia but my fingers started twitching), and I just don't feel like they are pushing on my behalf. I'm sure they've ruled out the common stuff, but I don't know what the next step is.
Is there any one else out there who has experienced similar symptoms? Many thanks in advance for your help.