Discussions By Condition: I cannot get a diagnosis.

Been sick for over a year... plz help me and many others by looking at this.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • October 8, 2006
  • 10:50 PM

Off the top of my head, i know about 5 ppl that share the same problem as me, and those 5, know many more.

It all started about november of 05 and persists till this day.

Chronic dizziness,(all day long... All day) and attacks of verdigo.(not often, but when they hit, im throwing up for hours and i cant get up off the floor/coutch) Tenderness of the head and neck when not feeling well;(feels like getting hit in the head with a hammer, when simply pressing on the side of your head) I have been getting head achs often, far more often than usual.

I have been diagnosed with having the beginning stages of meneiars disease, at age 21; but the testing for the disease all came back negative. I also have seizure disorder from 1996, and my eeg's and MRI all came back neg. I am growing more frustrated each day.

It very hard to get to work, hard to get to school, hard to live my life, and the same applyes for the ppl i know. Any informiaton about this; please, my email is BikeShopGuy@aol.com conctact me. Your help would be greatly apprichated, if i could; i would give you the world back in return for your time.

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5 Replies:

  • maybe allergies mold ragweed stuff like that..check into that F3PH2S
    Anonymous 42789 Replies
    • October 13, 2006
    • 02:59 AM
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  • take some bendaryl and see if you notice a difference
    Anonymous 42789 Replies
    • October 13, 2006
    • 02:59 AM
    • 0
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  • The people who posted below are *takes a deep breath* miseducated, it seems. I'm sorry about that. I've been sick for 6 years and am in the same boat you are in. My (awesome) doctor in so-cal is saying "MS" and my new doctor, who I rather dislike, in no-cal is saying "post-encephelo-something or other". I've been diagnosed with Fibromyalgia, possible tertiary lyme disease, petit-mal seizure disorder, chronic atypical migraine, central pain disorder, un-classified autoimmune disorder, post-infectious disease...probably more things if I had the energy to conjure up memories I don't wish to experience. I have had minor success at managing this type of illness in myself and in others, but I do not pretend to know any more than anybody should who is somewhat educated in the fields of natural medicine, chinese medicine and nutrition. People will tell you that it's just due to "candida", or a bad diet, or poor posture; that it has a psychosomatic origin, or stems from some personality disorder, all of which, to put it mildly, is utter bull-***t. Due to my inclination towards a healthy life-style and the areas in which I have lived, I have made friends with those who share the same life-style and interests, several of which are also ill. I can tell you, our no-sugar, no-wheat, half raw-half cooked/traditional chinese diets combined with recuperative yoga and meditation may help, but they ain't gonna fix something that has a serious and complex origin and pathology. I don't think it's proper that I continue here, so all I will say is that I take you seriously and believe that you are truly, seriously ill, like me and so many others and I too think every day and honestly, probably every hour or more about validation/medication/relief/a cure/etc. If you would like to talk to me, my aim is adreamofform, and my email address is calculatedeccentricity@yahoo.com. Take care.--Quinn
    Anonymous 42789 Replies
    • October 13, 2006
    • 06:55 AM
    • 0
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  • You may want to consider the following - - an inner ear disorder can cause vertigo everyday to the severity that you describe. I have a friend who was diagnosed with this condition. I also had a bout of vertigo for about 3 months which was diagnosed as a temporary inner ear disorder. It went away on it's own. It was awful because the bed spun every time I got up. - Because you are having head pains, I would urge you to request a head/neck scan immediately. I know of 3 men mid-forties, who were diagnosed with glioma brain tumors. Tumors can cause pain, dizziness, and nausea. - A less serious possibility - severe migraines. I was having migraines several days a week, which caused me terrible pain in different parts of my head/neck. The migraines triggered a nerve which made me feel nauseous and throw-up so I had to lay on the bathroom floor for hours. If you are sensitive to light and sound, when your head hurts, and you start throwing up, consider migraines. After being seen by a Neurologist & a pain doctor (anesthesiologist), I am now take daily an anti-seizure (Zonegran) med for prevention and upon getting a headache, I immediately take Immitrex nasal. Insist on being seen by a Neurologist who specializes in migraines. Disclaimer-I am not a medical professional. I am a patient with post-college degree and several medical conditions who reads medical literature for self-education. I only hope to shorten the research journey for other patients.
    scubagirl 2 Replies
    • November 4, 2006
    • 10:06 PM
    • 0
    Flag this Response
  • You may want to consider the following - - an inner ear disorder can cause vertigo everyday to the severity that you describe. I have a friend who was diagnosed with this condition. I also had a bout of vertigo for about 3 months which was diagnosed as a temporary inner ear disorder. It went away on it's own. It was awful because the bed spun every time I got up. - Because you are having head pains, I would urge you to request a head/neck scan immediately. I know of 3 men mid-forties, who were diagnosed with glioma brain tumors. Tumors can cause pain, dizziness, and nausea. - A less serious possibility - severe migraines. I was having migraines several days a week, which caused me terrible pain in different parts of my head/neck. The migraines triggered a nerve which made me feel nauseous and throw-up so I had to lay on the bathroom floor for hours. If you are sensitive to light and sound, when your head hurts, and you start throwing up, consider migraines. After being seen by a Neurologist & a pain doctor (anesthesiologist), I am now take daily an anti-seizure (Zonegran) med for prevention and upon getting a headache, I immediately take Immitrex nasal. Insist on being seen by a Neurologist who specializes in migraines. Disclaimer-I am not a medical professional. I am a patient with post-college degree and several medical conditions who reads medical literature for self-education. I only hope to shorten the research journey for other patients.
    scubagirl 2 Replies
    • November 4, 2006
    • 10:08 PM
    • 0
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