Discussions By Condition: I cannot get a diagnosis.

been sick for 72 days need help

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: patch789
  • August 25, 2009
  • 06:55 PM

I have been sick for 72 days and no one knows what is wrong with me
it all started when I was playing tennis one day. I was playing and then boom out of nowhere I felt really weird like I I was going to faint and
was not really all there. it’s hard to describe. I also had brain fog like my head was in a fog. it was kind of like I was in a day dream.
I also got really shaky my hand were shaky and I felt nervous. my hands and feet got cold and sweaty(especially the feet) and it was hard to breathe.
it also was hard to like talk and move(as if your giving a speech type of feeling)
but then after 6 hours of rest it went away. 2 weeks later I was taking finals and then boom out of nowhere it hit me again.
I got through finals and went to sleep but when I woke up it was still there.
then 5 days later these things developed.
also I have photophobia and light bothers me and hurts my eyes. I can not go outside at all or all these symptoms get worse.
also I have anxiety somehow from this I get nervous when going to doctors and it is weird. I never had this happen. when I get nervous all these symptoms get worse
I pushed through finals and then told my parents 3 days later about it. we have been to all doctors and have no answers.
I have been tested for
30 different blood test
Lyme and mono and other viruses. tsh4 values and everything basically.

have been to
cardiologist
endo
ent

have taking
ct of head
ct of heart
ultra sound of kidneys
I went to a homeopathic doctor and he said it was adrenal fatigue and gave me stuff. it helped but just a little bit. I had a 24 hour saliva test done at sanesco labs and it showed lowcortisol in morning and 12-2 and high in evening.
I then researched and told my endo that I wanted hydrocortisone.
he put me on 5mg and gave me a acth stim test.
he said the result were fine, but I am not sure.
my results were 15.9 baseline and then 24.1 after 60 of the injection.
he said they were fine but I read they should of started at 20 and doubled.
the hydrocortisone has helped the most but I still can't go outside.
this week I am having a mri of brain and seeing neurologist.
every day it seems like I have gotten a little bit better but not much.
I am basically stuck in my house for 72 days now



someone please help.

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10 Replies:

  • I also want to add that I am 18 and a male.also I had all my hormone levels checked by a 24 hour urine test and all those are fine.also I have been to an eye doctor and I didn't let him dilate my eyes because I was so scared and light headed but he checked me out and said they are fine and have 20/20 vision.although recently my mom said I complained like 2 days before this all started happening that I had something stuck in my eye(but I don't remember)could that have caused this or not.please help me get diagnosed.I have also noticed a ton of people like me out their on this site with the same symptoms but the doctors say everything is fine.
    patch789 6 Replies
    • August 25, 2009
    • 07:36 PM
    • 0
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  • I also want to add that I was nauseas constantly for like the 1st month.but now when I get really shaky and nervous the nauseas comes but then goes away.I can't go outside an do anything because when I walk out the door I become more light headed and feel like I am going to faint. every once in a while it gets really bad for like 5 seconds(to where I now I will faint, and I am disoriented) and then goes away.also if I play video games or if I am on the computer it gets worse until I rest it off.also I was born with a coarctation of my heart so I had surgery when I was 4, and have never had problems since. due to this I have different blood pressure in each arm.my left arm is usally like 110and the right is 130.but every since I have been sick my left is 110and the right is 150(highest was 170)
    patch789 6 Replies
    • August 25, 2009
    • 08:09 PM
    • 0
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  • also one more thing I would like to add.about 30 days ago I had numbness on the right side of my face. it lasted 2 days and then has never returned. also I was off balance for a week and then that went away. I remember this stuff happened on the tennis day like 2 hours before it all went away.also this whole behaviour of me has been so weird because before this I was normal and played 3 hours of tennis a day.now I can't even leave the house and I am suffering in side the house to.
    patch789 6 Replies
    • August 25, 2009
    • 08:38 PM
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  • one more thingalso I have not been to the dentist in a while and have a lot of plaque on my teeth. could that cause all of this.also I noticed I used to be able to lie on my side on my bed while watching tv for like 30 minutes to 1 hour before my arm would fall asleep. but now it just takes like 4 minutes.the same thing with my leg. if I am in a position were it would fall asleep it does it like in 4 minutes instead of like not doing it or doing it in 30 minutes to 1 hour
    patch789 6 Replies
    • August 25, 2009
    • 09:30 PM
    • 0
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  • I have been sick for 72 days and no one knows what is wrong with meit all started when I was playing tennis one day. I was playing and then boom out of nowhere I felt really weird like I I was going to faint and was not really all there. it’s hard to describe. I also had brain fog like my head was in a fog. it was kind of like I was in a day dream. I also got really shaky my hand were shaky and I felt nervous. my hands and feet got cold and sweaty(especially the feet) and it was hard to breathe.it also was hard to like talk and move(as if your giving a speech type of feeling)but then after 6 hours of rest it went away. 2 weeks later I was taking finals and then boom out of nowhere it hit me again.I got through finals and went to sleep but when I woke up it was still there. then 5 days later these things developed. also I have photophobia and light bothers me and hurts my eyes. I can not go outside at all or all these symptoms get worse.also I have anxiety somehow from this I get nervous when going to doctors and it is weird. I never had this happen. when I get nervous all these symptoms get worseI pushed through finals and then told my parents 3 days later about it. we have been to all doctors and have no answers.I have been tested for30 different blood test Lyme and mono and other viruses. tsh4 values and everything basically. have been to cardiologistendoent have takingct of headct of heartultra sound of kidneysI went to a homeopathic doctor and he said it was adrenal fatigue and gave me stuff. it helped but just a little bit. I had a 24 hour saliva test done at sanesco labs and it showed lowcortisol in morning and 12-2 and high in evening.I then researched and told my endo that I wanted hydrocortisone.he put me on 5mg and gave me a acth stim test.he said the result were fine, but I am not sure.my results were 15.9 baseline and then 24.1 after 60 of the injection.he said they were fine but I read they should of started at 20 and doubled.the hydrocortisone has helped the most but I still can't go outside.this week I am having a mri of brain and seeing neurologist.every day it seems like I have gotten a little bit better but not much.I am basically stuck in my house for 72 days now someone please help.I am pretty sure you had better check out what anxiety is, I had all that for years
    jcjjjs 14 Replies
    • August 26, 2009
    • 01:37 AM
    • 0
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  • I am pretty sure you had better check out what anxiety is, I had all that for years It doesn't matter that you were playing tennis, it happened out of nowhere. You have a nerve that is out of place in your arm (tennis elbow, carpel tunnel) that goes to sleep when you lay down. check it out
    jcjjjs 14 Replies
    • August 26, 2009
    • 01:40 AM
    • 0
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  • I really don't think me feeling like this constantly is from anxeity. I think I have anxiety but something is causing that.jcjjjsyou say that a nerv in my arm is out of place. how can that happen and also can that cause the brain fog and "anxiety" I am having
    patch789 6 Replies
    • August 26, 2009
    • 02:32 AM
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  • sounds like panic attacks to me
    Anonymous 42789 Replies
    • August 27, 2009
    • 03:22 AM
    • 0
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  • Here goes, I'm not a doctor however, I had a lifetime of being undiagnosed. Anxiety and phobias come on out of nowhere for no reason and it isn't something you did or didnt do. Nothing can cause anxiety other than your brain not making enough seratonin to override the reaction that is happening. Mine started at a bowling alley, grocery store, etc. As far as doctors go, I saw enough for 20 people and this went on for 15 years. I was even hospitalized and if it wasn't for my MD calling in a psychiatrist (who only dispenses medication) I would have had my whole stomach cut open. This man diagnosed me in 1 hour. The eye thing keeps you inside but it also keeps Vitamin D from entering your body. Your arm is a nerve, could be coming from your neck, sounds like it is out of place chiropractors can adjust that. I had agoraphobia (can't leave your house because you get anxiety when you do), I didn't know it. I went to a week long outpatient stress clinic. They taught me that stress, anxiety and phobias can come out of nowhere for any reason. I got an antidepressant. It saved my life. Just look into it. I denied it for ten years (mostly to myself). I didn't know what it was at the time and it scared me. Just check it out. Were you diagnosed with your eye problem by an eye MD.I really don't think me feeling like this constantly is from anxeity. I think I have anxiety but something is causing that.jcjjjsyou say that a nerv in my arm is out of place. how can that happen and also can that cause the brain fog and "anxiety" I am having
    Anonymous 42789 Replies
    • August 27, 2009
    • 02:18 PM
    • 0
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  • okay so I got my super urine test back and omg.my testosterone level is 320 which he said should be about 700 for a 18 year old male. also It said my serotonin was 800 and the normal range on the test was 150-300also my gamma was 2200 and it said normal was 350-700no wonder I am so messed up.what should I do to fix these
    patch789 6 Replies
    • August 29, 2009
    • 03:40 AM
    • 0
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