Discussions By Condition: I cannot get a diagnosis.

Been sick for 2 1/2 years. Please help.

Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: billwin
  • June 29, 2008
  • 01:45 AM

Hello,
I'm 28 years old and have a wife and 2 yound boys. I have enjoyed good health my whole life until 2 1/2 years ago. I went on a missions trip to the Philippines. Stayed for 2 weeks. Felt fine when I came back. A few months later I was working out on a bowflex, and I broke my muscles down really far. I became very sick with strep throat and went and got an antibiodic. I came home and experienced bad chest pain and extreme flu symptons. I ended up in E.R. The Dr. thought I was having a heart attack and sent me for a emergency heart cath. Everything checked out good in my heart.

Long story short, I have been sick off and on ever since. I have seen numerous doctors and none seem to find anything besides the fact that I am overweight. I am 5'11'' and 280 lbs. I am a muscular guy but am losing a good bit of my muscle since I am always fatigued. My blood has been checked for alot of things but nothing shows up. I will list my symptons below.
Chest pain
Vision problems (Inability to focus)
Sore throat
fatigue
cold sweats
irregular bowles (Incomplete bowel movements while ill.)
Anxious thoughts

My symptons will still come and go, but I seem to have them more and more frequently now. I feel like I am not doing a very good job at anything right now. Any help would be appreciated.

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20 Replies:

  • My uncle went on a mission trip to the Philippines last year, and he, along with several members of his group, became very ill while still there. At one point he wasn't sure if he would ever make it back home! Where exactly did you stay while you were in the Philippines? I don't know much about the area, but will contact him with your symptoms and see if he can shed some light on what is going on with you. He was there for a couple of months and knows plenty of people who are still there. He will return next February, but this time plans to be very cautious. Have you been checked for parasites?
    Serendipity 3 Replies Flag this Response
  • Thank you for replying.I visited Manilla, Iloilo, and a small village in Capiz.I have been checked for parasites. The only parasite that showed up was a blastocystus hominis. Which is a very common parasite. The doctor treated it with flagyl. Any input would be helpful.
    billwin 10 Replies Flag this Response
  • Legionella pneumophila? (AKA Legionnaires' disease) do you have any pneumonia? if not then you have a sub form of Legionnaires disease known as Pontiac fever - which is caused by the same bacterium, but produces a milder respiratory illness without pneumonia which resembles acute influenza (the flu) this all seems to fit you perfectly. please get this checked out as Pontiac Fever can be FATAL over time, Legionnaires disease is more severe so i am thinking that its more likely that you have Pontiac fever. hope you find out soon, good luck
    Unreal 19 Replies Flag this Response
  • The doctor may have treated the parasite, but it does not always respond to the medication. You may still have it, along with a couple more that he doesn't check for. I think it's a parasite: the original and another unknown parasite.
    Monsterlove 2921 Replies Flag this Response
  • Thank you for your thoughts. I will mention these things to my doctor. I have had a stool sample taken. How else will they be able to detect if I have another parasite?
    billwin 10 Replies Flag this Response
  • I found this information online. I don't know if it will help you, but at least you could give these labs a call and see what they have to say. Can I get tested for parasites?There are only few laboratories in the USA, that we know of, which are competent to diagnose the presence of some parasites in the feces and in the intestines. BUT, not the presence of all species of parasites. Recognizing microscopic parasitic eggs in the feces is much harder job then finding bacteria, yeast or virus. "Good" labs are: Meridian Valley Labs.24030 132nd Ave. SEKent, Washington 98042(800) 234-6825Great Smokies Labs. (they have changed their name to Genova Diagnostics)18 A Regent Park Blvd.Asheville, North Carolina 28806(800) 522-4762You might also find a competent physician in your area by contacting these labs for that information.It is generally cheaper and easier to do herbal or Coenzyme Q10 parasites cleanse, then to diagnose the presence of parasites in the feces. If you do have worms, parasites cleanse will get them out, and that is the best diagnoses. Don't bother sending specimens to local laboratories.Ascaris Lumbricoides, large roundworm of humans, is the most common nematode parasite of humans, infecting an estimated 1.47 billion individuals. Pathology can result from pneumonia caused by the worm's migration through the lungs, blocking of the gastrointestinal track or the bile or pancreatic duct. Ascaris Lumbricoides is physically indistinguishable from Ascaris suum. Again, I don't know if this is what is going on with you, but I hope it will help to at least narrow things down. I hope you can track the cause of this soon and get back to feeling better. You're far too young to be dealing with this!
    Serendipity 3 Replies Flag this Response
  • It's hard to check for a lot of them, especially if they are in your tissues and not in your intestines. Talk with your doctor about a more thorough screening.
    Monsterlove 2921 Replies Flag this Response
  • My next doctor's visit is scheduled for July 14th. My doctor has agreed to send me for a MRI at that time. Will anything like that show up on an MRI? I know that alot of what I feel seems to be in my chest.
    billwin 10 Replies Flag this Response
  • Focus.After reading your case, there are many things that are too vague.you traveled and came back fine. many months later you experience the symptoms you have. 1.-how many months?you had a sore throat, you got antibiotics... after the antibiotics you had the chest pain???2. did the chest pain go away after you finished medications?3. was there ANY other indication that you had any chest related problems?? i.e pneumonia, esophageal spasm, aneurysm, anything else?you have now experienced the symptoms you list there (blurry vision, etc etc) for how long now? are all the symptoms there all the time? is there any that have resolved? is there any that are new? you may be relating your story bunching up everything, when you can have different things happening.one thing is for sure. you are too fat. some of these symptoms will go away when you are in your ideal body weight.update your topic, i'll keep on searching for answers.
    Anonymous 42789 Replies Flag this Response
  • Focus.After reading your case, there are many things that are too vague.you traveled and came back fine. many months later you experience the symptoms you have. 1.-how many months?you had a sore throat, you got antibiotics... after the antibiotics you had the chest pain???2. did the chest pain go away after you finished medications?3. was there ANY other indication that you had any chest related problems?? i.e pneumonia, esophageal spasm, aneurysm, anything else?you have now experienced the symptoms you list there (blurry vision, etc etc) for how long now? are all the symptoms there all the time? is there any that have resolved? is there any that are new? you may be relating your story bunching up everything, when you can have different things happening.one thing is for sure: you are too fat. some of these symptoms will go away when you are in your ideal body weight.update your topic, i'll keep on searching for answers.
    Anonymous 42789 Replies Flag this Response
  • Ok let me see here. I think that it was about 3 months after I came back from the Philippines that I became sick. The antibiodics were taken for a positive strep test. I did not experience chest pain until later that night. I became very ill and had extreme flu like conditions. I spent a week in the hospital as they tried to sort everything out. The doctors thought that I may have had a swelling in the lining around my heart but were unsure. It took me several months to recover from this "spell." Since then, I have had several "Spells." I no longer seem to have the recovery time where I feel perfectly good. I think that it may have something to do with the fact that I fatigued my muscles so much on the bowflex. My symptons grow as I continue to go about my life. For instance,Sore throat startsMild chest pain beginsCold sweats beginblurred vision comes nextGreater chest painIf I continue, I begin to lose some coordination and am unable to hold coherent thoughts. In regards to my weight, I know that I need to lose some weight badly. This does not explain why my symptons came on all of a sudden though or why I feel quite strong some days and almost helpless on other days. On a good day I can hike for miles through the woods. Unfortunately those days are now few and far between.Thank you for everyone's concern. Your help is greatly appreciated.
    billwin 10 Replies Flag this Response
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  • You say "if I continue, I begin to lose coordination......" My question is, if you continue what? If you doing something is causing this ("if I continue"), then just stop doing whatever it is that's causing it. No?
    brnbdry 14 Replies Flag this Response
  • By continuing I mean continue working, playing, doing anything but going to bed.
    billwin 10 Replies Flag this Response
  • billwin.. i hate to say this but it really sounds as if you have the same condition i have.. chronic fatigue immunity dysfunction syndrome also called chronic fatigue sydrome. The condition flares up when triggered.. over excertion will trigger it, doing too much can trigger it (all hallmarks of this condition). The illness is very much up and down eg i can go hiking too some days, other days im bedridden with it. (ive had to quit work thou and go onto full disability payments). It's very classical for this condition to start off flu like and it can have a suddenly onset (which it sounds you had) or a slow onset. This illness too can be progressive. There can be swelling about the heart with this condition, it's been known to cause death in CFIDS cases in very rare cases. (so probably dont concern yourself about that, just be careful). You are lucky right now..as thou i think you may have CFIDS.. i think right now it's mild! If you do have this.. you need to be very careful and try not to trigger off what is called "crashing" (when the condition worsens). You may need to rest at times during day to try to stop this from occuring. This illness is a serious illness and you need to find yourself a doctor who is knowledge in it. for more info on this illness. i suggest to go to www.immunesupport.com (they also have a great CFIDS forum there in which you can ask others for advice). If I continue, I begin to lose some coordination and am unable to hold coherent thoughts. and if one keeps on contining at this point and keeps on pushing with whatever one is doing.. one can end up having seizures or even going unconscious!
    taniaaust1 2267 Replies Flag this Response
  • Well I went to the doctor today. She agreed to send me for a ultrasound of my gallbladder. Additionally, she is getting the o.k. from my insurance to order at ct scan for my chest and an MRI for my head.I am trying to stay away from the CFS diagnosis now if I can. I do hear what you are saying and I am very afraid you might be right. I am taking out a long term disability insurance plan just in case. I'm afraid that the CFS diagnosis seems like a dead end.There is no cure for CFS is there? Also, my doctor mentioned that it is quite possible to test negative for a malaria parasite when you do in fact have one. You have to test at the right time. I am considering going to an immediate care to have my blood tested the next time I have a "Spell." I am also going to start a diary of my temperature and blood pressure every morning and evening. And I lost 2 pounds. (It's a start.) Thanks again for your interest,Bill in Atlanta
    billwin 10 Replies Flag this Response
  • I tried to reply earlier so if two replys show up please forgive me.I went to see my doctor yesterday. She agreed to order a ultrasound of my gallbladder which I will be having tommorow. She also agreed to order a MRI of my head and a CT scan of my chest.I have considered Chronic Fatigue Syndrom as the cause of my illness, but I am trying to stay away from that diagnosis now as it seems to be a deadend. I don't believe that there is any real cure for cfs is there? I continue to be amazed at how my whole perception of life is changed when I am ill. I am not even the same person. I like to joke around and have a good time normally, but when I am ill, I feel very lost. Any other input would be appreciated. You all have been great. Oh yeah, I lost 2 pounds. That's a start.Thanks, Bill in Atlanta, GA
    billwin 10 Replies Flag this Response
  • Ok this is my 3rd time trying to respond. I am going for an ultrasound on my gallbladder in the morning. I will post again if this one works.Bill
    billwin 10 Replies Flag this Response
  • Ok it worked so I will give you the whole story. My doctor also agreed to order a MRI of my head and a CT of my chest. Maybe something will show up.I am aware that many of my symptons sound like Chronic Fatigue Syndrom. I am really trying to stay away from that diagnosis now if I can. I feel like it is a dead end. There is no cure for CFS is there? I am really sorry to hear about you being on disability, but I can honestly say that I think I understand.I am hoping and praying that my gallbladder is in bad shape and they can remove it and all will be fine. Please keep the info coming it has been very helpful.Also,I lost a couple of pounds so that is a start.Thanks,Bill
    billwin 10 Replies Flag this Response
  • I have struggled with anxious thoughts most of my life and have been healed. I have recently had the blasto condition myself. May I suggest you get a test done to find the food your body needs to help you get your metabolism back in order, rather than focussing on the disease. Keep praying. I will agree with you for the answers you seek.
    Anonymous 42789 Replies
    • February 6, 2009
    • 10:22 PM
    • 0
    Flag this Response
  • I have struggled with anxious thoughts most of my life and have been healed. I have recently had the blasto condition myself. May I suggest you get a test done to find the food your body needs to help you get your metabolism back in order, rather than focussing on the disease. Keep praying. I will agree with you for the answers you seek.Thank you for the encouraging post. A lot has happened since I last posted. I have a new Dr. who really seems to know what she is doing. She is a pathologist, but she takes a homeopathic approach to medicine now. She has found my adrenal glands to be very fatigued, my liver to be stressed, my food allergies to be many, and my body to have unacceptable amounts of toxins. All verified through blood, urine, stool, saliva, and hair tests. The first thing that she did was to have me remove all simple starches i.e. white foods and all sugar from my diet. This helped me tremendously. Then she did a one month liver detox on me. Now we have removed the foods that I am showing some allergies to. I have also started a or chelation process to remove the toxins from my system, and I am taking some medicine to help my neuro transmitters work better.End result, I feel worlds better. I still deal with anxiety and restlessness but my energy has shot through the roof. I am now able to work out several times a week. I am getting some of the joy back in my life. I wonder if I need to make some life changes concerning my job in order to remove stress. I am thinking and praying about that. I know that there are a lot of scams in the natural medicine world, but I am so thankful that I have found a Dr. who has really been able to help me. If you are sick, don't give up! You do not have to accept sickness as a constant part of your life.
    billwin 10 Replies
    • February 7, 2009
    • 03:50 PM
    • 0
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