Discussions By Condition: I cannot get a diagnosis.

Baby developmental delay

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • May 2, 2009
  • 06:29 AM

Symptoms: baby who can't lift his neck at age 2 - also has tense muscles, rotten teeth (as he's teething, the teeth comes out rotten), vision impairment and hearing impairment and other sorts of developmental delay. Still no diagnosis after 2 years. Please help.

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3 Replies:

  • while pregnant did you consume ???sucralose, splenda and aspartame- found in diet sodaseverything really, even in gum and children's vitamins : \ it is poisonread about them on the internet check the symptoms for each one- disregard the Industry(company who made the product) advertisements on different sites that tell you they are safe - there are enough testimonials and people who will tell you on facebook groupsyoutubeand google that they were harmed by them and know because they were where you are and stopped eating them and now are better.Trial and error, they learned what was causing them these problems- now you know too!
    founddog 188 Replies Flag this Response
  • I have a degree in Educational psychology, and so I do know a bit about infant development.Your baby is obviously delayed. My hunch is the doctors have already ruled out cerebral palsy, and common genetic disorders. There are some metabolic disorders that I know have similar symptoms - generally involving lack of specific enzymes, or too many of an enzyme.Until your child has received a diagnosis and appropriate treatment, continue to advocate. I assume you have already seen a rheumatologist, a geneticist, and an endocrinologist, in addition to your child's pediatrician. If so, ask your pediatrician for referrals for second, third, and fourth opinions. It is also wise for parents to maintain a daily written record of behaviours, symptoms, etc. Sometimes you don't realize you're seeing a symptom - and a daily record can help the doctor get a bigger picture. It is also advisable to keep a video camera handy to catch moments, and also a digital camera. If you have evidence of symptoms that may not be acting up at the exact moment in a specialist's office, you will have a visual record for the doctor to review.It's been my experience that people like to share ideas on here, no matter how unrelated. I am not a physician and have no medical experience. I have seen children with similar symptoms, and generally they are cerebral palsy or the result of a metabolic condition. This is not always the case - and there are many disorders and diseases out there that will affect brain development in infants. My best advice is to look at doctors as people who want to help you, but who may not understand how. Provide all those you see with as much documented information as you can, and if possible, obtain a copy of your child's medical chart to have on hand if there is an emergency.Good luck.
    kramieinc 7 Replies Flag this Response
  • I find it hard to believe that you have not taken the child to specialists to determine deaf/blind/mental retardations. They can tell and your local school district can also run evaluations and provide all kinds of services. It's called Child Find.
    Monsterlove 2,921 Replies Flag this Response
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