Discussions By Condition: I cannot get a diagnosis.

B12 injections took away calf msucle cramps

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: chrismed1234
  • January 23, 2011
  • 06:48 AM

I am, in my late sixties, male, and for some years I had excruciating calf cramps at night - usually from stretching but also, sometimes, simply when a gust of cold air passed over my bed at night. They occurred once or twice a month at first, then eventually happened virtually every night. They were extremely painful and I would lose control, literally passing out from pain and screaming at the top of my voice. They lasted about five minutes. Together with this I have fibromyalgia, diabetes, glaucoma, pernicious anemia, rheumatoid arthritis, gastric reflux, lameness and pain in my legs, CIDP and so on. I have also noticed a general deterioration in my neurological system - loss of reflexes, mild incontinence, swallowing difficulties and so on. Now this is amazing..... I was diagnosed, inter alia, with severe Vitamin B12 deficiency and started getting B12 injections once a week. This helped but did not remove the cramps. I noticed that the longer the period between injections the worse the symptoms - tingling in the legs etc. I took matters into my own hands and now inject myself every third day with 1ml of Vitamin B Co. and 1 ml of vitamin B12. The recommended dose is once a day for a week, then once a month thereafter so my dose vastly exceeds the ineffective recommended dosage. But it works! Miraculously, the cramps have disappeared! I only had one relapse in two years - one week in which I had three cramps, once bilaterally. Now no doctor can explain why this treatment works and they simply look at me bemused. Of course it doesn't reverse the neurological damage - the eyes, the loss of reflexes etc - but it HAS stopped those terrible cramps. Now can anyone (doctor preferably) explain what is happening. What is the precise physiological mechanism behind this? Can it cause any long-term harm? Is this unique?

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  • I am, in my late sixties, male, and for some years I had excruciating calf cramps at night - usually from stretching but also, sometimes, simply when a gust of cold air passed over my bed at night. They occurred once or twice a month at first, then eventually happened virtually every night. They were extremely painful and I would lose control, literally passing out from pain and screaming at the top of my voice. They lasted about five minutes. Together with this I have fibromyalgia, diabetes, glaucoma, pernicious anemia, rheumatoid arthritis, gastric reflux, lameness and pain in my legs, CIDP and so on. I have also noticed a general deterioration in my neurological system - loss of reflexes, mild incontinence, swallowing difficulties and so on. Now this is amazing..... I was diagnosed, inter alia, with severe Vitamin B12 deficiency and started getting B12 injections once a week. This helped but did not remove the cramps. I noticed that the longer the period between injections the worse the symptoms - tingling in the legs etc. I took matters into my own hands and now inject myself every third day with 1ml of Vitamin B Co. and 1 ml of vitamin B12. The recommended dose is once a day for a week, then once a month thereafter so my dose vastly exceeds the ineffective recommended dosage. But it works! Miraculously, the cramps have disappeared! I only had one relapse in two years - one week in which I had three cramps, once bilaterally. Now no doctor can explain why this treatment works and they simply look at me bemused. Of course it doesn't reverse the neurological damage - the eyes, the loss of reflexes etc - but it HAS stopped those terrible cramps. Now can anyone (doctor preferably) explain what is happening. What is the precise physiological mechanism behind this? Can it cause any long-term harm? Is this unique? chrismed, B12 deficiency is a very misdiagnosed condition. If your B12 is low, which by all your symptoms, it is. Good for you for figuring out that the injections work. The thing is, you need more to get rid of the neuro symptoms. Here is a link to an information link from this website. Read and educated yourself. What kink of B12 is in your injections? Do not post there, just read. http://forums.wrongdiagnosis.com/showthread.php?t=62327 Check out all the basics and the list of symptoms. You will be amazed at how much b12 covers.
    cyndyd 458 Replies
    • January 23, 2011
    • 06:02 PM
    • 0
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  • This is the link to the B12 thread on this site. It is all people that have B12 deficiency. I sent you to the last most recent post, as there are thousands of posts. All there are in the same boat trying to help each other with knowledge. Doctors misdiagnose this problem very frequently. It is easy to diagnose and to treat. Most doctors don't go to vitamin deficiency. They call this things like fibromyalgia, or chronic fatigue syndrome. Give meds that have nothing to do with underlying cause. Treat each symptom alone. Much unnecessary suffering. Post here, and ask questions. There are many there to help with advise. Good luck. http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=1538
    cyndyd 458 Replies
    • January 23, 2011
    • 06:07 PM
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