Discussions By Condition: I cannot get a diagnosis.

auto immune maybe?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: funnyfarm
  • March 11, 2011
  • 02:24 AM

I will try to keep this short and to sweet in the hopes that maybe someone else has had similar symptoms go by undiagnosed.
43 year old woman, non smoker, slightly overweight and active in manual labor job. We farm and eat what we grow. (if that helps to paint a picture :)
1 year ago right side flank discomfort, but has grown to become painful, with the feeling of something under the bottom of the rib pushing up and out. My husband and I went on a high protein, high fiber, low fat diet. He lost 21 pounds, I gained 3 pounds. I gave up in January when I got so sick.
I have had zero energy to do anything for months.
in December I had elevated HCT, HGB, RBC and CRP. Urine was loaded with protein, blood and bacteria. I developed a rash on my torso (shoulders and neck/chest)that eventually showed up on my leg and inner arm and a spot on my back. This rash looked like poison ivy. I have random fevers accompanied with chills and icy white toes that never warm.
In January I presented to my doctor with what they thought was strep or flu like symptoms and an intense rash episode.
In February I had severe chest pain and left arm was heavy and hand was numb and tingly and short of breath. I was admitted and observed overnight with slightly abnormal EKG, enlarged heart and a spot in my upper lobe of my lung and a fever with photophobia.
Two weeks ago I presented to the ER again with shortness of breath and a fever and the rash was back along with heaviness on my chest. The xray confirmed the nodule in my lung with collapsed lower lobes and artifact in upper lobe.
Cat scan revealed absolutely nothing but the lung collapse. My HRT, HGB, RBC and CRP has doubled since December.
I do not respond to antibiotics, or steroids and the pain in my right side is itense more than ever. My ultrasounds found only small kidney stones in left kidney and a small amount of sludge in gall bladder, all other organs appear normal. I barely am able to eat anything, yet I continue to gain a couple pounds with each visit? Makes no sense!
Any ideas? Both doctors are stumped and are recommending the University hospital. But what to do in the meantime when I can't breath, eat or sleep?:eek:
thanks for reading.
Kerry

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