Discussions By Condition: I cannot get a diagnosis.

at wits end as to what is wrong...

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: justwanttoknow
  • November 21, 2009
  • 00:23 AM

Hi. This is my first post so I apologize if I do something wrong.

Got CT results today & they are clear (chest, abdomen & pelvis). Only labs abnormal (some others are high or low but within normal limits) are ESR of 111, CRP of 10.5, Albumin of 3.3 -if you want any of the other results please ask. Have had the following symptoms for the past 2.5 years, growing increasingly stronger: upper left-sided abdominal pain that is a constant dull ache; heart rate of 95 - 125 a min. (usually 75 to 80); BPs of 90s over 60s, usually 110 over 70; low-grade fevers with chills at times; fatigue requiring naps at times; chronic small, non-productive cough (no TB as I am constantly tested as an RN); shortness of breath, sometimes have to breathe with pursed lips; nausea at times, mostly in early morning (not pregnant, am menopausal); diarrhea several times a week, even when formed it's 4 plus times daily (normally 1 daily or every other day), sometimes clay colored; insomnia due to the discomfort or chills; sometimes flu-like aches; bruise very easily.

47 yr old female with hx of rheumatoid & psoriatic arthritis since the age of 20, am in remission in joint pain & swelling; rheumatic fever at 20 with a heart murmur but the murmur only lasted about 5 years & no trace of it now; skull fx (battle sign under R ear), R elbow & acetabulem broken as well in a horse accident; migraines after the skull fx & briefly earlier this year but no abnormalities in brain scans then or now; c-section in '87; kidney stone from L side in fall of 2006 & again in 2008; several pre-melanomas removed in fall of 2008 & spring of 2009, having several removed & biopsied after Thanksgiving - am high risk as my dad & several aunts & grandmother have had melanoma; several with pancreatic cancer (closest is an aunt that died in 2006 - my doc at that time had me have a colonoscopy & endoscopy as a screening in Jan 2007 & they were clear); never smoked, might drink 6 Michelob Ultras a year; 40 lb. weight loss the last 5 months - now weight 135; L knee synvisced in Jan & July of this year, was boggy with heat in August but is improving. Am off meds for 1 week, was on Methotrexate 6 2.5mg once weekly, prednisone 20 mg daily for the previous 3 weeks to try to see if there was a difference in symptoms; was on Humira for a couple of years but was stopped when pre-melanomas developed & potassium & vitamin d deficiencies while on it. Spent August on prenatal vitamins & no other meds at all to see if I could build up my system with no improvement.

I am not a hypochondriac, haven't brought it up until recently as I thought it would pass but it's getting to the point that I am sooo tired of feeling like this. It is different from the typical fatigue & fevers one gets with arthritis, I am well familiar with that.

Any ideas? If you have any questions, please ask as I may have forgotten something as my first post was lost due to time-out. I am getting desperate.

Reply Flag this Discussion

3 Replies:

  • You said a bunch of scans of your chest came back normal. Did they include the heart? (ie EKG/ecoKG) Mitral Valve Stenosis seems very plausible, as rheumatic fever is a prerequisite for MVS development later on. This is fairly easily detectable but would have shown up if your heart has already been checked inside and out.
    Croatiamedstudent 32 Replies
    • November 21, 2009
    • 10:55 AM
    • 0
    Flag this Response
  • You said a bunch of scans of your chest came back normal. Did they include the heart? (ie EKG/ecoKG) Mitral Valve Stenosis seems very plausible, as rheumatic fever is a prerequisite for MVS development later on. This is fairly easily detectable but would have shown up if your heart has already been checked inside and out. No, they didn't include an EKG or anything heart related (just the CT of the chest as well as the abdomen & pelvis) even though they are aware of the tachycardia. It does skip a beat now & then; I had coronary sinus issues for a bit after the rheumatic fever (forgot to include that). I do wish they would test it. Thank you for your answer, will ask my doc on Monday. His train of thought that maybe lack of lung expansion & oxygenation was causing the heart rate problem but nothing showed on the CT as far as the lungs according to his call yesterday afternoon. He is stumped & is looking for other possibilities.
    justwanttoknow 2 Replies
    • November 21, 2009
    • 03:03 PM
    • 0
    Flag this Response
  • You said a bunch of scans of your chest came back normal. Did they include the heart? (ie EKG/ecoKG) Mitral Valve Stenosis seems very plausible, as rheumatic fever is a prerequisite for MVS development later on. This is fairly easily detectable but would have shown up if your heart has already been checked inside and out. Just found out - Mom didn't tell me when I was collecting health histories that 3 of my aunts & uncles had MVS so I'd say you're probably right on the money from what I've been reading.
    justwanttoknow 2 Replies
    • November 21, 2009
    • 07:12 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.