Discussions By Condition: I cannot get a diagnosis.

At wits end... any clues?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: penybobeny
  • August 16, 2007
  • 06:49 AM

I am new here, but not new to having no clue what in the world is going on with me... sighs.

Ok, first my list of symptoms-

-Uncontrollable high Blood Pressure with severe swings (260/175 my highest, but it swings all over the place all day every day)
-Sinus Rythm Tachycardia
-Chest Pain
-Neuropathy in both arms
-Occular Migraines
-repeated lymph node infections with bursting
-elevated liver levels with fatty liver
-heat intolerance
-ringing ears
-chronic sinus infection
-short term memory issues
-balance issues
-Bell's Palsey
-white blood count not responding to infections
-no fever with infections
-multiple medication sensitivity
-local anesthesia has little to no effect
-general anesthesia causes heart failure

I am being tested for pheochromocytoma for some of the symptoms, but it is slow going... the rest just gets me a blank stare when I try to get any answers.

The whole white blood count and fever thing came to light when I had a falopein tube rupture in 1996 causing 3rd degree peritonitis... my tempature was dead normal as was my WBC... they were ready to send me home when a single Dr insisted that I needed to be opened up. Good thing he did... my entire abdominal cavity was filled with pus from the rupture and all my organs were irritated. Later, in 2003 I had sinus surgery on every sinus cavity and the Dr was 'shocked' to find them packed with pus because my tempature and WBC were normal.

I can never get proper treatment for infections because 'your blood tests came back normal' and they refuse to believe that anything is wrong, even when a lymph node is huge, red and hot, and when it bursts and I go back they just say 'you should not poke that with a needle!' (AARRGGHH!!! :mad: )

I have screamed my way through small surgeries using local anesthesia because I feel every cut, scissor snip and needle poke with the Dr telling me to shut up because I can't be feeling it! (Yes, we are carbon based life forms and anesthetic agents bind to carbon... the same Anesthesiaologist who explained that to me with a snear sat by my side and begged forgiveness after one proceedure as I tried to get control of myself. His words "you are right, they really do not work well for you at all")

I really am at my wits end... I can barely comb my hair or brush my teeth at times without taking breaks to calm down my heart rate or catch my breath... I have yet another lymph infection forming behind my ear and I am ready to just give up.

Anyone out there have any idea what in the world might be going on????

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2 Replies:

  • autonomic nervous system dysfunction? Most of the literature is about paralyzed persons, but you have some of the symptoms. Have you been tested for toxoplasmosis...or the weirder parasitic infections?
    rad-skw 1,605 Replies
    • August 17, 2007
    • 11:04 AM
    • 0
    Flag this Response
  • autonomic nervous system dysfunction? Most of the literature is about paralyzed persons, but you have some of the symptoms. Have you been tested for toxoplasmosis...or the weirder parasitic infections?Autonomic, Central Nervous System Dyssfunction, Immune Dysfunction. You might have or had a string of infections. Get yourself a good doctor who knows something about infections- and blood tests for Lyme, Mycoplasma, EBV, etc.Get also a Doctor of Oriental Medicine (Lic Ac.) who practices NAET.naet.comacufinder.comBest,Frui.
    Eatafruit78 960 Replies
    • August 17, 2007
    • 04:43 PM
    • 0
    Flag this Response
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