I am new here, but not new to having no clue what in the world is going on with me... sighs.
Ok, first my list of symptoms-
-Uncontrollable high Blood Pressure with severe swings (260/175 my highest, but it swings all over the place all day every day)
-Sinus Rythm Tachycardia
-Neuropathy in both arms
-repeated lymph node infections with bursting
-elevated liver levels with fatty liver
-chronic sinus infection
-short term memory issues
-white blood count not responding to infections
-no fever with infections
-multiple medication sensitivity
-local anesthesia has little to no effect
-general anesthesia causes heart failure
I am being tested for pheochromocytoma for some of the symptoms, but it is slow going... the rest just gets me a blank stare when I try to get any answers.
The whole white blood count and fever thing came to light when I had a falopein tube rupture in 1996 causing 3rd degree peritonitis... my tempature was dead normal as was my WBC... they were ready to send me home when a single Dr insisted that I needed to be opened up. Good thing he did... my entire abdominal cavity was filled with pus from the rupture and all my organs were irritated. Later, in 2003 I had sinus surgery on every sinus cavity and the Dr was 'shocked' to find them packed with pus because my tempature and WBC were normal.
I can never get proper treatment for infections because 'your blood tests came back normal' and they refuse to believe that anything is wrong, even when a lymph node is huge, red and hot, and when it bursts and I go back they just say 'you should not poke that with a needle!' (AARRGGHH!!! :mad: )
I have screamed my way through small surgeries using local anesthesia because I feel every cut, scissor snip and needle poke with the Dr telling me to shut up because I can't be feeling it! (Yes, we are carbon based life forms and anesthetic agents bind to carbon... the same Anesthesiaologist who explained that to me with a snear sat by my side and begged forgiveness after one proceedure as I tried to get control of myself. His words "you are right, they really do not work well for you at all")
I really am at my wits end... I can barely comb my hair or brush my teeth at times without taking breaks to calm down my heart rate or catch my breath... I have yet another lymph infection forming behind my ear and I am ready to just give up.
Anyone out there have any idea what in the world might be going on????
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