Discussions By Condition: I cannot get a diagnosis.

at the end of my rope

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • January 20, 2007
  • 08:03 PM

my husband has been suffering with burning, tingling and pain in his feet for the past 2 years. he hardly sleeps because of this. about 6 months ago, after going to several doctors and being sent to a psychiatrist, he was diagnosed with restless leg syndrome by the psychiatrist and put on requip. about 1 month ago he began to hallucinate and have slurred speech. his family dr. told me to take him off the requip and put him on clonazapam and after 1 day the hallucinations were gone. but after 2 days they were back and worse than ever. he began staying up all night, tearing the house all to pieces and eating all night. the next morning he was shocked at what he had done. he was taken to the emergency room and taken off the clonazapam and put on lorazapam. the next day, after a worse night, his family dr. said to double the lorazapam. he continued to get worse and also began to be very confused and disoriented so he went to a neuroligist who put him back on the clonazapam for the ''restless leg", at double the dose as before. for about 2 days he was better but now he's hallucinating again, is confused has slurred speech and still has the tingling, burning and numbness in his feet and now it is also in his legs and hands. he had a MRI yesterday and we should get the results of that in a couple days. he says that he feels like he's dying and there's nothing he can do. please help!!!

Reply Flag this Discussion

12 Replies:

  • omg, I'm having almost the same symptoms. I have'nt had a full nights sleep in 2 weeks now. Up all night eating and pacing because my legs are killing me. I was taking requip but all of a sudden it does'nt work any more. The bottoms of my feet and palms of my hands burn. Everytime I try to lay down my legs hurt so bad that I have to get up and move around. I hope we both find out what is wrong. Good luck.
    Anonymous 42789 Replies
    • January 21, 2007
    • 00:28 PM
    • 0
    Flag this Response
  • if i do find out what it is, i'll be sure and post it so you will know. in the meantime, hope you're able to get some sleep somehow. maybe you should suggest clonazapam to your doctor. that works for some people. my husband just had a bad reaction to it. hallucinating and being confused and all. thanks!
    Anonymous 42789 Replies
    • January 21, 2007
    • 03:25 PM
    • 0
    Flag this Response
  • Could be neuropathy due to diabetes or due to something else. I would also have his kidneys checked. Does he sweat? Sounds crazy but there is a disease that involves your husbands symptoms but also the lack of sweating.
    Anonymous 42789 Replies
    • January 23, 2007
    • 08:05 AM
    • 0
    Flag this Response
  • neuropathic pain from diabetes
    Anonymous 42789 Replies
    • January 23, 2007
    • 09:00 AM
    • 0
    Flag this Response
  • well we finally got a diagnosis. it's not good...it's alzheimer's disease! i'm totally shocked. we got the results from the MRI and it showed major brain shrinkage. we have an appointment at Duke with a specialist this month. i would have never thought from the symptoms he was having that it could be that.
    Anonymous 42789 Replies
    • February 13, 2007
    • 07:42 PM
    • 0
    Flag this Response
  • Make sure they check for bacterial infections as well. Recent research showed that 8 out of 10 alzheimer brains had DNA from a bacteria (borrelia). Many alzheimer patients respond well with antibiotics as these will kill bacteria. I know someone who has 2 different strains of bacteria and she has restless leg syndrome in the worst way. She's getting treatment and is slowly getting better. Don't let the docs overlook a possible infection like this.
    Anonymous 42789 Replies
    • February 14, 2007
    • 03:01 AM
    • 0
    Flag this Response
  • well we finally got a diagnosis. it's not good...it's alzheimer's disease! i'm totally shocked. Please have the doctors look also for sundowners. A friend of mine at church has been going through a similar thing w/ her MIL. She was diagnosed with restless leg syndrome, Alzheimers and sundowners. She had to go live w/ her son for a little while because she almost burned her house down. She calls telling her daughter in law that the kids are at her house, while they are at school. Her hallucinations have been bad for almost 2 yrs now. She has gone through many stages of the disease now, but it hasn't gotten any easier for her or her family to deal with over the last 2 years. She has someone now who stays with her during the night.You might also want to seem out a support group to help you cope with what your husband is going through.
    Anonymous 42789 Replies
    • February 16, 2007
    • 00:52 AM
    • 0
    Flag this Response
  • I know someone with Lyme disease and bartonella and they were first diagnosed with restless leg syndrome.Ask for a western blot test through Igenex labs to be done. Also ask for a trial of antibiotics for 30 days to see if there is any improvement. There is nothing to lose by doing this.Alzheimer's is too serious to simply accept when there are other things that can be the cause. Especially when some things are curable with the proper medication.Google Alzheimer's and Lyme and see what is written about misdiagnosis. Also check out the symptoms of Lyme at www.canlyme.com to see if there is anything else you recognize.
    Anonymous 42789 Replies
    • February 16, 2007
    • 02:13 AM
    • 0
    Flag this Response
  • nmeebei have been suffering from constipation for 6 years it has litterly ruined my life i been to doctor after doctor and nothing seems to help i feel so bad all the time and i was a very active man now i don't feel like doing anything i hate to say it but i have really considering suicide i just can't stand it any more i eat so many vegtibales and fiber and nothing works i will go anywhere from 6 to eight days without a movement until i take lactilose . ineed help please,is there a doctor that can help me please i am crying right now that is how bad it is i just can't thke feeling like this anymore.i pray to god someone can help me
    Anonymous 42789 Replies
    • February 16, 2007
    • 04:17 AM
    • 0
    Flag this Response
  • Sounds like you are eating right, so something else is at the root of your problem. In Chinese Medicine, the body functions and fliuds tell ALOT about the overall health and CONDITION of the patient. Constipation can be due to Heat in the body which in turn causes DRYNESS. Sometimes this can snowball into a deeper condition, with lack of fluids AND motive force to move things along. In acupuncture, we look at the overall picture to get the "pattern" for your particular case. Possibly the SMALL INTESTINE isn't doing its job. There may be a lack of QI (life force) or Yang (Motive- movement force) this can cause STAGNATION, HEAT, AND DRYNESS. Also, we would check your tongue and pulses to see how all your organs are working TOGETHER. Do you drink PLENTY OF WATER?? The Rule of THumb is Drink half your body weight a day IN WATER!!! Are you urinating out as much as you take in??? If not, there may some edema or some area of your body is keeping the water from getting to the large interstine (colon) where it is needed to help form and move along the stools. Do you get headaches or dizzy (signs of dehydration). This is something I do when NECESSARY and it works well for me!! Take a teaspoon of Epsom Salts (Magnesium Sulfate) and drink it down w/ a glass of water (quickly) it tastes BAD- but usually in 15-20 minutes--constipation TURNS to LOOSE STOOL and a BM is IMINENT!!!You may have SPLEEN deficiency too (in Chinese Medicine, it's the spleen's job to control the muscles of the body including the rectum and associated sphincters. By increasing your SPLEEN QI, these types of problems will adjust themselves. We even use get results for organ prolapse with SPLEEN treatments and herbs to raise QI and YIN (fliuds in body necessary for functions. Try the Epsom Salts ($1.50 per box) and seriously consider checking out Chinese MEdicine for your ongoing problem. There IS HELP out there- without HUGE COSTS or removal OF BODY PARTS and DRUGS!Be gentle to your body and it will respond! ;) Best wishes~~
    1111healer 106 Replies
    • February 18, 2007
    • 06:13 AM
    • 0
    Flag this Response
  • nmeebei have been suffering from constipation for 6 years it has litterly ruined my life i been to doctor after doctor and nothing seems to help i feel so bad all the time and i was a very active man now i don't feel like doing anything i hate to say it but i have really considering suicide i just can't stand it any more i eat so many vegtibales and fiber and nothing works i will go anywhere from 6 to eight days without a movement until i take lactilose . ineed help please,is there a doctor that can help me please i am crying right now that is how bad it is i just can't thke feeling like this anymore.i pray to god someone can help meI am so sorry you are having such a hard time,hope my info can help you,my first relief was when I started taking Zelnorm (prescription med),it was very gentle on my stomach. The cure was when I stopped taking Zorcor which is high cholesterol medicine. Some medicines can cause this problem.. good luck ;)
    Anonymous 42789 Replies
    • February 18, 2007
    • 06:53 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Please get Hubby tested for Lyme and the co infections, they have now found Lyme is behind Alzheimers and much more.....It also depletes minerals, like magnasium that help with muscle and pain control. Check here for more info www.lymenet.org.
    Anonymous 42789 Replies
    • February 18, 2007
    • 00:46 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.