Discussions By Condition: I cannot get a diagnosis.

At my wit's end with doctors

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: nottellinnebody
  • September 10, 2010
  • 06:10 AM

I have had debilitating fatigue for over ten years now. I've had to drop out of school multiple times because of it and I have no social life thanks to it. I can't work either. It has effectively ruined my life. I've been going to a never ending succession of doctors and none can tell me what's wrong with me. They always either don't know what to test for, or test me for the same common things that I've been tested for so many times before, or don't bother even doing anything at all, besides taking my money of course. The only time I get tested for an out of the ordinary and rare condition is when I specifically request it. But I haven't been to medical school! I don't know what I'm doing. I can't doctor myself. I need help. I have other symptoms too, like poor concentration, poor memory, my legs easily bruise, my hair is thinning, I heal slowly, and some other symptoms. I am all out of ideas and am tired of wasting my time with doctors. I feel like I'll never find out what's wrong with me. I just feel like giving up. I don't know what to do or who to go to for help. I'm even beyond belief that there's a such thing as help anymore.

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  • I have had debilitating fatigue for over ten years now. I've had to drop out of school multiple times because of it and I have no social life thanks to it. I can't work either. It has effectively ruined my life. I've been going to a never ending succession of doctors and none can tell me what's wrong with me. They always either don't know what to test for, or test me for the same common things that I've been tested for so many times before, or don't bother even doing anything at all, besides taking my money of course. The only time I get tested for an out of the ordinary and rare condition is when I specifically request it. But I haven't been to medical school! I don't know what I'm doing. I can't doctor myself. I need help. I have other symptoms too, like poor concentration, poor memory, my legs easily bruise, my hair is thinning, o I heal slowly, and some other symptoms. I am all out of ideas and am tired of wasting my time with doctors. I feel like I'll never find out what's wrong with me. I just feel like giving up. I don't know what to do or who to go to for help. I'm even beyond belief that there's a such thing as help anymore.im so sorry that you are going throught this!!! and im sorry to say that i have no clue what it could be but the reason im replying is to let you know that your not alone! i have been dealing with stuff of my own going on 12 years now with no help from DRs and no diagnosis! im only 26 years old and allot of the time i feel alone and like no one belives me or listens to me, at this point im waiting to take a turn for the worse just to get some help! you can email me if you want to talk! baerjandrea@yahoo.com
    Anonymous 42789 Replies
    • September 10, 2010
    • 09:51 PM
    • 0
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  • I have had debilitating fatigue for over ten years now. I've had to drop out of school multiple times because of it and I have no social life thanks to it. I can't work either. It has effectively ruined my life. I've been going to a never ending succession of doctors and none can tell me what's wrong with me. They always either don't know what to test for, or test me for the same common things that I've been tested for so many times before, or don't bother even doing anything at all, besides taking my money of course. The only time I get tested for an out of the ordinary and rare condition is when I specifically request it. But I haven't been to medical school! I don't know what I'm doing. I can't doctor myself. I need help. I have other symptoms too, like poor concentration, poor memory, my legs easily bruise, my hair is thinning, I heal slowly, and some other symptoms. I am all out of ideas and am tired of wasting my time with doctors. I feel like I'll never find out what's wrong with me. I just feel like giving up. I don't know what to do or who to go to for help. I'm even beyond belief that there's a such thing as help anymore.Hepatitis testing?
    Anonymous 42789 Replies
    • September 11, 2010
    • 01:13 AM
    • 0
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  • I assume your thyriod has been tested (make sure you have been also tested for hashimotos, sometimes doctors just test T3 and T4 but not for hashimotos) and your iron.. Get copies of all your test results as doctors cant always be trusted when they say tests are normal... as they often ignore out of range test results if they dont really know what they mean. Get your test results and post back if there is any abnormal results. Once all of the above is ruled out.. it is probable you have chronic fatigue immunity dysfunction syndrome (CFIDS) http://wwcoco.com/cfids/bernesx.html To learn more about it you can go to http://www.forums.aboutmecfs.org/forum.php A virus is currently being found in this disorder so hopefully soon there will be better treatments for it.
    taniaaust1 2267 Replies
    • September 11, 2010
    • 05:25 PM
    • 0
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  • I forgot to say that you will probably need to find a doctor who specialises in this disorder. They are hard to find as not many doctors know much about this disorder or think they know when in fact they dont know much at all!! There are some good specialists in it about who can help you some. Also important to find someone who knows about the condtion as you probably will need to go onto a disability pension with it, depending on how bad you are. Half of us cant work and need to go onto disability. Also you can get info from the societies who deal with this http://www.forums.aboutmecfs.org/showwiki.php?title=Patient+Data+Repository+and+Treatment+Review+Project:CFS+ME+Organisations
    taniaaust1 2267 Replies
    • September 11, 2010
    • 05:31 PM
    • 0
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