Discussions By Condition: I cannot get a diagnosis.

At my wit's end

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: amvoyles
  • March 15, 2010
  • 10:45 PM

I'm so frustrated and I'm grasping at straws for an answer. My problems began in December 2006 when my husband and I were living in San Antonio, 600 miles away from my family and friends. My ILs were our closest family at 5 hours away and we were driving to see them. I had been suffering from a sinus infection, which is pretty common for me, and was taking Mucinex DM to help. I was also taking OTC diet pills at the time (stupid, I know). On the drive, I wasn't feeling well and was a little sick to my stomach but I just chalked it up to the sinus infection. We had just made it to my ILs town when I remember telling my husband to pull over because I was going to throw up and the next thing I remember is being slumped in the seat, covered in sweat. I could hear him talking to me but I was unable to answer for at least 5 minutes, then I could give short mono-syllable answers. He said I had a seizure and described it as my head locking in place and my body shaking for about 20 seconds. I've never had seizures or any other medical issue in my life and I was 26 at the time. I thought maybe I just needed to eat because I would sometimes get shaky if I went too long without eating, so we went to a sandwich shop. I ate a few pretzels and a few bites of sandwich before passing out. We went back to my ILs where I kept passing out and threw up. They called the paramedics, who did an EKG. The first one was odd so they went and got another machine. The second one was fine. They took my blood sugar and said it was 26, which I now know to be almost unbelievable. They gave me some sugary jelly stuff to put under my tongue and I felt better. I thought that was it.

I continued to feel light-headed and lethargic, going to the emergency room twice before being admitted to the hospital in January 2007. They ran an EEG, echocardiogram, CT scan, lumbar puncture, A1C, continuous heart monitor, and about 3 quarts of blood and found nothing. They said it was stress from being so far away from my family, so we moved back. I tried to get better, but I was always exhausted, light-headed, and my extremities were icy.

I unexpectedly got pregnant in early 2008, even though my OB told me I would need fertility treatments to get pregnant since I hadn't had a period in years. I felt bad all through my pregnancy but I chalked it up to just being pregnant. With the exception of a brief bout of PPD, I felt fantastic after I had my daughter. At least for the first 9 months. Then in August 2009, I cashed in a spa gift certificate and wasn't feeling very good by the end. I thought I needed to eat so I met my family at a restaurant. I ate and then passed out while sitting at the table. I kept passing out so my family carried me out and took me to the hospital. My BP was low and my heart rate was fast, but the only thing they found was that my potassium was a little low. It took 3 doses of the potassium supplement to test normal. Once again, they found nothing.

Now, I'm dizzy most of the time, especially in the car, and it's worse than it's ever been. I've been to almost every specialist: infectious diseases, neurologists, cardiologists, ENT, internal medicine, endocrinologist, and probably more. None of them have found anything. I'm desperate. I want to fix this and be healthy for my daughter. Anyone have any guesses?

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