I don't even know where to start...maybe back to 2007 when I was diagnosed with hypothyroidism and put on Levothyroxin.
I was experiencing some mild stiffness of my muscles, my hair was thinning, and I was tired and moody. after being on the medication for a few months, my pain was not going away so my doc told me the more weight I lost, the better I would feel. I continued to lose weight at a study pace (was on weight watchers before thyroid diagnosis), but my pain did not subside. In fact, it seems as though the more weight I lost, the worse I felt. Every time I went in to see my primary about pain, he would check my thyroid levels and adjust my meds accordingly. I was getting so frustrated that this was the only thing he was testing I stopped going to the doctor until this past summer when I started experiencing galactorrhea (leakage of breast fluid) headaches, vertigo, black outs (no loss of consiousness), vision disturbances, loss of balance, and extreme pain. My Primary sent me for an MRI in hopes to find a tumor on my pituitary...no tumor. However they found 10 leisions ranging from 3-6 cm in my frontal, parietal, and occipital lobes. 2 More MRIs were ordered and a spinal tap was done. the MRIs came back inconclusive and the spinal tap came back negative for infections and proteins (Multiple sclerosis). the neurologist suggested follow up MRIs and spinals for the next 4 years and left it at that. I have also had many blood tests that have all come back normal. the only thing they have found id that I am low in vitamin D, so I am now taking a supplement for that.
Today I went to see and internal medicine doctor who looked at me and said he didn't even know where to start (I have 2 pages of symptoms I have experienced, each one of them has been experienced since diagnosis of hypothyroidism with the neurological symptoms occurring only with in the last year. He said he has never had a patient with as many symptoms at I have and referred me to a rheumatologist to rule out fibromyalgia. He said he doesn't believe it is fibromyalgia (and I really don't like that diagnosis), but he didn't even know where to start. he ordered a CRP and a sed rate to see if there is any inflammation so I guess we'll have to wait and see what those results say.
I am only 28 years old, but I feel as though I am 58. Can someone PLEASE help me figure out where to start?!?!
List of symptoms from head to toe:
Headaches (mild to severe) severe began with in a year
vision disturbances (constant halo/stars when looking at lights; intermittent wavy, cloudy, blurred, and double vision) within the last year
spinal pain (cervical to sacrum) intensified within last 2 yrs
muscle spasms (Back) intensified in last 2 years
Muscle twitches through out body
shoulder, elbow, hand, hip, knee, and foot pain with swelling in knees and hands with in the last 5 years
stomach cramps when eating, "bubbles" after meal with in the last 5 years
foot in rib sensation with and without eating with in the last 2 years
irregular stools (from hard to watery with in days of each other) within the last two years
stools also range in color (from almost black to clay color) within the last 2 years
extreme cold sensitivity within the last 5 yrs
tingling in arms (to hands) and legs (to feet) within the last year
dizzy/black out spells (within the last year) within the last year
more info: I have 3 children born Jan 22 2005, March 23 2006, and February 2009.
ANY insight would be greatly appreciated, I don't know what else to do!