Discussions By Condition: I cannot get a diagnosis.

Aseptic Meningitis, again?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: beckettsdad
  • August 3, 2008
  • 00:58 AM

I am a 30 year old male. It all started with neck and spine pain, and fatigue. Then came these insane headaches. They were so severe that when I went to the emergency room at the VA, IV morphine wouldn't even touch them. I'd wake up screaming in the night, I wouldn't be able to sit still or do anything. Nothing made them go away. I wanted to die. I dealt with them for a month or so until I started noticing ly left arm going numb. Then my lip. This would happen every once in a while, a couple times a day. I went back to the VA, they said I had cluster headaches. The medicine they gave me didn't work.Then, it suddenly got worse. My ears felt like they were bocked, I would hear WAH-WAH-WAH during loud, continious noises, my hearing would go in and out. I was having trouble walking, and I couldn't speak. (Aphasia) I knew what I wanted to say, but I would have to describe it instead of saying the word. I work in a mental hospital, so I asked my boss, who is an RN. He said to go to the emergency room. I went to a regular hospital instead of the VA, and I made it just in time, because my fever shot up like crazy, and I blacked out, and was later told that I was psychotic and had to be placed in four point restraints. I woke up and they told me I had aseptic meningitis, and they were trying to figure out what caused it. They ran out of money before they could figure it out, treated my symptoms, and discharged me. So now, it's a few months later, and I am tired as ***l all the time, my neck is stiff, my ears are feeling blocked, and my spine hurts. I've been doing a lot of research, and all I can come up with is lyme disease. I was exposed to a bunch of ticks last year, my girlfriend's dogs got infested one time, so I'm thinking it's possible, even though I live in Florida. Any other ideas? I have an appointment with the VA soon, I need to make sure they don't misdiagnose me again.

Thank you!

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2 Replies:

  • Doctors are still no help, can anyone at least point me in a direction? Thanks.
    beckettsdad 1 Replies
    • August 18, 2008
    • 01:06 AM
    • 0
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  • hey man i am 22 and went through the same thing but found out that the aseptic meningitis was cause by "accute hiv infection." that is the first manifestation of hiv.... and 25% of hiv positive people that show symptoms of hiv at the early stage (within 6 months of infection) get aseptic meningitis. all aseptic means is that the doctors dont know what caused it and cant be bothered to figure it out. get an HIV test and if its negative get a more advanced HIV test... like one that detects the viral load. thats the only way to be sure. this ****ed my life up i am not gay and dont have a ton of unprotected sex with random people...! hope it helps.
    Anonymous 42789 Replies
    • October 19, 2009
    • 04:56 PM
    • 0
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