I have been suffering from severe arm pain for nearly a year now and NO ONE has been able to determine what it is or why. I have been to a dozen different doctors and no one has been able to tie the symptoms together, let alone tell me what is the problem. I was temporarily diagnosed with Lyme disease and treated with antibiotics. This diagnosis was held for about 4 months, but was wasted time. Through all of this I have had one confirmed diagnosis of Benign Hypermobility Syndrome. My arm pain varies from pinching feelings in my forearm (a mild pain of about a 2/3), to a feverish-bone deep ache (around 5-7), then the pain gets up to a crushing/shredding feeling in my bones and muscles up and down my entire arm (8-10 in pain level). Most of the pain seems very deep in my arm, but I also have surface pain as burning, tingling, and loss of sensation at the skin level. I also have a constant tremble in my arms that gets worse as the day goes on. I have been test by spinal tap for MS and that is negative.
Any activity/movement will cause this pain to worsen, especially reaching out or up. Massaging the arms helps, especially one point on the forearm where the ulnar nerve moves through. One university medical center has called the pain Ulnar Neuropathy. The pain worsens as the day goes on and won't neccesarily hurt while doing an actvity - but will hurt later as I try to rest.
I also have highly flucuating vision loss that is directly reflective of my arm pain level. As the pain in my arms reaches and stays at higher levels- my vision become worse and is different in each eye. I did have laser eye surgery 17 years ago or so.
I also have difficulty swallowing; what feels to me as a "thick" throat.
I am on percocet, skelaxin and flexerill constantly and can not stand this for much longer.
Each time I go to a new doctor they all do the same tests that are inconclusive, and send me on to someone else. Often it takes months to get into another doctor. That is where I am at now - waiting until the next referral to be available in May.
I lived an active life before; having a small rural home with my husband, 4 kids, and a mutlitude of animals on 3 acres that kept us very busy. Now I cannot do anything except sit very still in front of the tv, computer or a book. I cannot do ANYTHING and am very tired of being passed around in the medical field and living on pain meds. The largest hurt is to my children. I am/was a stay at home mom; now I am a stay on the couch mom (LOL). But I see the effects on my children, whom are all young still, and this hurts me to the core. I cannot do ANYTHING for them. We have ridden horses together for years. The children beg to ride thier horses but are too young to do that on thier own, and I CAN'T HELP! My husband runs from the moment he gets home from work, til the moment we go to bed, trying to keep on top of all the household chores. Thankfully we also have my childrens Grandmother living just down the street and she helps constantly.
LARGE POINT HERE - the pain recedes at night (until recently) after I go to sleep!
I have looked, and looked, and looked on line for ideas and diagnosis and have gotten no where. Please think carefully and send me any ideas - thanks and Warmest wishes, Blaine (sirky)
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