Discussions By Condition: I cannot get a diagnosis.

Are they missing something?

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: jenninedinburgh
  • September 9, 2008
  • 08:28 AM

Hi there,

I am new to the forum and have found it through numerous Google searches on my symptoms. Approximately 2 months ago, I was hospitalised for a week with a kidney infection. I went to the ER with a 40 degree fever and was immediately admitted. On the first day of admission, I was told that I had pylonephritis. A few hours later, I had a very intense eruption of pain in my abdominal area. The pain was so bad, I was screaming at the nurses for someone to please help me. I woke up with the emergency team around me as I stopped breathing. The pain is difficult to describe, but it felt like a huge bubble was bursting in my stomach area right under my chest. The doctor told me that the explosion of pain was renal colic. I later saw a surgeon who said it wasn't so. Anyway, I was finally discharged a week later with continued antibiotics after having an endoscopy which found nothing abnormal. They also did a scan and found that I have only one kidney - I had never had any problems with any UTI or kidney related issues ever, so it was quite a shock to find this out.

I have been to my GP to follow up and STILL am not well. He put me on Cipro for a couple of weeks and then Trimethroprin for 3 weeks. It's now 2 months later and I still have the following symptoms: fatigue, ongoing chest pain, leg pain, back pain when I sit for any length of time (like when I returned to work and had to sit all day as normal), nausea at times, lack of appetite, pain in my left shoulder, pain in my neck and some pain in my joints at times. Last week, I went back to my GP with the symptoms above after going on a trip to France and having to return early b/c of feeling unwell. He ran blood and urine tests and all were clear! Could something else be wrong? Or could they miss something in the blood and urine tests? What really worries me is the chest pain. I told my GP that I had it after leaving the hospital and he indicated that it's just stress from being unwell and that I am worrying too much. I really don't believe this as my chest hurts when i touch it on the outside as well as the inside. In addition, the pain gets worse when I exert myself (like when I started back to the gym after weeks of being unwell).

Any thoughts?

Thanks in advance.

Jenninedinburgh

Reply Flag this Discussion

11 Replies:

  • Just a thought but, It's now recognized that Cipro (and some other Levaquin antibiotics) can cause real bad aches/pains and to some extent can cause joint and tendon ruptures.I took cipro quite a few times in my life, never had issues with it but the last 3 times I had to take the antibiotic, I had some serious issues with it.#1 -> after 4 days on cipro, I was in a semi-comatose state, I was unable to wake up for anything. Never noticed it was from the meds, thought it was from the infection. The tiredness lasted for quite a while.#2 (2 years later) -> same problem, I slept non-stop for a week. I also developped some pain in my right shoulder and in my hips. The tiredness and pain lasted for over 3 months.#3 (you'd think I'd learn) -> semi-comatose, this time I stopped the meds after 4 days and asked the doctor to replace them with something else. Took me a while to recover from that as well. I had excruciating pain in my right shoulder for months.#4 (I had no choice) - I had a real bad UTI while working in France, It was a holiday and the labs were closed, since the doctor could not know the cause of the UTI, she said it would be safer to give me a single high-dose of cipro and then continue the treatment with another antibiotic (I mentionned my adverse reaction to the med). This time I didn't sleep all that much, but now my shoulder hurts again, it had not bothered me since I arrived here 4 months ago. It's been 2 weeks now and shoulder still hurts.Anyways, I don't think this could explain all of the symptoms you're describing but the joint aches and all could be caused by Cipro. It has a tendency to do that in certain people. If you think that may be the case and Cipro is prescribed to you again, you might want to mention it to your doctor to see if there are any alternatives.Good luck with everything. Hope you feel better soon!
    geenie 39 Replies
    • September 9, 2008
    • 00:10 PM
    • 0
    Flag this Response
  • Well first off a 40 degree celsius or 104f would be indicate a infection,so I would keep on that tract as to what kind of infection,a cbc will also confirm this.
    simidrm 36 Replies
    • September 9, 2008
    • 00:12 PM
    • 0
    Flag this Response
  • Do you miss your left or right kidney? Do you have pain in your both legs?
    Felsen 510 Replies
    • September 9, 2008
    • 05:29 PM
    • 0
    Flag this Response
  • I had it too, years ago. After going on my naturopath's (deceased) worm program, I haven't been bothered with it, and I was in the hospital for a week.
    Monsterlove 2921 Replies
    • September 10, 2008
    • 02:38 AM
    • 0
    Flag this Response
  • Just a thought but, It's now recognized that Cipro (and some other Levaquin antibiotics) can cause real bad aches/pains and to some extent can cause joint and tendon ruptures.I took cipro quite a few times in my life, never had issues with it but the last 3 times I had to take the antibiotic, I had some serious issues with it.#1 -> after 4 days on cipro, I was in a semi-comatose state, I was unable to wake up for anything. Never noticed it was from the meds, thought it was from the infection. The tiredness lasted for quite a while.#2 (2 years later) -> same problem, I slept non-stop for a week. I also developped some pain in my right shoulder and in my hips. The tiredness and pain lasted for over 3 months.#3 (you'd think I'd learn) -> semi-comatose, this time I stopped the meds after 4 days and asked the doctor to replace them with something else. Took me a while to recover from that as well. I had excruciating pain in my right shoulder for months.#4 (I had no choice) - I had a real bad UTI while working in France, It was a holiday and the labs were closed, since the doctor could not know the cause of the UTI, she said it would be safer to give me a single high-dose of cipro and then continue the treatment with another antibiotic (I mentionned my adverse reaction to the med). This time I didn't sleep all that much, but now my shoulder hurts again, it had not bothered me since I arrived here 4 months ago. It's been 2 weeks now and shoulder still hurts.Anyways, I don't think this could explain all of the symptoms you're describing but the joint aches and all could be caused by Cipro. It has a tendency to do that in certain people. If you think that may be the case and Cipro is prescribed to you again, you might want to mention it to your doctor to see if there are any alternatives.Good luck with everything. Hope you feel better soon!Thanks so much...I had not considered that my symptoms might be caused by the antibiotics! At least I know that if that is the case, these will eventually go away. Since you have had many UTIs, did you ever start taking cranberry supplements? I am thinking of starting these as this was my first and hopefully my last infection.
    jenninedinburgh 4 Replies
    • September 10, 2008
    • 09:10 AM
    • 0
    Flag this Response
  • Well first off a 40 degree celsius or 104f would be indicate a infection,so I would keep on that tract as to what kind of infection,a cbc will also confirm this.Yes, but that was 2 months ago. I don't have the fever anymore and have all of these ongoing symptoms.
    jenninedinburgh 4 Replies
    • September 10, 2008
    • 09:11 AM
    • 0
    Flag this Response
  • Do you miss your left or right kidney? Do you have pain in your both legs?My right kidney is missing and the pain is in both legs and my lower back.
    jenninedinburgh 4 Replies
    • September 10, 2008
    • 09:12 AM
    • 0
    Flag this Response
  • I had it too, years ago. After going on my naturopath's (deceased) worm program, I haven't been bothered with it, and I was in the hospital for a week.I am afraid to ask...what is a "worm program"?
    jenninedinburgh 4 Replies
    • September 10, 2008
    • 09:13 AM
    • 0
    Flag this Response
  • Or could they miss something in the blood and urine tests? Jenninedinburgh yes certainly. They will miss anything in those tests which they didnt think or want to test for. Many tests have to be specific and hence doctors need to think what to test for. Also many things dont show up in the blood or urine.
    taniaaust1 2267 Replies
    • September 10, 2008
    • 09:34 AM
    • 0
    Flag this Response
  • Felsen is right on! If you have one kidney this is called "renal agenesis." It's associated with all kinds of things. You need to see a geneticist ASAP! Also, you may have other abnormalities. Some things I know about:uteruseyesblood pressureheartI know because I have this too.
    aquila 1263 Replies
    • September 10, 2008
    • 05:07 PM
    • 0
    Flag this Response
  • To answer your question, no I haven't been taking cranberry supplements. I do try however to drink enough fluids and go to the bathroom regularly. I also do try to drink cranberry juice, which seems (for me at least) to help with the pain when I do have an UTI.I hope you don't have to go through that again. The Cipro antibiotic is very strong and usually very efficient but can cause some real adverse reactions in some people... They tend to get worse each time you take a course of the same antibiotics. However, I probably wouldn't blame every symptom on the antibiotics and would keep an eye open for anything new / anything that's getting worse. Your body might also be tired as, even though the tests say you're fine, your kidney is still trying to recover from a quite serious infection.Wish you the best.
    geenie 39 Replies
    • September 11, 2008
    • 10:08 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

Thanks! A moderator will review your post and it will be live within the next 24 hours.