Discussions By Condition: I cannot get a diagnosis.

Are these really migraines?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: suzie71
  • February 22, 2009
  • 03:37 PM

My first symtoms started 2 weeks ago. I had a stabbing pain behind my left eye that only lasted for a couple of seconds and then the whole left side of my body went numb. They did a CT scan ruled out a stroke and diagnosed me with opthalmic migraine.
I didn't feel well all weekend, I wasn't sick I just felt weird and my left arm felt really heavy and had pins and needle sensations in it.
I woke up Monday to the worst headache I've ever had, it felt like my head was in a vice. I went back to the Er. and was diagnosed with a complex migraine and was given something in an iv and sent home with 3 vicoden. I did not take them.
I went to work Tuesday, the headache came back but it was different this time, it was in the back of my head and my left arm went numb again, my hand turned purple and and my eyes were rolling back in my head and then the body tremors started. I went back to the Er, they did blood work and a MRI with and without contrast, said everything looked good, they gave me a streroid to take for 4 days and told me to follow up with a neurologist. I got an appointment to see him on Friday, from Tuesday until Friday I did not have any headaches but I had non stop body tremors. He did a complete exam and said to quit the steroids and that I was having thunderclap headaches and he gave me a sleeping pill and told me to go home and sleep the weekend away because he said my body needed to basically reboot itself due to the headaches and the tremors I didn't sleep more than 2 hours a day for those 4 days. I was exhausted. I did what he said and by Monday morning I seemed ok at first. I went back to work and about an hour into my shift the tremors started again worse than before. I was not able to respond to people, I was aware of everything, but I couldn't get my body to respond. My sister called the neurologist and told them what was going on and he sent us to a different hospital, that has better technology than our little county hospital. I went there and sat in the Er for over 10 hours and the only thing they did was blood work and 3 different Dr.'s did the same neuro testing on me and they told me that I was dehydrated and was having a reaction to the steroid and sent me home.
I was fine on Tuesday, no syptoms at all. I felt better than I had in weeks. I got up Wednesday, I was feeling weird again, not sick, just off and then the headache came back. The headaches don't last more than a couple of hours and as soon as they ease up the body tremors come back. This happened Wednesday, Thursday, and Friday, but since Friday I have not had a headache but I have had non stop tremors again.
It doesn't matter if I'm at home or at work or anywhere else for that matter this happens. I have not changed my diet or anything else. I'm not under anymore stress than before. I have not been sick and I did not have any injuries to my head or anywhere else.
I have had migraines before, I do not get them very often and they are usually around my period. But these headaches are completely different than what I have had before.
Has anyone experienced anything like this before. I want to believe what the Dr.s have said but I'm not any better. And now I don't know what to do. Any advice is welcome.

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