I'm a 31 year old mum from England and i just came across this site whilst rying to find answers for bith me and my son - sorry if this is going to be a long post - i tend to ramble on a bit, lol!
OK - the basics.. My son (8) has a diagnosis of Aspergers syndrome (form of autism), ADHD, Tourettes, Sensory dysfunction, obsessive compulsive disorder and dyspraxia...
At around two years old he was tested as he was showing signs of petit mal fits - whilst doing the MRI the doctors noticed he has an arachnoid cyst on the right fromtal lobe. Now - this was all before he was diagnosed and i was told it would disperse and wasn't anything to worry about.........
Jump forward six years (now) - and at the last appointment with my sons paediatrician she mentioned that he should avoid any physical activity - incase the cyst ruptures!!!!!!!!!!! NOW she tells me!!
Soooooooooooooo (sorry - i warned you i ramble, lol!) i've been looking about the net for some reliable info regarding arachnoid cysts - it's a flippin' minefield! But on my internet travels i have found out that lots of sufferers of these types of cysts can present with intercranial pressure - que the alarm bells.......
I have had intercranial pressure off and on for years and have had several lumbar punctures to release the pressure. Reading up on the link between the cysts and IP isn't too reasuring............ There's lots of info about it being progressive - and i've certainly been getting lots of strange symptoms these past few years - which my neuro ignores.....
I don't know what to do - :( for me or my son.
Anyone has any similar experience?? Or does anyone know anything about these conditions???
Thank you for reading xxxxxxxxxx
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