Discussions By Condition: I cannot get a diagnosis.

Anyone Pulsating?-please Help Urgently!!

Posted In: I cannot get a diagnosis. 206 Replies
  • Posted By: Anonymous
  • August 18, 2007
  • 05:17 PM

I live in Australia.
Can anyone please tell me if they have pulsating sensations or if they know what this is or what medication i can take to make this stop please.No doctors have been able to help and im considering suicide.
I have continual episodes of
tingling/pins and needles in my feet,sometime short jabs of pain in feet,tingling in my
hands,sometimes now pain travelling down my arms,small leg/foot muscle
twitches/trembling,sometimes finger twitches,occasional "travelling" pain,severe
headache-forehead area-non tension or pulsatile,waves of chills/shivers,hot face
sometimes,confusion,disorientation,blurriness,memory loss,ringing in my
ears,hypersensitivity to
noises,numbmess in feet,now sometimes sweating in palms and feet and sometimes all over
too,ringling in ears,pulsating in my stomach,feet,genitals,throat,temple and head and
now also pulsating in my fingertips and lowerback,,at the same time i get spontaneous
crying,or hysterical anger or rages,yelling at my dad for example,taking things the
wrong way-all without control.These episodes range in time from 2minutes to 2 hours
approximately and are continual-as soon as one stops another begins-all day and
night.Im living in ***l.
I think its somehow blood?flow? related because i always get the pulsating in the above
mentioned areas but at the same time i also get the irrational rages and/or crying
etc.Could it be too much/not enough blood flow to an emotional area of the brain?
I have tried many medications including s
imenet,proprananol,zyprexa,zoloft,prozac,lexapro,diamox,seroquel,risperidone,ritalin,de
pakote,lamictal,tegretol,keppra,sandomigran,sumatriptan,clonidine,guanfacine,valium,mur
elax,aspirin,vitamins,herbs,eliminated
wheat,psycologist,acupuncture,choropractor-this is the short list-there are more but i
cant remember because of my memory loss-and nothing has helped at all.
PET scan showed
hypometabolism of both temporal lobes,particularily in the middle temporal gyrus and
more pronounced on the left.(these symptoms were happening during the PET scan)
Does anyone have anything like this?-particularly the pulsating sensations or does anyone know what i can take to make this stop.
PLEASE REPLY VERY URGENTLY
THANKYOU

pills11.com ;))

pills11.com ;))

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  • Im in Australia too. my reply may sound very weird to you (ignore it if it sounds too weird) but im going to reply as i had the same symptoms and nothing helped with them until i found some spiritual healers to help me. The problem turned out to be something to do with my energy body and aura. eg what is sometimes called Kundalini syndrome. I never could find a description to my problem in medical circles only in the writings of those who had Kundalini issues. I now thou Ive got rid of most of the symptoms you mentioned via spiritual healers.. I thou ended up getting other symptoms, ended up with chronic fatigue immunity dysfunction syndrome. Also called CFS. I dont know thou if you fit that diagnoses or not, thou do have some of the common symptoms of it you dont talk about the normal distinguising ones of that problem, so may not fit. If it dont go against your belief system and you can find nothing else to help.. you could try what i did.. and seek out some good psychic spiritual healers (ones who can see auras and energy fields). Who knows, maybe that will get rid of the weird feelings for you too. I was close to suicide due to the weirdness of it all and the body discomfort.. before I found those ones to help me. I believe I would of killed myself if it wasnt for that help when nothing else helped.
    taniaaust1 2267 Replies
    • August 19, 2007
    • 01:49 AM
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  • This is probably something you may not want to hear but I know that problems such as schizophrenia can cause weird body sensations, mood problems etc etc. My father has schizophrenia and does complain of weird feelings when he's off his meds (his thoughts thou are also WEIRD by anyones standards and he hallicinates and gets other obvious mental problems with it.. by your post you are acting quite normal thou, so Im not about to say that may be your issue). You say no doctors etc have been able to help you, Im wondering if they've given you any diagnosis??................... Back to the subject of chronic fatigue syndrome.. abormalities in temporal lobes are present in it. Low blood flow is often picked up by SPECT scan to certain parts of the brain.. eg hypoperfusion .. in PET scans decreased glucose metabolism in the right mediofrontal cortex may be revelled and significant hypoperfusion and hypometabolism in the brain stem.
    taniaaust1 2267 Replies
    • August 19, 2007
    • 02:03 AM
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  • Many of your symptoms sound like the things I go through when I have a hypoglycemic attack. Have you had your blood sugar checked recently?Is it better/worse with food?
    Anonymous 42789 Replies
    • August 19, 2007
    • 03:00 AM
    • 0
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  • Sounds like chronic fatigue immune dysfunction syndrome. In the "down under" they call it Myalgic Encephalomyelitis. You could go to someone who will fix your "aura" or whatever or you could take the advice of someone who has lived with all of these symptoms for years and found a way to get rid of 90% of my symptoms through the advice of another person in this forum. I even had the pulsating. I was told I was crazy..no tests were revealing anything. A neurologist diagnossed me and told me that patients were finding help in the "alternative" realm of medicine. Basically, the western minded docs don't have a handle on these "emerging diseases"...like CFS, Fibromyalgia,MS, GWS,ALS ect... Where in Australia do you live?A very dear friend I met here in this forum is from Australia and she has just gone for her first Bioset appt. She is feeling better already!! I will help you find a practicioner in your area!! best regards,mommy cat:)
    mommy cat 1654 Replies
    • August 21, 2007
    • 11:31 PM
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  • I am terribly sorry for what you are going through. I have also been ill for sometime (2.5months) with ANNOYING symptoms such as tingling hands/feet difficulty breathing depression and axiety. I have at times also thought about suicide, but it is NOT the answer! I read that and just felt like I HAD to tell you this, DONT DO IT! It dosent matter how bad it gets, just dont. You and I may think our symptoms are bad and all while they are happening to use (and yes they ARE) but there are people, even young kids out there, with really bad illnesses and they stick it out, even though pain is all they have felt all of their lives, I just remind myself of that and of how much it would hurt my loved ones if I ever did such a stupid thing such as that. Please, I beg you, dont do it. This may just be a test from God and when he feels the tims is right we will be back to normal, and if not then who are we to question him? But SUICDE will get you nothing...so just no, No, NO!
    Runescape14 5 Replies
    • August 21, 2007
    • 11:49 PM
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  • Has anyone mentioned temporal lobe epilepsy? There is also a relationship to diabetes. Also a panic disorder can mimic the TLE.
    rad-skw 1605 Replies
    • August 22, 2007
    • 08:26 AM
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  • Thankyou very much everyone for replying.it doesnt seen to be related or exaggerated to/by to any different foods because the symptoms are always there-non stop-happening hundreds of times a day.My diabetes test was ok and i was told i wasnt hypoglycemic.I dont think i have schizophrenia-i dont perceive anything thats not there etc and ive tried different antipsychotics and they didnt help at all.Ive tried being prayed for ,having any "curses"removed if there was any,reiki,chakra healing,aura cleansing etc-thanks for the suggestion but i wont be wasting anymore money on things like that but im happy if it helps some people.Runescape14-this is a really bad illness and pain is all that i have felt all my life,i've prayed to God many times to give me cancer in 3 places rather than this,These episodes are continuous-there is not a minute that i am not spontaneously crying-without any provocation,or strange rages etc,and theres nothing i can take to stop being like that-i dont want to be that way to my family-that is why i want to commit suicide-because i have no treatment/option-all ive done is watch myself deteriorate-im living in ***l.i also have no friends and on top of that pain,blurriness,memory loss,pulsating,headaches,tremors etc WITHOUT STOP EVERY MINUTE OF MY LIFE DAY AND NIGHT.Sorry for my frustration.Hi rad-skw,panic disorder was ruled out along time ago-no ssris,benzodiazopines,therapy etc made any difference.One neurologist thought it was Temporal lobe epilepsy but another said he didnt think it was because the episodes are hundreds of times a day continuously and also because ive tried 4 anticonvulsants and they havnt worked.Dear Mommycat i live in Penrith,in Sydney.When you said you even had the pulsating you do mean pulsating anmd not palpitations?-some people confuse pulsating with palpitations.I would appreciate it if you could help me find a practicioner in my area if you dont mind.ANY ONE ELSE HAVE PULSATING AND OR FOUND TREATMENT PLEEAASE HELP URGENTLYThankyouMary
    Anonymous 42789 Replies
    • September 1, 2007
    • 09:57 AM
    • 0
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  • Dear Mary, here is the NAET link for the whole continent of Australia. Sorry, didn't have time to check for Sydney specifically. Also search Bioset Sydney Australia. A friend I met in this forum is in Victoria and she is having treatments of Bioset....some practcioners went to the univ of Melbourne...I just chatted with one on iM yesterday...from the US to Aussie. http://www.naet.com/subscribers/doctorResults.asp?FromQS=1&db=default&uid=default&City=&State=&Zip=&Last=&Country=Australia&Status=on&sb=4&view_records=Search Yes, Mary, I know the "pulsating"...it is NOT the same as palpitaions. I would "pulsate" at times...from my head to my feet. It is an inflammation response and it is no fun. 6 Bioset treatments and my "pulsating" is no more!!! Off to a family party today. I'm so thrilled to be able to go. For the last few years, EVERYTHING has been so difficult but now I have my life back. Wishing you the best Mary....when Bioset/NAET helps you, please come back and tell others so they may get well too. best regards,mommy cat:D
    mommy cat 1654 Replies
    • September 2, 2007
    • 00:33 PM
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  • Had to reply for several reasons and am hoping soon you find the relief you need so badly.First, just because these happen "hundreds a times a day even on medication" does not mean you can't have eplipsey. Being in the medical field I have known several patients, rare true, but yes it can happen that some are just unable to control on medications. One man I know went for the surgery for he had ended up bedridden because of his. No medicine could control his....after the surgery he was able once again to get up and do much much better. The other patient has not had the surgery but he drives just around home but always with someone with him. He fishes a lot etc. So I would talk more to the neurologist that told you about the eplipsey to begin with and see what further options he may have for you.Also, migraines can cause symptoms like you say. They can even cause you to lose control of limbs...doctors would at first think you are having a stroke even. This could be investigated further also. But to be honest I would think more on the eplipsey also.As for the suicide. My grandson died of suicide at age 17. We never had a clue he was depressed nor any idea like you talking about it here that he even had considered that option. To give you an idea of what you would leave behind....my daughter, his mother, is still in counseling, I still cry over this, my husband is unable to even talk about it, his sister had to be admitted in a hospital to deal with her grief. You say you don't have ones close to you? You are never as alone as you may think you are plus you have God and us here always with you. I care about you and want the best for you in all ways. No, I don't know you but to me you are one seeking help and for that I care and would offer help where I can give it.Please, hang in and give life a chance. agypsygrl
    agypsygrl 79 Replies
    • September 2, 2007
    • 01:11 PM
    • 0
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  • HiI just made my first post hear when I read your post. I am also going through some bad mysterious health problems for about a year now and yea .... its a living nightmare. Seen tons of doctors and tried many, many medications with no luck. I know how you spend your days fighting, and probably like myself, you lose your humanity and hence, the lack of social life. I don't know about you but I am starting to feel like a machine, not a humane being, because I spend most of my days fighting. I also want to kill myself, not out of pitty, but just to take a break from it all. But I could never do this with my parents still alive. I am very happy to hear that you will not kill yourself for the same reason. No matter how bad things get, don't ever forget that. Please keep on researching and seeing doctors for yourself and your family.I was thinking, that maybe we could help support each other, since we are in the same boat. My problems are different but maybe we could talk about different strategies for coping or getting some answers and perhaps alternative medicine. I am also desperate to get some answers so maybe we could help each other out. In case you are interested, you can e-mail me at huntjumpstuff@yahoo.ca. If not, best of luck and keep on fighting.
    Anonymous 42789 Replies
    • September 3, 2007
    • 01:43 AM
    • 0
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  • I also have tingling in my extremidies. Mostly mine is includes numbness. I have ringing in my ears and memory loss also. They have no idea what is wrong with me. There is more to it. I think some of your moodswings have something to do with all of the anti -anxiety and depression medications you have tried. I would stop taking them. Do more research online. Sometimes we have to find answers on our own. Trust me on this, do some more research.
    Anonymous 42789 Replies
    • September 3, 2007
    • 06:25 AM
    • 0
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  • I also have tingling in my extremidies. Mostly mine is includes numbness. I have ringing in my ears and memory loss also. They have no idea what is wrong with me. There is more to it. I think some of your moodswings have something to do with all of the anti -anxiety and depression medications you have tried. I would stop taking them. Do more research online. Sometimes we have to find answers on our own. Trust me on this, do some more research.Thankyou very much everyone for replying.Thanks Mommycat for the link.-What is "bioset treatments"?is it something apart from homeopathy because to be honest i dont believe homeopathy works,is it more to do with peoples symptoms being caused from food allergies because i dont think my symptoms are caused from that because no food makes any difference and my episodes never end.Thankyou very much agypsygirl for replying-even if it was atype of seizure ,the medications not working,i'd like to have an operation if it would help but i need something done about it now because im living in ***l and theres many months waiting to see specialists.I went to hospital to tell them i need help urgently but they wouldnt help.Very sorry about your grandson.I dont want to upset my family by commiting suicide but i cant live suffering like this anymore either.My symptoms along with the chills,tingling,headaches,pulsating,tremors,pain etc also make me yell or get angry spontaneously or hysterical or crying and crying-being really irrational and this never ends-my episodes are 100s of times day and night so maybe it would be better for my family if i wasnt around so that they dont have to deal with me anymore-also i have no diagnose or medication that helps at all and i've just watched myself deteriorate so much.I try to pray to God to send me something to stop my symptoms now and i wish he would respond.Hi huntjumpstuff@yahoo.ca. i feel exactly the way as you described you feel,i could not have described it better.I really hope that you get some answers/cure for your illness really really soon.My email address is marykorunic@bigpond.comEven after researching online i just cant find anything-its hard not to believe there is no help/answerThankyouMarypills11.com ;))
    Anonymous 42789 Replies
    • September 7, 2007
    • 04:17 PM
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  • I am glad I didn't NOT go to Bioset because I didn't believe it was food. I had no idea what was causing my symptoms because mine never ended either. Please go for the first 3 treatments. You will not believe the difference in yourself. I was allergic to things I didn't know I was allergic to....and it went WAY beyond just foods... take care...I hope you take the advice...mommy cat
    mommy cat 1654 Replies
    • September 7, 2007
    • 11:39 PM
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  • I am glad I didn't NOT go to Bioset because I didn't believe it was food. I had no idea what was causing my symptoms because mine never ended either. Please go for the first 3 treatments. You will not believe the difference in yourself. I was allergic to things I didn't know I was allergic to....and it went WAY beyond just foods... take care...I hope you take the advice...mommy catDOES ANYONE ELSE HAVE THESE PULSATING SENSATIONS OR SOMETHING SIMILAR TO WHAT I HAVE OR HAVE ANY MORE INFORMATION PLEEASEpills11.com ;))
    Anonymous 42789 Replies
    • September 9, 2007
    • 04:39 PM
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  • Greetings Mary, I am not a doctor of medicine but I would like to try to help you as I frequently explain things to doctors. I am currently on portable IV but may be hospitalized at any time, yet I should be just fine. I do not see why we can conclude this cannot be treated yet -- medical research internationally now is boundless and new medical technologies are born every day. I trust you will not make the wrong choice here -- you are too strong, you have made it here, and if I did not think you could get better I would not engage you. First of all please give me a more detailed history of the drugs you have taken if you can. As in what dates you started and ended them (or months) and what your dosage was. Did any drugs have at least ONE postive effect for your condition? I am already leaning away from suspecting your mind is creating most of your problems. This sounds, with the little information above, due to your physiology. You are very correct in ruling out aura technologies and spiritual healing. Since this is likely not due to you simply thinking you are ill but your physiology I would argue you are unlikely to experience relief long if someone effectively convinces you that you are releived. However the psychosematic placibo effect and/or the construction of alternate relalities is effective for some people. If you don't mind it would help to know your age or age range if you prefer. And these symptoms have always been present since birth? If not, how old were you were they commenced? And the time between episodes, how many seconds on average? Have there been any shifts -- have certain symptoms come and gone through time? Gotten better or worse? And do you remember any conditions in the external environment present when bouts ended or where about to commence? Or inbetween bouts? Also I am confused as to what you are on now. What drugs are you taking now? And how much and how often? Have you ever been diagnosed with anything in the past? Do you think this is immunoillogical? If there is no internal or external agent causing these symptoms, which we must not rule out at this point, I see no other avenue, the agent probably bacterialogical or viral. Impeeded blood flow to the brain sounds possibly on track to me as well. But by what agent? It is possible you could have been born with it, if we can figure that out we can give up on finding the cause, yet not treatment or a cure. Also, these questions may take a lot of time with dad and the family but I would really appreciate it. I will have many more as I commence my research, as my crazy situation permits. My heart is with you, Brent of Ottawa.
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 05:14 AM
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  • And by 'pulsating' I am thinking you mean pain flaming up like a pulsing light in these particular areas, concentrated to the area kind of like lightbulbs, with maybe 1-2 seconds between pulsations? And do all these areas pulse at once or at different times? Or is it more like what the most caring mommycat said where you get like a beam of pain moving down from head to feet - kind of like a beam or future like scanner moving from head to toe with gaps in the areas you are not mentioning? Or is it kind of hard to feel the gaps? Yours, Brent.
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 05:25 AM
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  • Greetings friend, Have you ever had surgery??? Also, what is the record of serious illness in your family and relatives??? Yours B
    Dr. Brent Royal 24 Replies
    • September 10, 2007
    • 05:42 AM
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  • Greetings friend, Have you ever had surgery??? Also, what is the record of serious illness in your family and relatives??? Yours BDear Dr Brent RoyalThankyou for replying.I hope you are ok.I dont know the time frames of the medications that ive taken because ive taken quite alot,sorry,but theyve mostly been 2 weeks + each.Valium made me have a deeper sleep(i wake up approx 5 times + through the night due to these symptoms)but none of the medications have had a positive effect/change on my actual symptoms at all.Yeah im definately not a placebo type of person and my symptoms havnt responed to hypnosis,osteopath or faith healing unfortunately.Im 27 years old-5.7,60kg im not sure whether these symptoms have been there since birth-unfortunately my memory is also affected alo and my parents dont remember much about our illnesses-but theyve been there for at least two years-and getting worse.There is no real time beween episodes-as soon as one "dies down"another comes.Sometimes the symptoms have changed-months ago it was only pulsating in the stomach and temple-but the throat and now feet and back etc.Also sometimes headache comes with the episodes-not throbbing or tension in quality but more like as if id hit my head against a wall or something sensation at the forehead area.Everytime i get an episode i get more sensitive to noises-they sound louder-like theres too much or not enough blood flow to that area of the brain that picks up sound or something??-i think its the brain because it doesnt appear to be the ears because ive had them checked and a hearing test and it was ok.Also i started to get ringing in the ears approximately a month and a halve ago-that was a new symptom-it lasted for approximately 1 month but thats gone now.Also anew symptom-i got "wooziness" for a few weeks with the episodes but that appears to have stopped now-and just in the last few days ive got outburts of anger-just reacting weird/overreacting during the episodes and then strong pulsating under my feet/numb toes.So the symptoms do change sometimes but in general it just seems to have constantly deteriorated.Nothing in the external enviroment seems to trigger it or make it better-it doesnt matter where i am-whats happening -whether its day or night etc-it seems to be something built into my body-the episodes happen continually-one after another,day + night and so its also hard to connect if there was any food etc causing this because its continuous.Im now taking topamax 50 ml(25day+25night)and oliveleaf oil but not working so far.Sorry i dont understand what is immunoillogical-is that like viruses etc?I get pain going down my arm/arms(not relieved by aspirin) and or numbness and tingling in hands but the actual pulsating is not painful but very strong-it is literally like an artery??pulsating in my stomach,toe/s,underfeet,head,throat,temple,back,clitoris,even fingertip/s etc in tune with the heartbeat(heartrate remains the same)-that usually happens at the "end"of an episode-eg:after the pins and needles,pain in head,tingling,tremors,strange rage or crying,confusion,wooziness,pain etc i'll then have the pulsating in any of the above areas or a combination of them and that will end an episode-and then i'll get that all over again.Ive never had any surgery and theres only 4 of us in our family-mum,dad and sister-my mum is overweight and has hypothyroid and high cholestorol-sisters healthy-dad abit stressed because of my health problem and seeing me suffering.I dont know about relatives health-they are in europe.My symptoms are very strange,i live in ***l and its hard to have hope/not give up/believe that there is anything that can help me or that i can be free from thisThankyou mary
    Anonymous 42789 Replies
    • September 10, 2007
    • 06:27 PM
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  • Have you had your thyroid checked? I had heart palipations, headache, tremors, throbbing stomach, feet , hands, fingerrtips. Throbbing and electrical sensations thru my whole body, fatigue, nauseau, stomach pain...found my thyroid was too high!...Have that checked...believe me all your symptoms will eventually disappear...hope that's it...cause its fixable.:)
    Anonymous 42789 Replies
    • September 11, 2007
    • 05:42 AM
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  • Have you had an EEG? If you have 100's of episodes a day, surely they can catch a couple on the test. Or, read this... The Thyroid and the Mind and EmotionsThe psychiatric disturbances which accompany hyperthyroidism and hypothyroidism, the two commonest thyroid disorders, mimic mental illness. People with an overactive thyroid may exhibit marked anxiety and tension, emotional lability, impatience and irritability, distractible overactivity, exaggerated sensitivity to noise, and fluctuating depression with sadness and problems with sleep and the appetite. In extreme cases, they may appear schizophrenic, losing touch with reality and becoming delirious or hallucinating. An underactive thyroid can lead to progressive loss of interest and initiative, slowing of mental processes, poor memory for recent events, fading of the personality's colour and vivacity, general intellectual deterioration, depression with a paranoid flavour, and eventually, if not checked, to dementia and permanent harmful effects on the brain. In instances of each condition, some persons have been wrongly diagnosed, hospitalized for months, and treated unsuccessfully for psychosis.Top Detection of the thyroid problem is complicated by the fact that everyone feels anxiety and tension to some degree, that many thyroid symptoms are similar to those of other diseases, and that hypothyroidism in particular often develops insidiously over a considerable time. But the results of overlooking the thyroid can be serious. It is very important for the physician to explore fully and give the tests for thyroid dysfunction, which today are relatively simple. When effective thyroid treatment is begun, the general response is quite favorable. Vitality returns and the mental processes become efficient again. If there is a residue of emotional difficulties, it may be related not to the thyroid gland but to other aspects of life
    rad-skw 1605 Replies
    • September 11, 2007
    • 11:36 AM
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