Discussions By Condition: I cannot get a diagnosis.

Anyone Psychic? Even if your not, help me?

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: keanhe
  • October 9, 2010
  • 02:53 AM

Because at this point, I'd be more than happy to hear what you think is wrong with me.

Here's whats going on:
06/09 - I got a UTI infection of the urethra, due to my prince albert piercing.

I saw my doctor, 1 week keflex prescribed, cleared up no issues.

01/10 - UTI Infection is back. Called doctor, 5 days keflex prescribed. Infection symptoms cleared up.

5 Days later, pain came back. Same symptoms. Called doctor, 5 days keflex prescribed. Symptoms disappear.

Removed piercing.

1 day later, I get a pain like I've never felt before. Diagnosed kidney infection, 7 days avelox.

Avelox feels like pure ***l to me, make my body feel horrible, barely made 7 days.

2 weeks after this series of events, symptoms initial infection begins.

04/24/10 - E.R. for an immense sensation of tingling and full body numbness. E.R. doctor says hyperventilation

Symptoms that plagued me for 3 months:
tachycardia, high blood pressure, fever, severe diarrhea, severe dehydration, weight loss (40 pounds in 5 weeks), severe dizziness (couldnt stand without looking down), chest pains, muscle pains.

05/03-05/06/10 - Symptoms too severe, admitted into hospital.

3 days later, diagnosed as Clostridium Difficile from toxins in my stool sample.

10 days of Metronidazole, symptoms clear up, finally get to have a month where I feel better. I eat correctly, I work out, I even am about to enlist in the Navy as an Intelligence Specialist.

06/04/10 - I go to MEPS (Military Entrance Processing Station) and pass the full physical, drug tests, etc, but I am temporarily disqualified from the service due to tachycardia (127 bmp upon arrival, 107 after 20 minute rest and water, 100 after 30 minutes more)

06/10/10 - I start feeling pain in my lower back, like an ache.
06/17/10 - I have such a pain in my back its getting ridiculous now.
06/20/10 - The pain becomes the worst today. Stays relatively the same for a few days (4), then slowly begins to disappear.

Current Symptoms:

arthritis-type pains
Constant headache/pressure
mental issues (short term memory shot, slight cognitive decline)
first 2 weeks walking without cane extremely hard, use of cane since to help
High blood pressure
leg weakness
general aches and pains
malaise
peripheral neuropathy in lower extremities (towards feet predominately, plenty of burning in the calf and thigh muscle though, more thigh.)
gastro-symptoms include:
light colored stools
frequent bowel movements (3-6 per day)
sometimes formed, mostly cracked surface or steatorrhea
slight reoccurring burning sensation left of the navel
gas
frequent cough

It's been 4 months since the beginning of my attack, lets get this solved.

Tests-

Brain MRI - Chronic Ethmoiditis
Abdominal, pelvic, chest CT - Clean
Sacrum/lower back X ray - Normal

CBC From 6/24/2010 at the peak simply showed a curve in my lymphocyte and neutrophil count (55% and 35%, respectively) and Lymphocytosis of 4750.

Ive taken many blood tests, but Ill give an overview of the general ones.

C reactive protein - fine
Rheumatoid factor - fine
Anti ttg, gliadin, and endomysial - fine
HIV - fine
3 hour fasting glucose - fine
Interleukin-6 - fine
Serum Protein Electrophoresis - fine
Stool Samples - fine
Urinalysis - fine
Toxins - none
Allergies - none

Now some of the doctors I've spoken with seem to be leaning towards Guillian Barre Syndrome, due to the lack of fever, the time frame of which my symptoms got worse, and some of these lingering side effects.

I am scheduled for a colonoscopy and endoscopy on this Monday, so hopefully I can put this behind me already

Waiting on the results of my CPK and Aldolase tests, if they're positive i suppose he'll want an EMG to diagnose a myopathy.

If you can help me out, I'll love you forever =)

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19 Replies:

  • I should also include that it is not my thyroid. My levels have been checked and are all optimal. Thanks again.
    keanhe 86 Replies
    • October 10, 2010
    • 02:05 PM
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  • The results of my Colonoscopy and Endoscopy showed the following:Gastritis was found in the Antrum, biopsy takenDuodenum normal, biopsy takenLymphoid Hyperplasia of terminal ileum, biopsy takenInternal HemorrhoidsThe CPK and Aldolase tests came back, but my doctor has reordered them, in addition to a CMP and CBC w/ Diff, so I'll be sure to post those results as well.Can anyone take a shot at whats going on? Thanks in advance.
    keanhe 86 Replies
    • October 11, 2010
    • 06:30 PM
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  • Well, my CBC is back. It is shows a relative lymphocytosis, which is better than before (was 4730, now 3130). However, my neutrophils have dropped further, now below 2500. In addition, I had an abnormal response on my Serum Protein Electrophoresis (Elevated Blood Protein, 9 with normal range 6.4-8.3). I now have to wait for my biopsy results.I read that the increases are caused by hypergammaglobulinemia...If anyone has any ideas, I'd really appreciate them right about now. Otherwise, I'll just let this thread die. I hope I hear from someone.
    keanhe 86 Replies
    • October 13, 2010
    • 10:32 PM
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  • look up Neuroleptic malignant syndrome all the symptoms sound like that same thing happened to me and took them forever to figure it out... it can be cause by a variety of medicines... and different things but reading your story it does have a gradual onset and develops worse as it goes with various things to different parts of your body being affected Because at this point, I'd be more than happy to hear what you think is wrong with me. Here's whats going on:06/09 - I got a UTI infection of the urethra, due to my prince albert piercing.I saw my doctor, 1 week keflex prescribed, cleared up no issues.01/10 - UTI Infection is back. Called doctor, 5 days keflex prescribed. Infection symptoms cleared up.5 Days later, pain came back. Same symptoms. Called doctor, 5 days keflex prescribed. Symptoms disappear.Removed piercing.1 day later, I get a pain like I've never felt before. Diagnosed kidney infection, 7 days avelox.Avelox feels like pure ***l to me, make my body feel horrible, barely made 7 days.2 weeks after this series of events, symptoms initial infection begins.04/24/10 - E.R. for an immense sensation of tingling and full body numbness. E.R. doctor says hyperventilationSymptoms that plagued me for 3 months:tachycardia, high blood pressure, fever, severe diarrhea, severe dehydration, weight loss (40 pounds in 5 weeks), severe dizziness (couldnt stand without looking down), chest pains, muscle pains.05/03-05/06/10 - Symptoms too severe, admitted into hospital.3 days later, diagnosed as Clostridium Difficile from toxins in my stool sample.10 days of Metronidazole, symptoms clear up, finally get to have a month where I feel better. I eat correctly, I work out, I even am about to enlist in the Navy as an Intelligence Specialist.06/04/10 - I go to MEPS (Military Entrance Processing Station) and pass the full physical, drug tests, etc, but I am temporarily disqualified from the service due to tachycardia (127 bmp upon arrival, 107 after 20 minute rest and water, 100 after 30 minutes more)06/10/10 - I start feeling pain in my lower back, like an ache.06/17/10 - I have such a pain in my back its getting ridiculous now.06/20/10 - The pain becomes the worst today. Stays relatively the same for a few days (4), then slowly begins to disappear.Current Symptoms:arthritis-type painsConstant headache/pressuremental issues (short term memory shot, slight cognitive decline)first 2 weeks walking without cane extremely hard, use of cane since to helpHigh blood pressureleg weaknessgeneral aches and painsmalaiseperipheral neuropathy in lower extremities (towards feet predominately, plenty of burning in the calf and thigh muscle though, more thigh.)gastro-symptoms include:light colored stoolsfrequent bowel movements (3-6 per day)sometimes formed, mostly cracked surface or steatorrheaslight reoccurring burning sensation left of the navelgasfrequent cough It's been 4 months since the beginning of my attack, lets get this solved.Tests-Brain MRI - Chronic EthmoiditisAbdominal, pelvic, chest CT - CleanSacrum/lower back X ray - NormalCBC From 6/24/2010 at the peak simply showed a curve in my lymphocyte and neutrophil count (55% and 35%, respectively) and Lymphocytosis of 4750.Ive taken many blood tests, but Ill give an overview of the general ones.C reactive protein - fineRheumatoid factor - fineAnti ttg, gliadin, and endomysial - fineHIV - fine3 hour fasting glucose - fineInterleukin-6 - fineSerum Protein Electrophoresis - fineStool Samples - fineUrinalysis - fineToxins - noneAllergies - noneNow some of the doctors I've spoken with seem to be leaning towards Guillian Barre Syndrome, due to the lack of fever, the time frame of which my symptoms got worse, and some of these lingering side effects.I am scheduled for a colonoscopy and endoscopy on this Monday, so hopefully I can put this behind me alreadyWaiting on the results of my CPK and Aldolase tests, if they're positive i suppose he'll want an EMG to diagnose a myopathy.If you can help me out, I'll love you forever =)
    Anonymous 42789 Replies
    • October 14, 2010
    • 02:16 AM
    • 0
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  • look up Neuroleptic malignant syndrome all the symptoms sound like that same thing happened to me and took them forever to figure it out... it can be cause by a variety of medicines... and different things but reading your story it does have a gradual onset and develops worse as it goes with various things to different parts of your body being affectedThanks for the advice brother. Unfortunately, I refuse to take medication given to me, because I don't want my symptoms covered up, I need to be aware of my body at all time. They have given me Gabapentin for the neuropathy, Cymbalta for the neuropathy/depression (Believe me, not depressed), Creon to replace my bodies pancreatic duties... other ones as well, but the scripts remain in my dresser. Pain relief can't occur either, have you ever tried taking an NSAID reliever or aspirin with gastritis? I did, and never again.None the less, thank you again. I'm guessing that with my biopsies they will find some markers to run with.
    keanhe 86 Replies
    • October 16, 2010
    • 06:55 PM
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  • Actually, there may be a solution to what's going on with you, but it's not something as simple as some underlying condition that everyone missed the whole time. A more complex scenario jumps to my mind, but be cautious, this is all coming just off the top of my head as I read your post. What you're describing sounds to me as if it progressed in this order: 1. You got the initial infection from the piercing, which due to its location allowed it to infect both the urinary tract and the bloodstream. 2. You sought treatment. 3. Most infections of this sort are due to staph infections. You were treated for this with the keflex. 3. The Keflex killed some of the original infection, the second course may have killed all of it. From where I am, there's no definite way to tell. 4. The Keflex also went ahead and killed off quite a bit of the other important bacteria you need for everyday life, exposing you to an overwhelming C.Dif infection. It may have happened after the first or second course of Keflex. Again, there's no way to tell from where I am. 5. More than likely the resulting C.Dif is what infected your kidneys and started the pain, but it does not seem to have been diagnosed properly at the time. 6. Assuming it was the same infection that started in the piercing you were prescribed Avelox. 7. This sounds like it may have allowed the C.Cdif to colonize further. 8. You were diagnosed with the c.dif. 9. It was treated with the MTZ (metrodinazole). 10. It may have not been entirely eradicated, as many strains have been demonstrating a resistance to this treatment, which may have allowed it to cause what used to be called a "pseudomembranous colitis" which would account for the gastrointestinal symptoms you described. At the same time, the infection may have disseminated throughout your entire body via the bloodstream. 11. If you were already neutropenic, and it sounds like you were (which means you have a low neutrophil count naturally, or for some other reason unrelated to the current infection) this process is likely to occur earlier than it would in a patient with a normal neutrophil count and will probably be much more severe than it would in someone else. 12. The elevated blood protein found may be a sign you are still fighting off the C.Diff infection. 13. An opportunistic c.diff infection would also account for the gastritis found, the lymphoid hyperplasia of the ileum and possibly the internal hemmerhoids. 14. All of the other symptoms can be explained by adverse reactions from either the MTZ or the Alvelox. 15. I will categorize the symptoms you report in this manner: (there is significant overlap of symptoms of the C.Diff infection and side effects of the named drugs) Those caused by opportunistic C.Diff Infection, and the resultant 1. "Pain like you've never felt before" 2. Kidney Infection 3. Fever 4. Diarrhea 5. Dehydration 6. Weight Loss (approx.40lbs) 7. Severe dizziness (possibly due to dehydration, dizziness upon standing is usually termed 'orthostatic hypotension' and can be caused by dehydration) 8. Chest and muscle pains (possibly due to intestinal malabsorbtion of nutrients due to damage. Also possibly an electrolye imbalance due to the dehydration) 9. The 'severe tachycardia' can again be caused by trying to overexert oneself while ill/dehydrated. (The heart attempts to compensate for a lack of fluid volume by pumping faster). 10. Light-colored stools 11. Frequent Bowel Movements 12. Steatorrhea 13. Gas 14. Elevated Blood Protein could be indicative of one or more current infections. Other 1. Chronic Ethmoiditis. This translates to inflammation of a sinus cavity. 2. Constant headache/pressure. Is likely caused by whatever is causing the sinus infection. it is most likely another infection (ie:the common cold). 3. Mental Issues. Can be caused by poor nutritional absorbtion, electrolyte imbalance, or the fact that you feel like crap pretty much all the time. 4. High Blood pressure. In this situation is hard to ascribe to a cause. Could be a response to pain, illness. 5. Frequent Cough (again, you can have more than one infection at once, especially when your immune system is down.) However, this is listed on the side effects panel of keflex as a warning sign. Could be that the keflex or the avelox also allowed a concurrent infection of the respiratory tract. 6. The severe lower back pain of 6/10-6/20 could be accounted for in a few ways: a. Flank pain caused by dehydration. b. A recurring kidney infection which resolved. 7. Low neutrophil count. You may have always been this way, this may have been a preexisting condition which predisposed you to the current situation. Have you ever had your neutrophil count checked prior to this? If you have, was it normal before then? Side Effects of Antibiotic Use 1. Arthritis-type pains. Possibly a sign of dehydration, but a documented side effect of Avelox. 2. Leg weakness. Avelox has a noted degenerative effect on tendons, an a noted incidence of neuropathies which could account for the weakness. Also, this may or may not continue in the patient long after discontiuation of the drug, even after a short course. 3. Also note that among the listed side effects of metrodinazole are: severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue; fever; flushing; stuffy nose; very dry mouth or vagina); bloody stools; decreased coordination; increased or decreased urination; numbness, tingling, or burning of the arms, hands, legs, or feet; red, swollen, blistered, or peeling skin; seizures; severe diarrhea; severe or persistent dizziness or headache; sore throat, chills, or fever; speech problems; stiff neck; stomach pain or cramps; vaginal itching, odor, or discharge; vision loss or other vision changes; white patches in the mouth. There are of course other explanations, and guillain-barre syndrome is very rare and more often associated with a campylobacter jejuni infection. I know this is a rather long explanation with probably more than a few misspellings, however, this may provide you with a basis of things to discuss with your physician. good luck to you
    gregtfish 67 Replies
    • October 19, 2010
    • 10:29 PM
    • 0
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  • Actually, there may be a solution to what's going on with you, but it's not something as simple as some underlying condition that everyone missed the whole time. A more complex scenario jumps to my mind, but be cautious, this is all coming just off the top of my head as I read your post.What you're describing sounds to me as if it progressed in this order:1. You got the initial infection from the piercing, which due to its location allowed it to infect both the urinary tract and the bloodstream.2. You sought treatment.3. Most infections of this sort are due to staph infections. You were treated for this with the keflex.3. The Keflex killed some of the original infection, the second course may have killed all of it. From where I am, there's no definite way to tell.4. The Keflex also went ahead and killed off quite a bit of the other important bacteria you need for everyday life, exposing you to an overwhelming C.Dif infection.It may have happened after the first or second course of Keflex. Again, there's no way to tell from where I am.5. More than likely the resulting C.Dif is what infected your kidneys and started the pain, but it does not seem to have been diagnosed properly at the time.6. Assuming it was the same infection that started in the piercing you were prescribed Avelox.7. This sounds like it may have allowed the C.Cdif to colonize further.8. You were diagnosed with the c.dif.9. It was treated with the MTZ (metrodinazole).10. It may have not been entirely eradicated, as many strains have been demonstrating a resistance to this treatment, which may have allowed it to cause what used to be called a "pseudomembranous colitis" which would account for the gastrointestinal symptoms you described. At the same time, the infection may have disseminated throughout your entire body via the bloodstream.11. If you were already neutropenic, and it sounds like you were (which means you have a low neutrophil count naturally, or for some other reason unrelated to the current infection) this process is likely to occur earlier than it would in a patient with a normal neutrophil count and will probably be much more severe than it would in someone else. 12. The elevated blood protein found may be a sign you are still fighting off the C.Diff infection. 13. An opportunistic c.diff infection would also account for the gastritis found, the lymphoid hyperplasia of the ileum and possibly the internal hemmerhoids. 14. All of the other symptoms can be explained by adverse reactions from either the MTZ or the Alvelox.15. I will categorize the symptoms you report in this manner:(there is significant overlap of symptoms of the C.Diff infection and side effects of the named drugs) Those caused by opportunistic C.Diff Infection, and the resultant1. "Pain like you've never felt before"2. Kidney Infection3. Fever4. Diarrhea5. Dehydration6. Weight Loss (approx.40lbs)7. Severe dizziness (possibly due to dehydration, dizziness upon standing is usually termed 'orthostatic hypotension' and can be caused by dehydration)8. Chest and muscle pains (possibly due to intestinal malabsorbtion of nutrients due to damage. Also possibly an electrolye imbalance due to the dehydration)9. The 'severe tachycardia' can again be caused by trying to overexert oneself while ill/dehydrated. (The heart attempts to compensate for a lack of fluid volume by pumping faster).10. Light-colored stools11. Frequent Bowel Movements12. Steatorrhea13. Gas14. Elevated Blood Protein could be indicative of one or more current infections. Other 1. Chronic Ethmoiditis. This translates to inflammation of a sinus cavity.2. Constant headache/pressure. Is likely caused by whatever is causing the sinus infection. it is most likely another infection (ie:the common cold).3. Mental Issues. Can be caused by poor nutritional absorbtion, electrolyte imbalance, or the fact that you feel like crap pretty much all the time.4. High Blood pressure. In this situation is hard to ascribe to a cause. Could be a response to pain, illness.5. Frequent Cough (again, you can have more than one infection at once, especially when your immune system is down.)However, this is listed on the side effects panel of keflex as a warning sign. Could be that the keflex or the avelox also allowed a concurrent infection of the respiratory tract. 6. The severe lower back pain of 6/10-6/20 could be accounted for in a few ways:a. Flank pain caused by dehydration.b. A recurring kidney infection which resolved.7. Low neutrophil count. You may have always been this way, this may have been a preexisting condition which predisposed you to the current situation. Have you ever had your neutrophil count checked prior to this? If you have, was it normal before then? Side Effects of Antibiotic Use 1. Arthritis-type pains. Possibly a sign of dehydration, but a documented side effect of Avelox.2. Leg weakness. Avelox has a noted degenerative effect on tendons, an a noted incidence of neuropathies which could account for the weakness. Also, this may or may not continue in the patient long after discontiuation of the drug, even after a short course.3. Also note that among the listed side effects of metrodinazole are: severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue; fever; flushing; stuffy nose; very dry mouth or vagina); bloody stools; decreased coordination; increased or decreased urination; numbness, tingling, or burning of the arms, hands, legs, or feet; red, swollen, blistered, or peeling skin; seizures; severe diarrhea; severe or persistent dizziness or headache; sore throat, chills, or fever; speech problems; stiff neck; stomach pain or cramps; vaginal itching, odor, or discharge; vision loss or other vision changes; white patches in the mouth. There are of course other explanations, and guillain-barre syndrome is very rare and more often associated with a campylobacter jejuni infection.I know this is a rather long explanation with probably more than a few misspellings, however, this may provide you with a basis of things to discuss with your physician. good luck to you Quite a through explaination, I appreciate the time you took on it. Unfortunately, that was the first thing my Infectious Disease and Neurologist thought, so I've taken upwards of 10 Stool samples and 10 cultures, all coming back negative for C Diff Toxins A, B, and the actual infection itself. The pain I felt in my back was a Kidney infection. You are right, the first 2 times were not sufficient, and it traveled up my urethra to the kidneys, giving me the severe pain I felt. The avelox was the reason I contracted C Diff, and to be honest, Avelox shouldn't even be given to people with Kidney problems, shows how much my Ex PCP knew. I did 2 colon cleansings while I had C Diff, and each time I expelled dark green liquid the entire time. But I instantly would feel better after, the first time for 3 days, the second time only a day. That made it easy to see I had an infection dealing with my colon... The elevated protein count I have isn't due to only one count. All of my counts on the Protein Electrophoresis are the maximum one should have, including my albumin, alpha, beta, and gamma. The antibiotics were taken for 10 days, then stopped. At that time, I felt awesome. I thrived for the next month, working my **s off, gaining 15 pounds of muscle, and going to MEPS to join the navy. The only reason I knew something was wrong was because my heart rate refused to go down, even after an hour plus of rest, water, and they actually let me go to sleep for a little (I got selected for intelligence, they wanted me!) I do not have psuedomembranous colitis, and I'm sure I would have died by now if it was sepsis, which I can't have... I haven't even had a fever. It never rose, not once. The symptoms my doctor said look like a result of Guillain Barre for the following reasons: 1. The cognitive problems I had were severe on onset, but slowly began to fade away as did the other symptoms with time. 2. I had just had a system wide bacterial infection, which is just another reason it could be. 3. The pain in my back was so severe, that it "numbed" my legs out. I slowly began feeling paresthesia, that started in my lower body (feet), traveled upwards past my knees, then stayed at my quads. There was sensations in my hands as well, but they never got bad. I would always drop things though, from the weakness. The cane got me around, but not fast, and it was difficult just moving my legs with it. I was unable to walk without that cane, because the only way I was walking was by lifting myself on that cane with all my weight, and swinging my other leg. 4. My blood pressure was 20-30 less than normal in both sys and di, and I have NEVER had blood pressure that low. It's usually high. 5. My heart rate maintained in the 50s. It never should be in the 50s. Mine is normally 75-85 at all times. It has since gone back to normal, as with other symptoms. 6. The time frame for it was perfect. It progresses up to 3 weeks, then the symptoms slowly begin to fade away. My time frame was within the accepted parameters. 7. I had difficulty swallowing for a little, just another reinforcing symptom. Again, I thank you for your insight. Have a great day =)
    keanhe 86 Replies
    • October 19, 2010
    • 11:16 PM
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  • Hopefully this finds you feeling well. For the record I did originally mean to delete my use of the term pseudomembranous colitis, as it was not appropriate to the situation, however, I was between tasks and writing without looking back over what I had already typed. Happy to hear that your symptoms have resolved. More people who post on this site should include specific dates and details in their posts the way you did, because without them there is no way an assessment over the internet could even reasonably be possible. The whole thing reminds me strangely of helping students with their case studies. Take care.
    gregtfish 67 Replies
    • October 20, 2010
    • 01:07 AM
    • 0
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  • Hopefully this finds you feeling well. For the record I did originally mean to delete my use of the term pseudomembranous colitis, as it was not appropriate to the situation, however, I was between tasks and writing without looking back over what I had already typed. Happy to hear that your symptoms have resolved. More people who post on this site should include specific dates and details in their posts the way you did, because without them there is no way an assessment over the internet could even reasonably be possible. The whole thing reminds me strangely of helping students with their case studies. Take care.I find that meticulosity paints the picture that words alone can't seem to explain.Unfortunately, some of my symptoms have faded, but only in intensity.As of right now, I still have unexplained weakness in my legs, stemming from my quadriceps. For example, I used to be able to dunk a basketball, now I can't even jump. It does make standing up from a chair a pain as well.I also have had this headache for about 10 months now, but I have to believe the first 4 months were C Diff Toxins. I've never had a sinus infection before, but now I've had one for the last 6 months. The constant drainage, cough, and frontal head pressure don't necessarily make it better either.I still have diffuse muscle aches, not so much pain. In addition, my knees have become quite painful.The fatigue I suffer from now has never been present, as I have always been athletic and in relatively good shape.My short term memory continues to suffer, as I sometimes wander into rooms just to ask myself why I came, I almost instantly forget directions, will forget whatever I am thinking, even if I try to repeat it over and over, etc...Oddly enough, I am still having about 3-6 bowel movements a day, but I find the steatorrhea has almost spontaneously stopped after my colonoscopy, which I am grateful for. I basically show IBS symptoms.I've also had an axillary adenopathy since my mysterious back pain, under the right arm. Hasn't changed in size and is not tender, but feel about the size of ping pong ball.I'm guessing that my physicians are going to diagnose it as CFS, as I've been told. They say that they really hate that diagnosis, but I truly seem to have a genuine case.Again, thank you for having the courage to speak your mind, and if anything else may come to you, when you are not busy, I more than welcome any kind of analysis you might have pertaining to my situation. Have a great night.
    keanhe 86 Replies
    • October 20, 2010
    • 02:26 AM
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  • I just thought I'd update my case for anyone interested. Due to the formation of ulcers on my inner lip, as long as my Serum immunofixation comes back without any signs of Multiple Myeloma or Waldestrom's Macroglobulemia (I had elevated protein with my Protein Electrophoresis), and my CBC Smear shows that the lymphocytosis I have isn't due to abnormal cells (I've had a chronic relative and absolute lymphocytosis for a few months), I will be diagnosed with either Reiter's Syndrome or Behcet's disease. It seems I meet the diagnostic criteria for both, so I'm not yet sure as to how it will play out.It may have taken a year of my life, but it's finally coming to a close. Don't lose hope people.
    keanhe 86 Replies
    • October 27, 2010
    • 03:51 AM
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  • At the risk of upsetting you, I seriously recommend that you learn to dowse with a pendulum (for yes/no/undefined as answer). Very easy to do. It will also help in your Intelligence work.
    Curly Stooge 319 Replies
    • October 27, 2010
    • 07:14 AM
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  • At the risk of upsetting you, I seriously recommend that you learn to dowse with a pendulum (for yes/no/undefined as answer). Very easy to do. It will also help in your Intelligence work.Not upsetting in the slightest. I see from some posts you've made that you are unhappy with western medicine. I like the idea of infused techniques of western and eastern medicine.Unfortunately, the military is VERY strict when it comes to their health requirements, and I would not be accepted at this point. Not only that, but I feel that I could not stand up to the physical challenges at this time, and would not put myself, my health, nor the safety of my country at risk because I want to enlist. It is a little frustrating, but at the same time, it opens up endless possibilities for me. I have always prided myself on the fact that I've been more intelligent/creative in thinking than a lot of people my age, and as a result of that, I'll be starting up courses at a wonderful state college where I live.I believe with hard studying, hard work, and crazy determination, I have what it takes to maintain a 3.7-4.0 GPA, while receiving coursework emphasizing upper level sciences and mathematics. I've always maxed out the scores on my state tests, and love science and mathematics, so I don't see myself doing poor on the MCAT exam, and actually like the way it is set up. I've set a new goal (a few months ago to be exact, with my sickness as the final catalyst), and that is to practice medicine, especially in areas that others would be unwilling to practice (small, lower class cities/hospitals). I never did like the idea of private practice.Thank you for your insight though, maybe I will give it a try.
    keanhe 86 Replies
    • October 27, 2010
    • 00:01 PM
    • 0
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  • The case has been solved. My internal medicine physician, in coordination with physicians at the Mayo Clinic in Florida, have finally diagnosed me with Reiter's Syndrome.Prevalence of Reiter's Syndrome? 3.5 out of 100,000.I'll be reporting to a Rheumatologist, and since NSAIDs don't seem to have any effect, I will be beginning methotrexate. However, I have read that just yesterday, there has been a recall due to glass flakes in the vials??? That's insane.For the people who posted, I thank you. Hope everyone is as fortunate as I am.
    keanhe 86 Replies
    • October 29, 2010
    • 03:35 PM
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  • My reply probably comes too late... or maybe not?In any case, I have been through a similar experience, with various other medications. I also have a friend who has Reiter's syndrome, so I know what it is, and can compare it easily to my symptoms.Reiter's syndrome, and most other "inexplicable/genetic" diseases is just an excuse for doctors who don't understand what they are doing. I am serious 100%.Here is a proof: I found at least four cases of patients with peripheral neuropathy, which owuld be that tingling sensation and so on that you felt when taken to ER. Those four got a treatment with an antibiotic and were CURED. How, you may ask?Because your condition is obviously caused by a disseminated infection. I would place my bets on H.pylori, which in medical circles is stil poorely understood and mostly considered to be present only in the GI tract, which is not true. It is a spirochete capable of penetrating any tissue and organ, including heart, muscles, and joints. Yes, those same joints that suffer in so called "reiter's syndrome".I hope that I have given you enough here to go on. Getting rid of H.pylori is not easy though. You have to start carefully, and keep "big guns" such as Clarythromycin for the end and then count with it being used for a looooong time, al the while making sure you don't deveolop C.difficile infection or some fungal (candida) problem. Eating foods with low GI is paramount as glucose is universal virulence factor.Good luck, and I hope you see this and do NOT give up the fight while being misled that "its in your genes". If it were, it would not start after antibiotic treatment. Munchousen syndrome and hereditary condition are two most common excuses of today's doctors who are mostly clueless.
    johnbettermedicine 1 Replies
    • August 28, 2013
    • 04:55 AM
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  • Take these symptoms very seriously, but don't take much stress. I advice you for meditation it will very helpful but for more information go for doctor reviews thanks.
    amita8 1 Replies
    • September 12, 2013
    • 01:22 PM
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  • My reply probably comes too late... or maybe not?In any case, I have been through a similar experience, with various other medications. I also have a friend who has Reiter's syndrome, so I know what it is, and can compare it easily to my symptoms.Reiter's syndrome, and most other "inexplicable/genetic" diseases is just an excuse for doctors who don't understand what they are doing. I am serious 100%.Here is a proof: I found at least four cases of patients with peripheral neuropathy, which owuld be that tingling sensation and so on that you felt when taken to ER. Those four got a treatment with an antibiotic and were CURED. How, you may ask?Because your condition is obviously caused by a disseminated infection. I would place my bets on H.pylori, which in medical circles is stil poorely understood and mostly considered to be present only in the GI tract, which is not true. It is a spirochete capable of penetrating any tissue and organ, including heart, muscles, and joints. Yes, those same joints that suffer in so called "reiter's syndrome".I hope that I have given you enough here to go on. Getting rid of H.pylori is not easy though. You have to start carefully, and keep "big guns" such as Clarythromycin for the end and then count with it being used for a looooong time, al the while making sure you don't deveolop C.difficile infection or some fungal (candida) problem. Eating foods with low GI is paramount as glucose is universal virulence factor.Good luck, and I hope you see this and do NOT give up the fight while being misled that "its in your genes". If it were, it would not start after antibiotic treatment. Munchousen syndrome and hereditary condition are two most common excuses of today's doctors who are mostly clueless.Uh, it is "in my genes" - specifically HLA-B27, which is a confirmed mutant gene in my body. Confirmed by genetics testing when I got my diagnosis. Additionally, during my combined colonoscopy and endoscopy, I've been confirmed negative for H. pylori, whiffle's disease, and any other abnormality associated with my stomach, GI, and colon. I'm graduating this semester with a B.S. in Microbiology with a bacteriology concentration and understand H. pylori in great detail. Additionally, recommending such antibiotics is quite dangerous, as the impair immune state of my body during antibiotic treatment was what obviously set off the C. diff infection. Having being treated with the metronidazole for the C. diff, if I had a recurrence of the infection through foolish use of such antibiotics under no medical pretenses of necessity, I would be asking for a C. diff infection resistant to metronidazole and would have to embrace the powerful gram positive glycopeptide antibiotic Vancomycin. No thanks for  a 2,000 dollar treatment regimen. Thank you for your answer, but things aren't always as "easy" as they seem.Additionally, I contracted a reiter's syndrome with verifiable neurological impacts through image studies. That made my case even harder to diagnosis. Genetics testing was the key to this one.
    keanhe 86 Replies
    • September 25, 2013
    • 04:41 AM
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  • Hello,I'm glad things are better for you.Did you get your genetic testing through your doctor/specialist or was it through a private company,if you don't mind me asking?
    rozellelily 21 Replies
    • October 16, 2013
    • 06:06 AM
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  • The testing was ordered by my rheumatologist and subsequntly retested through a private company for less than i would have thought.
    keanhe 86 Replies
    • October 24, 2013
    • 01:48 AM
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  • Not sure if you will see this but, I'm in a similar situation. Had C. Diff and now have lingering symptoms. My rheumatologist agrees with me that it's reactive arthritis(Reiter's syndrome). He feels that I could still have C. diff and that it's still causing my symptoms. I was also treat with flagyl for c. diff. Still have some gut issues, but wondering if my symptoms are chronic now. Made a call to the GI to see if I could still have active c. diff. I'm worried that I would be negative for c. diff and that my symptoms are chronic do to damage sustained. How has the methotrexate worked for you?
    jbr23mj 1 Replies Flag this Response
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