Discussions By Condition: I cannot get a diagnosis.

ANYONE!!! Please try and help...aches, pains, misdiagnosis', fatigue..etc

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: JSant14
  • January 15, 2009
  • 02:06 AM

I'm Jessica, I'm 18, and this is the background of my struggle...

In my adolescence I was beyond active. By middle school I was playing volleyball, basketball, and softball during their season at school, along with soccer year around and 7 different kinds of dance. I remember one day a week i would go from an hour of volleyball to 2 hours of dance to an hour of soccer practice. it was a lot. and stressfull, but not enough to really affect me. i just did it and loved it all. even maintained good grades, graduated with honors and got a scholarship to my high school.

I believe it must of been too much because by the end of 8th grade, i began having reaccuring head aches, sensitivity to light, and depression. Soon i started feeling weak and constantly tired, even when i wasn't doing any physical activity. Due to the fact that my mother had seem 2 students the year before me being diagnosed with lupis.. she got kind of worried since i was having the same symptoms they did.

By my freshman year, I was finally diagnosed with obsessive cumpulsive disorder, general anxiety disorder, and ADHD. The diagnosis' were long over due...i guess my mother,especially, and i just didnt want to admit it.

During volleyball season my freshman year I started getting sharp pains, aches, & shooting pains in my hands. The pains were usually in my knuckles and joints in my fingers, along with the metacarpals. Each night i struggled to sleep, and never felt rested enough, even if i did get to sleep early. i started experiencing aches and pains in my muscles and joints all over my body. My hands, knees, elbows, wrists, ankles (i even clapsed to the ground a few times walking to class due to sharp pains in my ankles), feet, jaw, shoulders, hips, etc.. I also had issues and still do with getting lightheaded and dizzy randomly throughout the day. usually happens a few times a day. i even blacked out a couple times.
My menstrual cycle went from being heavy and regular, to extremely irregular. while some times it was normal amount of bleeding, it became extremely light. sometimes id go months with just 1 day of bleeding each month... i mean i didnt want to complain hah.. but i knew something wasn't right.

I started experiencing extreme muscle spasms, mostly in my middle and lower back. I struggled in school since i had to miss so much. i couldnt even move out of bed some mornings. and around my period... the pain felt like ***l. My muscles felt weak and i experienced constant fatigue. I even started falling asleep during classes all throughout the day..which is not like me at all. i used to be so full of energy. I have problems with feeling extremely stiff, especially in the morning. cold weather also makes things worse.

After seeing my pediatrician a bunch of times, and ruling out lupis and other things, i was then diagnosed with juvenial rheumatoid athritis and fibromyalgia.

I then saw a Rheumatologist, was in physical therapy, and was medicated. I saw no results. The pills i was given to help me sleep just made it ten times more difficult to wake up in the morning. after 2 and half years of being medcated and diagnosed with this, i saw a new rheumatoid doctor, and when he saw my latest blood tests, he decided that i didnt have rheumatoid arthritis and was wrongly diagnosed. After that, i still complained to my doctor, begged for answers and wasnt even sent for tests anymore. My pediatrician felt it was psychological and that the depression was causing me physical pain. It was so frsutrating having no one understand what was going on. it felt like my doctor didnt even care about my issues. the hardest thing was trying to explain to teachers and coaches why i was struggling with so much. if it wasnt one problem..it was another. and could see how it would seem like i didnt want to try or be there..but i have always been dedicated to everything i do. and i have cried to many times because i am unable to play to the best of my ability and do the things i used to.

It is all so much to deal with. ll i want is answers. The pain and suffering is enough of a struggle, not knowing what it is is even more frustrating. i know there is an underlying issue or condition or disorder...i just want help finding out what it is....

I have done my own research thinking it may be an issue with my circulatory systom or possibly my adrenal glands, but even when i try bringing that up to a doctor they snub me off like im a hypocondriac.

:( I NEED HELP... i'm 18 years old now, and i want to be able to have an answer behind my issues so i dont seem lazy or crazy to my college teachers.

if anyone can help in anyway possible...id reaaaalllyyy appreciate it

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12 Replies:

  • hi i just wanted to let you know that you are not alone. I am twenty years old and i have the same symptoms. when my knees failed (they said from running sports) i took up kayaking and canoeing and now I am unable to do even that. i haven't ofund a doctor yet that will listen to me. i am now losing my eyesight and no one will listen. keep trying and hopefully someone will listen. be forcefull. cry even if you have to just keep going to the doctor until you find someone that will listen. keep it up. bye
    Anonymous 42789 Replies
    • January 15, 2009
    • 04:25 AM
    • 0
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  • hi sweetie, hearing your post has made me cry... why cause i have the same illness and are fairly postive that this is what you do have. No you do not have hypochrondrias. What you have is an illness which often does go hand in hand with fibromyaligia. Most of us with this do have fibromyalgia too. Ones with just fibromyaliga dont go falling asleep in class, fibro patients get tired but not as tired as that! What you have is called chronic fatigue immunity dysfunction syndrome CFIDS. i suggest for you to check out http://wwcoco.com/cfids/bernesx.html be aware that the CDC says that 80% with this illness remain undiagnosed. This is cause most doctors are not all that familiar with this illness and are not up to date with the studies on it and are not comfortable diagnoses it. You may need to go and see a doctor who is used to seeing CFIDS patients for a diagnoses. I go unconscious too at times with this. One of the common causes of the dizziness and some of the head symptoms in this illness is POTS (postural orthostatic tachycardia syndrome). That can cause unconsciousess in some of us. The CFIDS can cause unconsciousness too if we over do things. CFIDS affects the hormones eg period issues, it affects our nervous system and other things.......... i suggest you seek out some emotional support to help you deal with it all while you are seeking out to get the right diagnosis.. look for good online CFIDS forums for support or contact your local CFIDS/ME or CFS association for advice etc........... One can have low adrenal functioning in CFIDS but correcting that if it's there.. dont go completely fixing this illness as it remains. But cortisol testing with this is a good idea. Also be aware that most of us with this are deficient in vitamin D too. So make sure you have your Vitamin D levels checked (D2 and D3) and brought up to an optimal level best luck
    taniaaust1 2267 Replies
    • January 15, 2009
    • 06:25 AM
    • 0
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  • Have you been tested for celiac disease? Your joint pain & psych symptoms are related to celiac. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm
    aquila 1263 Replies
    • January 15, 2009
    • 05:13 PM
    • 0
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  • Did you get the Guardasil vaccine? I read about lots of young girls having all kinds of wierd symptoms after this vaccine.Best wishes.
    Anonymous 42789 Replies
    • January 19, 2009
    • 01:48 AM
    • 0
    Flag this Response
  • I am so sorry to hear that you are suffering from pain. It is a constant struggle to stay strong while you are feeling this way. I have heard of a product that may help, and I have personally seen it work with folks that are dealing with chronic pain and arthritis as well. It is called Nopolea. It is a liquid that you drink daily (only 1-3 ounces) and it tastes great. Let others know if this seems to help.
    Anonymous 42789 Replies
    • December 1, 2009
    • 06:46 PM
    • 0
    Flag this Response
  • You realy should get tested for lyme disease. Get a western blot IGG and IGA. Go to a doctor who specializes in lyme, not just anyone, because you will continue to get misdiagnosed (if in fact you have been, which you probably have). Also read "Cure Unknown" for a real education on a little understood disease.My daughter is 16 now and has been suffering from all the same symptoms for at least two years. We finally got an accurate diagnosis and got her on long term antibiotics. This is another reason you need a doctor knowledgeable about lyme because many wont treat long term and will tell you that if its not better in three weeks then it is fibromyalgia or something else like chronic fatigue syndrome. I am so sorry you are suffering so at such a young age. Check out http://www.lymeproject.com/ and www.lymenet.org good luck to you.
    Anonymous 42789 Replies
    • December 2, 2009
    • 00:28 PM
    • 0
    Flag this Response
  • I'm Jessica, I'm 18, and this is the background of my struggle...In my adolescence I was beyond active. By middle school I was playing volleyball, basketball, and softball during their season at school, along with soccer year around and 7 different kinds of dance. I remember one day a week i would go from an hour of volleyball to 2 hours of dance to an hour of soccer practice. it was a lot. and stressfull, but not enough to really affect me. i just did it and loved it all. even maintained good grades, graduated with honors and got a scholarship to my high school.I believe it must of been too much because by the end of 8th grade, i began having reaccuring head aches, sensitivity to light, and depression. Soon i started feeling weak and constantly tired, even when i wasn't doing any physical activity. Due to the fact that my mother had seem 2 students the year before me being diagnosed with lupis.. she got kind of worried since i was having the same symptoms they did. By my freshman year, I was finally diagnosed with obsessive cumpulsive disorder, general anxiety disorder, and ADHD. The diagnosis' were long over due...i guess my mother,especially, and i just didnt want to admit it.During volleyball season my freshman year I started getting sharp pains, aches, & shooting pains in my hands. The pains were usually in my knuckles and joints in my fingers, along with the metacarpals. Each night i struggled to sleep, and never felt rested enough, even if i did get to sleep early. i started experiencing aches and pains in my muscles and joints all over my body. My hands, knees, elbows, wrists, ankles (i even clapsed to the ground a few times walking to class due to sharp pains in my ankles), feet, jaw, shoulders, hips, etc.. I also had issues and still do with getting lightheaded and dizzy randomly throughout the day. usually happens a few times a day. i even blacked out a couple times.My menstrual cycle went from being heavy and regular, to extremely irregular. while some times it was normal amount of bleeding, it became extremely light. sometimes id go months with just 1 day of bleeding each month... i mean i didnt want to complain hah.. but i knew something wasn't right.I started experiencing extreme muscle spasms, mostly in my middle and lower back. I struggled in school since i had to miss so much. i couldnt even move out of bed some mornings. and around my period... the pain felt like ***l. My muscles felt weak and i experienced constant fatigue. I even started falling asleep during classes all throughout the day..which is not like me at all. i used to be so full of energy. I have problems with feeling extremely stiff, especially in the morning. cold weather also makes things worse.After seeing my pediatrician a bunch of times, and ruling out lupis and other things, i was then diagnosed with juvenial rheumatoid athritis and fibromyalgia.I then saw a Rheumatologist, was in physical therapy, and was medicated. I saw no results. The pills i was given to help me sleep just made it ten times more difficult to wake up in the morning. after 2 and half years of being medcated and diagnosed with this, i saw a new rheumatoid doctor, and when he saw my latest blood tests, he decided that i didnt have rheumatoid arthritis and was wrongly diagnosed. After that, i still complained to my doctor, begged for answers and wasnt even sent for tests anymore. My pediatrician felt it was psychological and that the depression was causing me physical pain. It was so frsutrating having no one understand what was going on. it felt like my doctor didnt even care about my issues. the hardest thing was trying to explain to teachers and coaches why i was struggling with so much. if it wasnt one problem..it was another. and could see how it would seem like i didnt want to try or be there..but i have always been dedicated to everything i do. and i have cried to many times because i am unable to play to the best of my ability and do the things i used to.It is all so much to deal with. ll i want is answers. The pain and suffering is enough of a struggle, not knowing what it is is even more frustrating. i know there is an underlying issue or condition or disorder...i just want help finding out what it is....I have done my own research thinking it may be an issue with my circulatory systom or possibly my adrenal glands, but even when i try bringing that up to a doctor they snub me off like im a hypocondriac.:( I NEED HELP... i'm 18 years old now, and i want to be able to have an answer behind my issues so i dont seem lazy or crazy to my college teachers.if anyone can help in anyway possible...id reaaaalllyyy appreciate itPlease be tested for Lyme Disease right away! I've had all your symptoms for years and was finally tested positive for Lyme. My doctor and I were blown away, for I never saw a tick or the typical bullseye rash. I HIGHLY recommend everyone become familiar wth this disease and the misinformation out there: 1) First off, you don't need to go hiking in the woods to be bit by a tick, and they can be in your own backyard, ballfields, etc. 2) Almost all states have reported Lyme, and you can't rely on the CDC's underreporting (According to them, Virginia Beach has few cases, but many locals tell of knowing somebody here who has contracted Lyme, and our newspaper has confirmed the disease is spreading and multiplying here.). I urge everybody to become aware of this terrible disease that can mimick many other diseases, including autoimmune diseases, gastrointestinal disorders, and heart problems. Furthermore consult the ILADS website because many doctors who aren't familiar with Lyme don't know which tests to order or how to properly treat this tricky disease.Best of luck, and don't ever give up on trying to find answers!
    Anonymous 42789 Replies Flag this Response
  • I'm Jessica, I'm 18, and this is the background of my struggle...In my adolescence I was beyond active. By middle school I was playing volleyball, basketball, and softball during their season at school, along with soccer year around and 7 different kinds of dance. I remember one day a week i would go from an hour of volleyball to 2 hours of dance to an hour of soccer practice. it was a lot. and stressfull, but not enough to really affect me. i just did it and loved it all. even maintained good grades, graduated with honors and got a scholarship to my high school.I believe it must of been too much because by the end of 8th grade, i began having reaccuring head aches, sensitivity to light, and depression. Soon i started feeling weak and constantly tired, even when i wasn't doing any physical activity. Due to the fact that my mother had seem 2 students the year before me being diagnosed with lupis.. she got kind of worried since i was having the same symptoms they did. By my freshman year, I was finally diagnosed with obsessive cumpulsive disorder, general anxiety disorder, and ADHD. The diagnosis' were long over due...i guess my mother,especially, and i just didnt want to admit it.During volleyball season my freshman year I started getting sharp pains, aches, & shooting pains in my hands. The pains were usually in my knuckles and joints in my fingers, along with the metacarpals. Each night i struggled to sleep, and never felt rested enough, even if i did get to sleep early. i started experiencing aches and pains in my muscles and joints all over my body. My hands, knees, elbows, wrists, ankles (i even clapsed to the ground a few times walking to class due to sharp pains in my ankles), feet, jaw, shoulders, hips, etc.. I also had issues and still do with getting lightheaded and dizzy randomly throughout the day. usually happens a few times a day. i even blacked out a couple times.My menstrual cycle went from being heavy and regular, to extremely irregular. while some times it was normal amount of bleeding, it became extremely light. sometimes id go months with just 1 day of bleeding each month... i mean i didnt want to complain hah.. but i knew something wasn't right.I started experiencing extreme muscle spasms, mostly in my middle and lower back. I struggled in school since i had to miss so much. i couldnt even move out of bed some mornings. and around my period... the pain felt like ***l. My muscles felt weak and i experienced constant fatigue. I even started falling asleep during classes all throughout the day..which is not like me at all. i used to be so full of energy. I have problems with feeling extremely stiff, especially in the morning. cold weather also makes things worse.After seeing my pediatrician a bunch of times, and ruling out lupis and other things, i was then diagnosed with juvenial rheumatoid athritis and fibromyalgia.I then saw a Rheumatologist, was in physical therapy, and was medicated. I saw no results. The pills i was given to help me sleep just made it ten times more difficult to wake up in the morning. after 2 and half years of being medcated and diagnosed with this, i saw a new rheumatoid doctor, and when he saw my latest blood tests, he decided that i didnt have rheumatoid arthritis and was wrongly diagnosed. After that, i still complained to my doctor, begged for answers and wasnt even sent for tests anymore. My pediatrician felt it was psychological and that the depression was causing me physical pain. It was so frsutrating having no one understand what was going on. it felt like my doctor didnt even care about my issues. the hardest thing was trying to explain to teachers and coaches why i was struggling with so much. if it wasnt one problem..it was another. and could see how it would seem like i didnt want to try or be there..but i have always been dedicated to everything i do. and i have cried to many times because i am unable to play to the best of my ability and do the things i used to.It is all so much to deal with. ll i want is answers. The pain and suffering is enough of a struggle, not knowing what it is is even more frustrating. i know there is an underlying issue or condition or disorder...i just want help finding out what it is....I have done my own research thinking it may be an issue with my circulatory systom or possibly my adrenal glands, but even when i try bringing that up to a doctor they snub me off like im a hypocondriac.:( I NEED HELP... i'm 18 years old now, and i want to be able to have an answer behind my issues so i dont seem lazy or crazy to my college teachers.if anyone can help in anyway possible...id reaaaalllyyy appreciate itPlease be tested for Lyme Disease right away! I've had all your symptoms for years and was finally tested positive for Lyme. My doctor and I were blown away, for I never saw a tick or the typical bullseye rash. I HIGHLY recommend everyone become familiar wth this disease and the misinformation out there: 1) First off, you don't need to go hiking in the woods to be bit by a tick, and they can be in your own backyard, ballfields, etc. 2) Almost all states have reported Lyme, and you can't rely on the CDC's underreporting (According to them, Virginia Beach has few cases, but many locals tell of knowing somebody here who has contracted Lyme, and our newspaper has confirmed the disease is spreading and multiplying here.). I urge everybody to become aware of this terrible disease that can mimick many other diseases, including autoimmune diseases, gastrointestinal disorders, and heart problems. Furthermore consult the ILADS website because many doctors who aren't familiar with Lyme don't know which tests to order or how to properly treat this tricky disease.Best of luck, and don't ever give up on trying to find answers!
    Anonymous 42789 Replies Flag this Response
  • I'm Jessica, I'm 18, and this is the background of my struggle...In my adolescence I was beyond active. By middle school I was playing volleyball, basketball, and softball during their season at school, along with soccer year around and 7 different kinds of dance. I remember one day a week i would go from an hour of volleyball to 2 hours of dance to an hour of soccer practice. it was a lot. and stressfull, but not enough to really affect me. i just did it and loved it all. even maintained good grades, graduated with honors and got a scholarship to my high school.I believe it must of been too much because by the end of 8th grade, i began having reaccuring head aches, sensitivity to light, and depression. Soon i started feeling weak and constantly tired, even when i wasn't doing any physical activity. Due to the fact that my mother had seem 2 students the year before me being diagnosed with lupis.. she got kind of worried since i was having the same symptoms they did. By my freshman year, I was finally diagnosed with obsessive cumpulsive disorder, general anxiety disorder, and ADHD. The diagnosis' were long over due...i guess my mother,especially, and i just didnt want to admit it.During volleyball season my freshman year I started getting sharp pains, aches, & shooting pains in my hands. The pains were usually in my knuckles and joints in my fingers, along with the metacarpals. Each night i struggled to sleep, and never felt rested enough, even if i did get to sleep early. i started experiencing aches and pains in my muscles and joints all over my body. My hands, knees, elbows, wrists, ankles (i even clapsed to the ground a few times walking to class due to sharp pains in my ankles), feet, jaw, shoulders, hips, etc.. I also had issues and still do with getting lightheaded and dizzy randomly throughout the day. usually happens a few times a day. i even blacked out a couple times.My menstrual cycle went from being heavy and regular, to extremely irregular. while some times it was normal amount of bleeding, it became extremely light. sometimes id go months with just 1 day of bleeding each month... i mean i didnt want to complain hah.. but i knew something wasn't right.I started experiencing extreme muscle spasms, mostly in my middle and lower back. I struggled in school since i had to miss so much. i couldnt even move out of bed some mornings. and around my period... the pain felt like ***l. My muscles felt weak and i experienced constant fatigue. I even started falling asleep during classes all throughout the day..which is not like me at all. i used to be so full of energy. I have problems with feeling extremely stiff, especially in the morning. cold weather also makes things worse.After seeing my pediatrician a bunch of times, and ruling out lupis and other things, i was then diagnosed with juvenial rheumatoid athritis and fibromyalgia.I then saw a Rheumatologist, was in physical therapy, and was medicated. I saw no results. The pills i was given to help me sleep just made it ten times more difficult to wake up in the morning. after 2 and half years of being medcated and diagnosed with this, i saw a new rheumatoid doctor, and when he saw my latest blood tests, he decided that i didnt have rheumatoid arthritis and was wrongly diagnosed. After that, i still complained to my doctor, begged for answers and wasnt even sent for tests anymore. My pediatrician felt it was psychological and that the depression was causing me physical pain. It was so frsutrating having no one understand what was going on. it felt like my doctor didnt even care about my issues. the hardest thing was trying to explain to teachers and coaches why i was struggling with so much. if it wasnt one problem..it was another. and could see how it would seem like i didnt want to try or be there..but i have always been dedicated to everything i do. and i have cried to many times because i am unable to play to the best of my ability and do the things i used to.It is all so much to deal with. ll i want is answers. The pain and suffering is enough of a struggle, not knowing what it is is even more frustrating. i know there is an underlying issue or condition or disorder...i just want help finding out what it is....I have done my own research thinking it may be an issue with my circulatory systom or possibly my adrenal glands, but even when i try bringing that up to a doctor they snub me off like im a hypocondriac.:( I NEED HELP... i'm 18 years old now, and i want to be able to have an answer behind my issues so i dont seem lazy or crazy to my college teachers.if anyone can help in anyway possible...id reaaaalllyyy appreciate itHave you ever been checked for "Epstein Barr Virus?" For the past 3-4 months I have been experiencing similar symptoms as you are describing. I also suffer from Depression, and they wanted to pin these symptoms on my depression getting worse...I've had depression for 30 yrs. and these symptoms were different...finally they looked into it more, and found out I suffer from Chronic Epstein Barr Virus...Good-luck! :)
    Anonymous 42789 Replies Flag this Response
  • I'm Jessica, I'm 18, and this is the background of my struggle...In my adolescence I was beyond active. By middle school I was playing volleyball, basketball, and softball during their season at school, along with soccer year around and 7 different kinds of dance. I remember one day a week i would go from an hour of volleyball to 2 hours of dance to an hour of soccer practice. it was a lot. and stressfull, but not enough to really affect me. i just did it and loved it all. even maintained good grades, graduated with honors and got a scholarship to my high school.I believe it must of been too much because by the end of 8th grade, i began having reaccuring head aches, sensitivity to light, and depression. Soon i started feeling weak and constantly tired, even when i wasn't doing any physical activity. Due to the fact that my mother had seem 2 students the year before me being diagnosed with lupis.. she got kind of worried since i was having the same symptoms they did. By my freshman year, I was finally diagnosed with obsessive cumpulsive disorder, general anxiety disorder, and ADHD. The diagnosis' were long over due...i guess my mother,especially, and i just didnt want to admit it.During volleyball season my freshman year I started getting sharp pains, aches, & shooting pains in my hands. The pains were usually in my knuckles and joints in my fingers, along with the metacarpals. Each night i struggled to sleep, and never felt rested enough, even if i did get to sleep early. i started experiencing aches and pains in my muscles and joints all over my body. My hands, knees, elbows, wrists, ankles (i even clapsed to the ground a few times walking to class due to sharp pains in my ankles), feet, jaw, shoulders, hips, etc.. I also had issues and still do with getting lightheaded and dizzy randomly throughout the day. usually happens a few times a day. i even blacked out a couple times.My menstrual cycle went from being heavy and regular, to extremely irregular. while some times it was normal amount of bleeding, it became extremely light. sometimes id go months with just 1 day of bleeding each month... i mean i didnt want to complain hah.. but i knew something wasn't right.I started experiencing extreme muscle spasms, mostly in my middle and lower back. I struggled in school since i had to miss so much. i couldnt even move out of bed some mornings. and around my period... the pain felt like ***l. My muscles felt weak and i experienced constant fatigue. I even started falling asleep during classes all throughout the day..which is not like me at all. i used to be so full of energy. I have problems with feeling extremely stiff, especially in the morning. cold weather also makes things worse.After seeing my pediatrician a bunch of times, and ruling out lupis and other things, i was then diagnosed with juvenial rheumatoid athritis and fibromyalgia.I then saw a Rheumatologist, was in physical therapy, and was medicated. I saw no results. The pills i was given to help me sleep just made it ten times more difficult to wake up in the morning. after 2 and half years of being medcated and diagnosed with this, i saw a new rheumatoid doctor, and when he saw my latest blood tests, he decided that i didnt have rheumatoid arthritis and was wrongly diagnosed. After that, i still complained to my doctor, begged for answers and wasnt even sent for tests anymore. My pediatrician felt it was psychological and that the depression was causing me physical pain. It was so frsutrating having no one understand what was going on. it felt like my doctor didnt even care about my issues. the hardest thing was trying to explain to teachers and coaches why i was struggling with so much. if it wasnt one problem..it was another. and could see how it would seem like i didnt want to try or be there..but i have always been dedicated to everything i do. and i have cried to many times because i am unable to play to the best of my ability and do the things i used to.It is all so much to deal with. ll i want is answers. The pain and suffering is enough of a struggle, not knowing what it is is even more frustrating. i know there is an underlying issue or condition or disorder...i just want help finding out what it is....I have done my own research thinking it may be an issue with my circulatory systom or possibly my adrenal glands, but even when i try bringing that up to a doctor they snub me off like im a hypocondriac.:( I NEED HELP... i'm 18 years old now, and i want to be able to have an answer behind my issues so i dont seem lazy or crazy to my college teachers.if anyone can help in anyway possible...id reaaaalllyyy appreciate itHave them check your Vitamin B12 level. After 18months of similar symptoms and being tested for MS, Lupus, Lyme Disease, and brain tumors I found out I have a Vitamin B12 deficiency. The reason why is still unknown at this time, however, I have been scheduled for further testing. I just started B12 injections.Heather- Massachusetts
    Anonymous 42789 Replies Flag this Response
  • Hi It does sound very much like Chronic Fatigue Syndrome, though you should of course have tests for other things like lupus, Lyme etc to eliminate them. If you Google search your symptoms you'll find lots of info about CFS. It generally follows a viral infection (like Epstein-Barr, but there are others).It can hit anyone at any age, and some say fibromyalgia and some say CFS. They are pretty well the same illness, except that FM is more on the pain/aches end of the spectrum, and CFS more on the fatigue end. I acquired this illness in 1994, and I've never fully recovered, but my health improved when I realised a few years ago that I had invasive candidiasis (which may or may not be the cause), and fortunately I had a good doctor who would listen, and he prescribed long term Fluconazole treatment for me, which helped considerably. This is a dangerous drug, however, and you could experiment more safely by taking Nilstat for a while and see if it helps improve your aches and pains. Of course, you must talk to a good doctor about this and have her/him prescribe these things for you. The other thing that improved my health dramatically was having amalgam fillings removed from my teeth. If you have any, it would be a good idea to get rid of them. The best thing you can do however, is REST. Stop trying to do too much (yes, I know, I've been there) and look after yourself. Try some gentle yoga for the muscle aches, and learn some meditation and relaxation exercises, which will help you cope in the short term. Take care and I hope that I have helped you at least a little...BB
    Anonymous 42789 Replies Flag this Response
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  • Hi Well, you are not alone honey. I'm treated as a hypochondriac these days although I do have a few clues as to what is going on its very difficult to get a doctor to take me seriously. The clue is your back spasms. Lower back problems affect from your ankles to your -and including- your brain, particularly the adrenal gland and intestinal tract which produces all the vitamins etc., we often are tested deficient of. An out of control adrenal gland causes the AP axis to push-pull your - our - moods all over the place and also it is responsible for the lactic acid that causes the joint aches and pains. I'm 62 so medically on the scrap heap but for a younger person I would recommend a chiropractic (one that knows what s/he is doing and not just a $$$$ soak). It may take a while to get your nerves freed up and the back fully functional again and some 're-education' may be necessary too as brain plasticity is a problem over a long period of time.Good luck all of you. Jasmine - Western Australia
    Anonymous 42789 Replies Flag this Response
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