Discussions By Condition: I cannot get a diagnosis.

Anyone know the root of this is?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: cozynana
  • September 24, 2011
  • 10:07 PM

I defy all doctors knowledge. It just gets more complex and I have my 2 1/2 year journey of illness. Please take a look of the bones of my issues and see if any of it makes sense.

Jan. 2009-Transition going into menopause, started vaginal pain, started journey of illness and pain.

March 2009- Botched colonoscopy, still have intestinal pain and issues with bowels, very constipated.

Aug. 2009- Mayo diagnosis Trigonitis, lumpy thyroid (scan of thyroid showed nothing of significance).

March 2010-. Total hysterectomy-precancerous uterus and ovaries.

June 2011- Diagnosed with Celiac Sprue, HLA DQ2 genetic gene. I have troubles with digesting double chained sugar and any starches, fruit (except ripe bananas), potatoes, corn, peas, rice, any grains. I eat plain meat, veggies, nuts, bananas and water.

Sept 2011 MRI confirmed demyelination of the brain

I would appreicate any thoughts you have.

I have troubles with digesting double chained sugars. Any starches, fruit, potatoes, corn, peas, rice, any grains. I eat plain meat, veggies, nuts and water. Follow the “Breaking the Vicious Cycle” diet, but have to be stricter.

Get sick if I eat any type of carbs, can’t eat any double chained sugars

Get sick if I overdo it

Do not catch cold, flu, strep throat, etc.

I have internal shakes in the mornings especially and when my bladder/vagina hurt

Can’t concentrate or focus to read a book or long articles

Bladder pain a lot of the time, set off by foods, vitamins, minerals

Bloating, bowel pain, bladder and bowel pain go together many times

Fell sick in the head, like the flu

Always sickest that time of the month

Good day, bad days

Have had three contrasts for CAT scans and MRIs. I always feel more well after them. Good feeling lasts at least a day. What is in the contrast solution that would have that effect?

Have been to many doctors, but starting over with Neuro, urogyno, and gastro/internist soon.

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1 Replies:

  • I just went to an urogyno and she confirmed I have IC but also asked if I had been checked for Lyme Disease. She thinks I fit the profile and told me to go home and read as much as I could on the topic. Wow, do I fit the profile!!!! I am getting tested by Igenex soon to see if it is what has made me so sick. Anyone else had Ly?me disease? How were you treated for it? Do you have an tips that may help me
    cozynana 39 Replies
    • October 4, 2011
    • 11:11 PM
    • 0
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