Discussions By Condition: I cannot get a diagnosis.

Anyone have Interstitial Cystitis?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: cozynana
  • November 12, 2009
  • 03:30 AM

I have had vaginal and female pain for 10 months. I came on gradually and go worse. I had a conlonoscopy because my GP thought maybe the pain was transferred pain and wanted to rule out colon cancer. The colonoscopy made everything worse. I now have huge allergy issues, still have female/vaginal pain, severe constipation, feeling of being unwell, weird movement feelings in bowels and female area, etc. Is this typical of IC?

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  • THE INTERSTITIAL FLUIDS COVERS 90% OF THE BODY TISSUES. majority lays under the subcutaneous tissues and also over all organs..the interstitial fluids when infected or is caring an infectious matter will cause dysfunctions and an allergenic state to body parts. Skin, bladder, kidneys, heart, pancreas, bowels etc.. cause’s from skin malfunctions to diabetes etc…its most useful needs is the hydrostatic and osmoses system to which yours system is not functioning properly. You may try http://www.manallc.com or direct your medical adviser to your situation.Good luck. I have had vaginal and female pain for 10 months. I came on gradually and go worse. I had a conlonoscopy because my GP thought maybe the pain was transferred pain and wanted to rule out colon cancer. The colonoscopy made everything worse. I now have huge allergy issues, still have female/vaginal pain, severe constipation, feeling of being unwell, weird movement feelings in bowels and female area, etc. Is this typical of IC?
    Alinfun 4 Replies
    • November 12, 2009
    • 03:58 AM
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  • I have had vaginal and female pain for 10 months. I came on gradually and go worse. I had a conlonoscopy because my GP thought maybe the pain was transferred pain and wanted to rule out colon cancer. The colonoscopy made everything worse. I now have huge allergy issues, still have female/vaginal pain, severe constipation, feeling of being unwell, weird movement feelings in bowels and female area, etc. Is this typical of IC? IC is usually accompanied by urinary issues like frequent urnination, pain during urinating and a overwhelming sense of urgency to urinate. Your constipation could be due to constant tension due to the pain. Is the pain your feeling a burning sensation, stabing, or dull throbbing pain? Is the pain at the opening to the vagina, the urethra or higher? Can putting pressure on the area lessen or worsten the pain? If your doctor did not ask these questions then I would seek another doctor. And don't feel weird to say exactly where the pain is. Personally, if it does not seem related to your urinary tract then I would suggest seeing an OB/GYN. I hope this helps.
    maxwelldemon98 2 Replies
    • November 12, 2009
    • 06:09 AM
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  • I have had vaginal and female pain for 10 months. I came on gradually and go worse. I had a conlonoscopy because my GP thought maybe the pain was transferred pain and wanted to rule out colon cancer. The colonoscopy made everything worse. I now have huge allergy issues, still have female/vaginal pain, severe constipation, feeling of being unwell, weird movement feelings in bowels and female area, etc. Is this typical of IC? Have you seen your PCP about maybe seeing a urologist? Have you seen your gyne doc? They have various tests for IC such as potassium sensitivity test) that involves filling your bladder with saline one time, then filling it with potassium the other. The discomfort of the test is mild but you could have a very strong reaction to the potassium if you have true IC. Any urologist should have you fill out a PUF sheet - it's for a diagnostic evaluation of chronic pelvic pain, for validity of pelvic pain, urgency and frequency. They do have treatment for IC. The medication of choice tends to be Elmiron. They also can do a series of "rescue rinses" where they inject lidocaine, heparin and something else I can't recall after not sleeping all night. I believe the third one is Marcaine. I think there are a total of 12 treatments. Good luck to you. One other thing you may want to push for is a CAT scan of the abdomen. I had chronic back pain for 2 years and suffered needless tests with painful injections, nerve ablations, etc. I've been told a CAT scan would have picked up the fibroid, which was the size of a softball, that was pressing directly on my spine. I'm not bitter about it. I'm just glad the pain is gone. This was discovered during my hysterectomy. Some symptoms of IC are: You feel unexplained pain or pressure in the urethra, the vagina, the area above the pubic bone, the inside of the thighs, the lower abdomen, the lower back, the groin area, or any combination of these areas. You feel pain during or after sexual intercourse. You have frequent, sometimes painful, urination. (Normally, people urinate an average of 6 to 7 times per day. Patients with IC urinate an average of 16 times per day, and some urinate as often as 60 times per day.) You wake up one or more times at night to urinate. You feel the urge to urinate, sometimes even after you've emptied your bladder. You have unresolved symptoms of a urinary tract infection (UTI) that have not responded to antibiotic therapy. Your symptoms come and go — flare-ups may be associated with menstruation, certain foods, allergies and stress. Take care! Tammy I am not a doctor, only someone who has worked in the medical field, so please research your condition further yourself. I'm here to try and help guide.
    Vikefantam 30 Replies
    • November 12, 2009
    • 09:14 AM
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  • I was diagnosed with IC about 2 years ago. What specific urinary problems are you experincing? Many times IC can manifest with other uro/gyn problems, such as endometriosis, which may explain your other pains/issues. Elmiron is the choice treatment for IC, but be aware that it is a VERY expensive rx... Around 200/month WITH insurance. My suggestion would be to contact a Urogynecologist. They can do an in office Cystoscopy (Insertion of a camera through the urethra and into the bladder.) It is uncomforatable, but it provides a definitive diagnosis. Good luck, and keep us posted!
    toyoung 5 Replies
    • November 12, 2009
    • 09:30 AM
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  • I was diagnosed with IC about 2 years ago. What specific urinary problems are you experincing? Many times IC can manifest with other uro/gyn problems, such as endometriosis, which may explain your other pains/issues. Elmiron is the choice treatment for IC, but be aware that it is a VERY expensive rx... Around 200/month WITH insurance. My suggestion would be to contact a Urogynecologist. They can do an in office Cystoscopy (Insertion of a camera through the urethra and into the bladder.) It is uncomforatable, but it provides a definitive diagnosis. Good luck, and keep us posted! I have more pain when I take vitamins or anything that is a mineral or metal. My pain use to be higher in my vagina and was diagnosed with trigonitis at Mayo. The doctor was not concerned and said "it is as common as a freckle". I wonder if it is as common to have pain so bad certain foods, vitamins, and minerals send others into orbit with pain. I have had a cystoscopy and the bladder looked well, but the trigone area was inflamed. I did not have the other tests yet. I am ruling out other considerations and will do more intensive IC tests later. Are there other conditions that mimic IC? The Urologist at Mayo insisted I do not have IC. My bowels are a mess also. I hear this goes hand in hand with IC. On the internet I read that one practitioner said that every IC patient that came into her practice also had Lyme Disease, anyone else ever read and heard this? I am always cautious what I read online and try to verify info with multiple sources.
    cozynana 39 Replies
    • November 12, 2009
    • 04:35 PM
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