Hi. I could use some input. I am having some symptoms that docs can't seem to figure out. I've been through this before a few years ago & don't want to do it again. Last time I got progressively sicker & ended up in the hospital so weak I couldn't walk. From my symptoms then, the er thought I had ms. hospital finally did mri (I had no insurance, so they were slow/not too inclined to look much). said not ms - no lesions. must be psychological, a conversion disorder; I should see a shrink. Oh & by the way there's a big tumor on your kidney, you should probably have that looked at but we're sure it's nothing. they put me out of the hospital (since there was 'nothing physically wrong with me.' 2 months later finally got kidney & adrenal gland removed - renal cell carcinoma. symptoms were 'most likely' paraneoplastic syndrome. Not that that saved my marriage, since my spouse now thought I was crazy & left me after almost 13 years & has spent the last 2 years trying to convine the court that I'm crazy & a danger to my kids. (Was stay-at-home Mom raising 2 beautiful kids, then suddenly put out & having to fight just to try to keep some time with them. Anyhow I know that's a lot of background. Just trying to say why I don't want to have to go through this sort of thing again, you know?
So, about 7 months ago I started feeling fatigue & arm weakness again. 2 things that had started with the paraneoplastic syndrome last time. so I wanted to jump on it in case it was RCC metastasis, but had to wait 3 months or so for new insurance to kick in. by then having more symptoms, but new dr seemed proactive, sent me to GI dr & neuro. cleared by both, though neuro says clearly something is wrong, but he's done all the testing he can & everything is good (MRI of brain & c-spine w & w/o contrast MS protocol & EMG/NCV - all completely normal) GI dr did upper endoscopy/colonoscopy including random duodenal biopsies - 'a few' internal hemorrhoids, but all normal. meanwhile, while waiting for results, symptoms continue to worsen.
Here are my symptoms:
fatigue, weakness, loss of strength- progressively worsening especially arms/hands, moving slow - everything seems to take twice as long as it should, intention/action tremor - mostly R hand but also other hand at times & sometimes postural(?) tremor of head, weight loss - about 46 lbs in about 6 months (putting me about 23 lbs below the lowest weight I could get to no matter what LA Weightloss did to me) though I'm still eating the same, difficult to fully extend fingers - in fact unable to extend ring & pinky finger of R hand unless I pull them with other hand or push them against something, people complain that they can't hear me - like I don't even have the strength to talk loud enough anymore, pain in back up under lowest ribs - sometimes also in front under lowest ribs or though& through in both places, sudden onset 'directional confusion' - not sure what to call it I drive a lot (EMT) & lately I suddenly seem to go the wrong way & even when I try to correct it I'll go the wrong way again & end up going even farther out of the way (I normally have very good directional sense & can get places even if I just know which way it is from where I start) my Paramedic has commented on it lately & is worried, also I nearly black out when I stand up or even if I turn suddenly - sometimes even when I'm just standing still...
I think that's all. I'm sorry this is so long. I just need some answers. and while I think my new dr is proactive, my work just had lay-offs, & so my insurance will stop after 30 days unless I get my shift back before then. I can't pay for drs w/o the insurance... Thanks for reading this far.:rolleyes:
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