I have not felt like myself on and off since June of 2006. It all started at the end of June, during my mensus- my legs started to shake uncontrollably on and off for three to four days and then I felt SO exhausted I couldn't move, think and I felt like I was in a complete fog! Then I started to feel a little better, on July 1st I went for a 5 mile walk with my friend (pushing my son who was just about 2) in a baby jogger- I was SO out of BREATH walking up the hills and then I felt like I was shakey all over and was going to pass out (because then I got very nervous- I didn't understand WHAT was going on). I was running 5 miles a day and was in great shape- so this didn't make any sense to me. I felt awful that day and for three days later- I felt like my head was in a complete fog, just exhausted (but couldn't sleep) and in space- then all of a sudden, I can feel something 'lift' and my head becomes clear again- it is the most bizarre feeling. During this time I dropped 7 pounds without trying- it just fell off!
Then for the month of July, my heart would beat fast on and off, but I felt a little better- I ran a couple times during the month and felt okay- not great. At the end of my mesus in July- here come my legs shaking again- and that complete fog but again couldn't sleep in the day) and felt like I was 'in space'. I lost another 7 pounds just like that. I went to my OB/GYN and she told me I was depressed and had anxiety- I said OK- just give me something to get rid off it.However on the way home from the OB/GYN's which is a hour drive (I felt something lift again and my head becomes clear). So they gave my Lexapro- well I had a severe anxiety attack the first night I took the Lexapro and ended up in the hospital. They found out that I had a Urinary Tract Infection and treated me with CIPRO (which is an awful drug) for it. So I don't take the Lexapro any more.
For the month of August I felt okay- just a bit in shock from everything and afraid that the feeling would come back - so know I have a bit of anxiety- that I can deal with but what I am feeling is not anxiety! For the month of September- no shaking legs this time, however that foggy head feeling again- and then my head cleared.
October and November were okay- at the beginning of December- I felt awful again- legs shaking again- I couldn't control it, my heart would beat so fast and I was totally out of breath and couldn't walk up the stairs without gasping for air! It always happens at the end of my mensus. I went to the doctor because I was shore that I had a UTI again- however it came back fine- a little elevation of WBC in my urine- however it grew out to be nothing. I started to take the CIPRO again (will never take this again in my life- felt awful on it). Well my tired, exhausted, brain fog feeling came back and then cleared again). I again lost 5 lbs without trying... during this time.
In the course of all of this, they tested my for Lyme disease, for a blood infection, for Epstein's Barr-Virus, Mono, they gave me a CT scan of my lower abdomen, they tested for a Pheocyromocytona (a tumor of the adrenal gland- which my grandmother had), a Carcenomia (a tumor of the intinstines). They tested my thyroid and did a complete blood workup and all came back normal, however they never tested during 'my spells' for lack of a better word.
So, here come my mesus at the end of January and I feel awful again- that complete spaced out, exhausted, can't think, almost confused comes over me at the end of my mensus - I feel like I can't handle any stress and I just feel awful- like I am dying. I just want to cry and my husband says that you must be depressed- if one more person says that to me I am going to scream! So... this feeling lasts anywhere from two- five days with varying levels of exhaustion- the the feeling 'lifts' and goes away. After the feelings lift I have noticed that I am shaky and feel like I have low blood sugar feeling but I don't know anymore! This time I thought I had another UTI because I had lower abdominal cramping and had to pee a lot and get up in the night to pee but only would pee a little. But no UTI.
Other symptoms I am having are: ringing in my ears ALL of the time- feeling of lightheadedness only during the beginning of my period or if I am very tired, I have been getting headaches on and off and when I do they seem to be severe and my legs feel heavy/weak- not a full blown migrane but an awful headache. If I fall asleep they will go away. During this last spell, I have had severe lower back aches, headaches and neck pain as well.
The most bizarre thing is that my 'spells' go away and I feel good- I am running again and have energy but I am just holding down the hatches until my period starts again! One thing I should mention is that I do have genital herpes- but I am not sure that this has anything to do with it- I have had a few outbreaks during this time but not bad.
I am going to a new Internal Medicine doctor this Friday. I just want to feel like myself again- all month long.
Sorry for such a long post, however I thought the more information you had, the more you might be able give me some suggestions of where to look. I have thought that maybe it was MS- I sometimes I tingling in my feet and hands but only when I am sitting on my feet or laying on my hands at night- it seems to go away..., I have thought that I could have a combination of things happening... maybe there is an issue with my adrenal glands... maybe I have Meinerre's disease (an inner ear issue- because I do get spells of VERTIGO two or three times a year). Again... any thoughts would be appreciated.....