Discussions By Condition: I cannot get a diagnosis.

Any thoughts would be appreciated....

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • February 19, 2007
  • 04:41 PM

I have not felt like myself on and off since June of 2006. It all started at the end of June, during my mensus- my legs started to shake uncontrollably on and off for three to four days and then I felt SO exhausted I couldn't move, think and I felt like I was in a complete fog! Then I started to feel a little better, on July 1st I went for a 5 mile walk with my friend (pushing my son who was just about 2) in a baby jogger- I was SO out of BREATH walking up the hills and then I felt like I was shakey all over and was going to pass out (because then I got very nervous- I didn't understand WHAT was going on). I was running 5 miles a day and was in great shape- so this didn't make any sense to me. I felt awful that day and for three days later- I felt like my head was in a complete fog, just exhausted (but couldn't sleep) and in space- then all of a sudden, I can feel something 'lift' and my head becomes clear again- it is the most bizarre feeling. During this time I dropped 7 pounds without trying- it just fell off!

Then for the month of July, my heart would beat fast on and off, but I felt a little better- I ran a couple times during the month and felt okay- not great. At the end of my mesus in July- here come my legs shaking again- and that complete fog but again couldn't sleep in the day) and felt like I was 'in space'. I lost another 7 pounds just like that. I went to my OB/GYN and she told me I was depressed and had anxiety- I said OK- just give me something to get rid off it.However on the way home from the OB/GYN's which is a hour drive (I felt something lift again and my head becomes clear). So they gave my Lexapro- well I had a severe anxiety attack the first night I took the Lexapro and ended up in the hospital. They found out that I had a Urinary Tract Infection and treated me with CIPRO (which is an awful drug) for it. So I don't take the Lexapro any more.

For the month of August I felt okay- just a bit in shock from everything and afraid that the feeling would come back - so know I have a bit of anxiety- that I can deal with but what I am feeling is not anxiety! For the month of September- no shaking legs this time, however that foggy head feeling again- and then my head cleared.

October and November were okay- at the beginning of December- I felt awful again- legs shaking again- I couldn't control it, my heart would beat so fast and I was totally out of breath and couldn't walk up the stairs without gasping for air! It always happens at the end of my mensus. I went to the doctor because I was shore that I had a UTI again- however it came back fine- a little elevation of WBC in my urine- however it grew out to be nothing. I started to take the CIPRO again (will never take this again in my life- felt awful on it). Well my tired, exhausted, brain fog feeling came back and then cleared again). I again lost 5 lbs without trying... during this time.

In the course of all of this, they tested my for Lyme disease, for a blood infection, for Epstein's Barr-Virus, Mono, they gave me a CT scan of my lower abdomen, they tested for a Pheocyromocytona (a tumor of the adrenal gland- which my grandmother had), a Carcenomia (a tumor of the intinstines). They tested my thyroid and did a complete blood workup and all came back normal, however they never tested during 'my spells' for lack of a better word.

So, here come my mesus at the end of January and I feel awful again- that complete spaced out, exhausted, can't think, almost confused comes over me at the end of my mensus - I feel like I can't handle any stress and I just feel awful- like I am dying. I just want to cry and my husband says that you must be depressed- if one more person says that to me I am going to scream! So... this feeling lasts anywhere from two- five days with varying levels of exhaustion- the the feeling 'lifts' and goes away. After the feelings lift I have noticed that I am shaky and feel like I have low blood sugar feeling but I don't know anymore! This time I thought I had another UTI because I had lower abdominal cramping and had to pee a lot and get up in the night to pee but only would pee a little. But no UTI.

Other symptoms I am having are: ringing in my ears ALL of the time- feeling of lightheadedness only during the beginning of my period or if I am very tired, I have been getting headaches on and off and when I do they seem to be severe and my legs feel heavy/weak- not a full blown migrane but an awful headache. If I fall asleep they will go away. During this last spell, I have had severe lower back aches, headaches and neck pain as well.

The most bizarre thing is that my 'spells' go away and I feel good- I am running again and have energy but I am just holding down the hatches until my period starts again! One thing I should mention is that I do have genital herpes- but I am not sure that this has anything to do with it- I have had a few outbreaks during this time but not bad.

I am going to a new Internal Medicine doctor this Friday. I just want to feel like myself again- all month long.

Sorry for such a long post, however I thought the more information you had, the more you might be able give me some suggestions of where to look. I have thought that maybe it was MS- I sometimes I tingling in my feet and hands but only when I am sitting on my feet or laying on my hands at night- it seems to go away..., I have thought that I could have a combination of things happening... maybe there is an issue with my adrenal glands... maybe I have Meinerre's disease (an inner ear issue- because I do get spells of VERTIGO two or three times a year). Again... any thoughts would be appreciated.....

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4 Replies:

  • You sound very out of balance - have you considered trying acupuncture? It is really helpful, especially when western docs just sort of throw up their hands. Oriental Medicine treats diagnosis very differently, and we can always come up with one based on signs/symptoms/ tongue and pulse diagnosis. It is a very balanced and complete form of medicine. You signs point to a heart and liver inbalance, with some liver wind stirring up during your menstrual cycle. Acupuncture really helps menstrual disorders. Please consider finding an acupuncturist who also is a certified herbalist, Visit www.acufinder.com for more info. I agree cipro is a very toxic drug, as well as lexapro. Some people have no problems with these meds, but others can get terrible side effects. Are you taking any other meds? Best wishes.DOM
    acuann 3,080 Replies
    • February 20, 2007
    • 01:11 AM
    • 0
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  • Hi, Lyme disease and its co infections don't always show up on tests. Part of the dx is also clinical. You could have been bitten and not had a rash, just thought it was a bug bite. They have tied Lyme to things like MS, Fibro, Chronic Fatigue and much nore. The "brain fog attacks", weakness, the crushing fatigue, the headaches, and much more is a part of Lyme. I got really bad during my cycles too and all tests were normal. It go to the point with me, I was lucky to have a few good days a month. Lyme messes with the thyroid too, thus the weight loss, I have weight gain. You could have thyroid issues going on, but the docs only "see" what the lab points out in bold print. They don't understand we get more frustrated with each new symptom, that no one believes us, THEN we might get a bit depressed. Not the other way around. Being a woman, that seems to be the first thing they try to dx us with, depression. Please check out this site where you will learn alot. www.lymenet.org . Hope you find out something here, so you can feel better soon. Best wishes.
    Anonymous 42,789 Replies
    • February 20, 2007
    • 10:46 AM
    • 0
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  • hi :) you might want to look up the symptoms of endometriosis, or cervical,uterine, and ovarian cancers. dont be afraid, but the symptoms are similiar especially since they are marked by your periods. if after reading about these problems any of your symptoms are suspicious, you should tell your doctor and bring a printout of matching symptoms and when they occur for you. they are all treatable and probably not whats wrong for you- but really look at endometriosis- it sounds the most correct in your symptoms (like the legs shaking and menstrual time)and is often linked with autoimmune disorders that can cause things like the palpitations,dizzyness, etc. wishing you the best.
    kamsae 88 Replies
    • February 20, 2007
    • 05:01 PM
    • 0
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  • It sounds like you have got some kind of hormonal imbalance. Have you actually checked your blood sugar levels when you are feeling bad? These can be very revealing and something you can do yourself with a blood glucose meter. I wouldn't take the depression and anxiety diagnosis too seriously. If you become ill regularly for an unidentified reason, any normal person would feel anxious or depressed. It's the cause that is important and not the symptoms. It is worth checking out chronic fatigue and candiasis. Particularly the latter as these problems flared up after taking Cipro.
    Anonymous 42,789 Replies
    • February 20, 2007
    • 05:35 PM
    • 0
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