Discussions By Condition: I cannot get a diagnosis.

Any Thoughts??

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: walnuts37
  • August 11, 2009
  • 05:44 PM

I'm a 40 yr male. I became ill in November 2008 with what I thought was the flu. Since then I've experienced chronic night sweats, loss of appetite, recurring respiratory infections and general malaise. Additionally, I've experienced some very intense episodes of what I can only describe as "brain fog".

I've seen my gp, hematolgist, infectious disease specialist, gi specialist and have had extensive blood tests and imaging studies done by all. Abnormalities found were elevated CRP, mildly elevated WBC, and inflammed lymph nodes in Abdomen CT. Most recently, I've had low platelet levels (which were previously within normal), and I also tested positive for mononucleosis antibodies.

Despite these findings and my symptoms, nobody has come up with anything conclusive. I continue to feel horrible and my doctor seems to take a "wait and see" approach. I realize that doctors are not omniscient, but its not easy to "wait and see" when you're the one feeling sick. Prior to this, I felt healthy, exercised and never had enough time in the day to complete my activities. My life has done a complete 360!

It seems that I have no other avenues to resolve this. It's so difficult to comprehend how one can become so sick and not be able to find a reason why. If anyone has any thoughts on what else I could do it would be greatly appreciated. At this point everyone, including myself, is stumped.

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  • I'm a 40 yr male. I became ill in November 2008 with what I thought was the flu. Since then I've experienced chronic night sweats, loss of appetite, recurring respiratory infections and general malaise. Additionally, I've experienced some very intense episodes of what I can only describe as "brain fog". I've seen my gp, hematolgist, infectious disease specialist, gi specialist and have had extensive blood tests and imaging studies done by all. Abnormalities found were elevated CRP, mildly elevated WBC, and inflammed lymph nodes in Abdomen CT. Most recently, I've had low platelet levels (which were previously within normal), and I also tested positive for mononucleosis antibodies. Despite these findings and my symptoms, nobody has come up with anything conclusive. I continue to feel horrible and my doctor seems to take a "wait and see" approach. I realize that doctors are not omniscient, but its not easy to "wait and see" when you're the one feeling sick. Prior to this, I felt healthy, exercised and never had enough time in the day to complete my activities. My life has done a complete 360! It seems that I have no other avenues to resolve this. It's so difficult to comprehend how one can become so sick and not be able to find a reason why. If anyone has any thoughts on what else I could do it would be greatly appreciated. At this point everyone, including myself, is stumped. i dont know if the elevated CRP fits the following or not (or maybe you have something else going on as well). But your other symptoms all could be caused by chronic fatigue immunity dysfunction syndrome (CFIDS). If it is CFIDS.. as part of the diagnoses is that one has to have the symptoms for 6 mths before diagnoses is given on this (to help disclude other things), ones doctors may wait that time out before giving one a diagnoses. (a specialist thou in this illness will give a diagnoses out faster). i hope it's not this.. best luck
    taniaaust1 2267 Replies
    • August 12, 2009
    • 02:43 AM
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  • I'm a 40 yr male. I became ill in November 2008 with what I thought was the flu. Since then I've experienced chronic night sweats, loss of appetite, recurring respiratory infections and general malaise. Additionally, I've experienced some very intense episodes of what I can only describe as "brain fog". I've seen my gp, hematolgist, infectious disease specialist, gi specialist and have had extensive blood tests and imaging studies done by all. Abnormalities found were elevated CRP, mildly elevated WBC, and inflammed lymph nodes in Abdomen CT. Most recently, I've had low platelet levels (which were previously within normal), and I also tested positive for mononucleosis antibodies.Despite these findings and my symptoms, nobody has come up with anything conclusive. I continue to feel horrible and my doctor seems to take a "wait and see" approach. I realize that doctors are not omniscient, but its not easy to "wait and see" when you're the one feeling sick. Prior to this, I felt healthy, exercised and never had enough time in the day to complete my activities. My life has done a complete 360!It seems that I have no other avenues to resolve this. It's so difficult to comprehend how one can become so sick and not be able to find a reason why. If anyone has any thoughts on what else I could do it would be greatly appreciated. At this point everyone, including myself, is stumped.Hi,Brain fog is possible with many illnesses, one cause can be elevated Ammonia levels in the blood, also if the liver like in my case is not getting rid of the toxins in the blood these toxins can get into the brain causing what many people describe as brain fog, you could consult a liver doctor and run your symptoms and results past them. I am sure you have done liver function tests but these can show as normal even if the liver is effected. Many things can cause this, infection, NASH, etc.Good luck, Ian
    Anonymous 42789 Replies
    • August 12, 2009
    • 00:36 PM
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  • I know you've seen alot of Specialists but what about trying to find another General GP ? or perhaps alternative therapies ? Just an idea I wish I could help more but stumped too on this one.Keep pushing for answers, you're the one suffering not the Doctos so they have no idea of how it really affects your lifexxSamanthahttp://www.undiagnosedillness.org
    Anonymous 42789 Replies
    • August 12, 2009
    • 09:31 PM
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  • Okay, what symptoms prompted the abdominal CT? If you are experiencing GI symptoms as well and the par a-aortic, iliac or mesenteric lymph nodes are enlarged, then further evaluation is warranted. Particularly, if further platelet suppression is demonstrated, then lymphoma should be ruled out if not already considered. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • August 13, 2009
    • 01:15 AM
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  • Okay, what symptoms prompted the abdominal CT? If you are experiencing GI symptoms as well and the par a-aortic, iliac or mesenteric lymph nodes are enlarged, then further evaluation is warranted. Particularly, if further platelet suppression is demonstrated, then lymphoma should be ruled out if not already considered. Best regards, J Cottle, MDHi,CT scan was ordered in March 2009 because of loss of appetite and upper right quadrant ache. That scan showed many mildly prominent lymph nodes within the mesentery with some associated hazy fatty stranding. Subsequently, pet scan was ordered in July 2009 due to lymphoma suspicion. Pet scan showed no uptake in lymph nodes. Final diagnosis: Indeterminate night sweats, abdominal discomfort and inflammatory markers of inflammation.My symptoms have persisted, and I can't help but feel like something is being missed. Any other thoughts?Thanks,Walnuts37
    walnuts37 1 Replies
    • August 31, 2009
    • 04:48 AM
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