Discussions By Condition: I cannot get a diagnosis.

any ideas on what this is?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: jandkmom
  • April 28, 2008
  • 05:49 PM

i am a 35 yr old married mom of 2. usually, i am pretty healthy. just occasional migraines and a few fertility issues. usually, my weight does not vary much. 5'3 and 110-118. the heavier being at that time of the month or post winter time.....

this year however, i have gained 20 lbs while i have been working out, i feel fatigued constantly, muscle aches, constant headaches, forgetfulness, confusion, sharp abdominal pain, nausea, irritability, dry hands, and dry hair.

i went to the doc and they ran some blood tests and i did a sono. i get all the results back this friday. the only thing that i know about the blood tests is that my glucose levels all came back normal.

if all the tests they ran come back within range should i contact my old neurologist and check with him?

any ideas of what is going on? :confused:

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6 Replies:

  • Have you been tested for any autoimmune diseases (besides diabetes)? They can cause several of the symptoms you mentioned (plus fertility problems). If your CBC doesn't reveal signs of infection, you may want to look into Lupus, Cushings, Celiacs, Sjogrens, Thyroid problems, etc. Are you running a fever? Best of luck.
    GD2005 61 Replies Flag this Response
  • thanks for the reply. they ran tests for thyroid and they looked for ovarian cysts. what tests do they do for lupus? my grandmother died at the age of 56 due to complications of lupus. i have been doing a lot of googling the last two weeks seeing if i can find anything out. i hate not feeling like me. oh, and i rarely have a fever......only it seems when my joints are really flaring up.
    jandkmom 1 Replies Flag this Response
  • People don't have to guess about the results from their blood work. Ask for a copy for your records, then you will know what you were tested for. I would think thyroid needs to be checked.
    Monsterlove 2921 Replies Flag this Response
  • Thyroid. GP can do it but an Endocrinologist is the specialist. Blood work for TSH, FT4 and FT3 and antibodies for Graves Disease and Hashimotos disease...very common especially among women. By the way when you get you lab results (and you should keep the copies...you can get them by law) keep in mind that The American Association of Clinical Endocrinologist (thyroid and diabetes specialists) recommend a TSH of between 0.3 and 2.5....over or under most likely indicates thryoid problems and should be treated. The other values are important too, but many docs say TSH up to 5.0 is "normal"...not the case so be careful. Joan
    Joan5555 316 Replies Flag this Response
  • I had a lot of your symptoms and eventually was diagnosed with something called Hashimoto's Encephalopathy. It is a rare complication of autoimmune thyroiditis- diagnosed by checking thyroid ANTIBODIES, even if hormones are normal (most HE patients have normal thyroid hormone levels).It took my 8 years and 8 neurologists to get diagnosed, and along the way, i was given constant reassurance that my thyroid gland was okay. Subsequent ultrasound of my gland showed that it was full of tiny nodules from the autoimmune destruction. I was completely floored that a neurologist found my thyroiditis.I don't know if this applies to you, but if you start getting desperate, you might ask to have thyroid antibodies (to thyroglobulin and thyroperoxidse) checked. Most doctors have not heard of HE yet. The word is slowly getting out to the neurologists, but there is a long way to go still.I hope you get some kind of an answer soon.Best Wishes
    Anonymous 42789 Replies Flag this Response
  • If your grandmother had Lupus, I would definitely mention that to your doctor. A fever that is present when your symptoms are acting up is a symptom of lupus (and other autoimmune diseases). Potential tests for Lupus-Positive anti-nuclear antibodies -Low blood counts-Sedimentation rate-Kidney/Liver function Best of luck!
    GD2005 61 Replies Flag this Response
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