So, it's been 2 1/2 years since my symptoms first appeared with a strange rash on my trunk, muscle pain, extreme fatigue, chest pains and painful sores in my nose.
My GP ran bloodwork, which was all normal, except for a high SED rate and CRP. I saw a dermatologist who had never (in 25 yrs) seen a rash anything like what I had. I saw a Rheumatologist who didn't have much to offer.
Since then, more symptoms have come and gone,
nausea for a month that caused me to drop 15 lbs.
numbness in my toes for two weeks
vision disturbances-straight lines seem to jump around
other misc rashes on my arms
my thyroid grew 1/4 inch and then shrank back down
blood pressure jumps around from 90/60 to 105/98
a painful lump on my upper thigh, which hasn't gone away
All the while, the original symptoms have also been coming and going, except the nose sores, which are almost always around. During this time, I had a baby with no complications, and actually felt very good the entire pregnancy.
I asked my doctor to do blood work for Lupus and Wegener's Granulomatosis, which were both negative.
Thanks for reading!