Discussions By Condition: I cannot get a diagnosis.

Amyotrophy

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: stafford92
  • June 21, 2012
  • 06:51 AM

Recently I have been diagnosed with, Monomelic Amyotrophy (MMA). There is said to be no cure for this, but I have it in my right hand and there is alot of muscle wasting. I'm just wanting to know if anyone else is dealing with the same thing, and if there is anyway to help strengthen the muscles in the hand/wrist area. Thanks!

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2 Replies:

  • My 17 year old son was diagnosed with Hirayama Disease in the Spring. He went to physical therapy for a couple of months and also had cold laser treatments at a chiropractor. There has been a small amount of strength increase on the affected hand, 2-4 pound increase, also less tremors and able straighten fingers better. This week he had surgery on his arm by an orthopedic hand specialist to do a nerve transfer to reinervate the ulnar nerve, which is the nerve in his arm mostly affected. The surgery technique was pioneered by a doctor in St. Louis http://health.usnews.com/usnews/health/articles/060508/8maverick_2.htm. We won't know the outcome for quite a few months, but hope that it restores communication with the affected nerve to the brain eventually.
    Anonymous 42789 Replies Flag this Response
  • I hate to hear that, but I have a question about the Hirayama. Is it similar to the monomeli amyotrophy that i'm suffering from?
    stafford92 1 Replies Flag this Response
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